While I write this article, my son is across the room—on a lovely Saturday afternoon—watching an episode of his favorite show. Soon, my husband will scoop him up, and the both of them will spend time together outside. But for now, his eyes are focused on a television screen while mine track words across a computer screen. Like clockwork, questions gnaw at me as I try to focus. Is he getting too much screen time while I work? Am I still a “good mom” if I’m hardly paying attention to him? Sure, we’ll spend the rest of the day together as a family, but what if I miss something important while he’s out with his dad? Why do I feel bad for taking time for myself in the first place?
The simple answer is mom guilt, and I’m certainly not the only person that deals with it.
Mom guilt is defined as any specific feeling of guilt a woman experiences in relation to her role as a mother and her ability to meet her child’s needs. It can occur at any stage in motherhood and for a plethora of reasons. Any parent or caregiver is susceptible to feelings of guilt, but I was especially curious to chat with mothers navigating guilt as they pursue their dreams, manage other responsibilities, and work in or outside of their homes.
In an interview with xoNecole, five mothers got real about their experience working through guilt, and here’s what they had to say.
Lauren Johnson – Producer and Director of Harbor Grace Co.
Courtesy of Lauren Johnson
Lauren Johnson, a mother of three and ultimate boss babe, first experienced mom guilt as a college student with her first daughter.
“I was a young single mother at the time, pursuing a science degree with my newborn on campus with me. I would always have to send her to different people just to go to class or to get my work done. Not only did I not know what I was doing as a mother, but I also couldn’t give her my undivided attention. The guilt was overwhelming, but I knew I couldn’t quit and had to keep pushing for her.”
Years later, Lauren’s hard work has paid off. She runs Harbor Grace Co. with her spouse and has built their photography and production company while simultaneously growing their family. By working predominately from home over the past eight years, Lauren has found that working through the night allows her to complete tasks without distractions.
“I’ll sleep during the day when they are at school, and by the time they get home, I’m rested and ready to spend some quality time with them,” she explains.
Even though she tweaks her schedule to prioritize her children’s activities, she still feels guilty when she’s not able to focus solely on them.
“If I’m working on a big production, I’ll have tunnel vision until that project is complete. That means that I may be at home, but I’m not really present. My kids will come into my office for a few minutes to check on me, and that’s typically when the guilt starts. They’ll tell me about their day, give me hugs, and then I’ll hear, ‘Okay, well, I’ll let you finish working,’” she explains.
This guilt led her to overcompensate with material things for her children but also encouraged her to take a good look at her values.
“Mom guilt made me so much more ambitious. I am always striving for more to provide them with the best quality of life. But guilt is also like a mirror. It requires you to be more self-aware. It requires you to be vulnerable in ways you may have never been before.”
Lauren notes that balancing entrepreneurship and motherhood isn’t as difficult as it once was but acknowledges the challenge associated with having limited time for everyone.
“[The kids] were growing up so fast, and I was so busy that I didn’t really take the time that I needed to get to know this new version of them. Or I would feel as though my husband had a better relationship with them than I did, in which most cases, I would just be in my own head,” she says.
Now that her children are older, she has begun to incorporate them into her work by including them in her shoots or by allowing them to scout locations with her. When she isn’t working or spending time with her family, Lauren leans into fitness to challenge guilt. For her, working out several times a week not only relieves stress but it also provides an example for her children to prioritize self-care.
“It’s okay to need help, to take a break, and to prioritize yourself. You can’t pour from an empty cup. Fill yourself up first so that you can always give them the best version of you,” she says.
Destini Ann – Certified Parenting Coach
Courtesy of Destini Ann
As an author, podcast host, and certified parenting coach, Destini Ann consistently delivers authentic and relatable parenting content for the masses. By sharing her own experience raising two children via social media, Destini Ann encourages other caregivers to get curious about their parenting styles.
“I love that my career involves social media! Not only is connection one of my top three values, but the other two are freedom and communication. Social media allows me to connect with my community and communicate my beliefs and parenting advice while giving me an incredible amount of freedom. The flip side of that is that if I’m not careful, I can find myself giving my children less connection, communication, and freedom.”
Destini Ann admits that working in close proximity to her children is challenging since there is less structure, and her children expect more from her when she’s present. However, she’s found a technique that works for her family.
“The oldest does well with a checklist and alone time, but my 5-year-old is all over the place. I find that leading with an abundance of connection makes stepping away a lot easier. Ultimately, I prioritize [connection] the best I can when they’re home,” she says. “I feel guilty when I’m not as connected with them. When life gets busy or I’m tired, it can be tempting to zone out. But it’s actually my guilt that snaps me back into the present most of the time.”
Though Destini Ann is intentional with her approach to parenting now, she doesn’t shy away from sharing the guilt she experienced by being a “permissive parent with very little boundaries” in the past. She also highlights an early experience with guilt after considering how arguments with her ex-husband might have affected her daughter.
“I asked myself, ‘How did this impact her emotional health, her relationship with her father, and her understanding of my relationship with him?’ That guilt turned into fear and anxiety about the future and what that might mean for her romantic relationships,” she says.
But even in the midst of experiencing guilt, Destini Ann says she tries not to allow the feeling to turn into shame.
“My guilt slows me down and forces me to reexamine my values. It gives me an opportunity to get off autopilot and ask myself tough questions [like], ‘Is this really something I need to work on, or is this just an emotion that will pass? Do I need grace or growth here? If it’s grace, how can I affirm myself and ease my emotional state? If it’s growth, what is in my control that I can change or work on?’”
For her, guilt isn’t necessarily a feeling that can be avoided but rather a tool that is best used to check in with herself. She concludes by saying, “Sometimes I need to recognize that I’m putting unrealistic expectations on myself or comparing my journey to someone else’s. Other times, the guilt is the catalyst that takes me to the next positive step on my motherhood journey.”
Morgan Tyler – CEO of the Millenial Moms Club, Co-Host of Moms Actually Podcast
Courtesy of Morgan Tyler
Prior to becoming a mother, Morgan Tyler had a clear idea of how she wanted to parent. She understood the importance of taking care of herself in order to show up for her child, but guilt set in after the birth of her first child. Asking for help from family and friends became a difficult task, and she started to believe that becoming a mother took precedence over having a life of her own.
Now that she's a wife, mother of three, and a full-blown entrepreneur with a lot on her plate, Morgan has a better grasp of striking a healthy balance between her roles but still experiences guilt at times.
"I typically feel mom guilt when I have to work a lot or travel due to work. I feel like I'm not as present as I could or should be when I'm working on a big project. And when I return home, I'm exhausted and don't always have the energy to jump right into mommy-ing," she says.
Morgan cites her children as motivators for her work and prioritizes open communication with them about how her work will impact the time she spends with them.
"[I] explain to them what I have going on work-wise and pre-plan quality time with them so that no one feels slighted. I especially appreciate my husband because he gives me a safe space to share what I am feeling and helps me overcome those emotions, even if it's just to be a sounding board."
To combat feelings of guilt, Morgan recognizes that there are seasons in life that require more or less from her and believes in maximizing the seasons when she's less busy. She also challenges mom guilt by centering her faith, prioritizing self-care, and incorporating positive self-talk. She finds that waking up before her family in order to read her Bible and pray sets the tone for her day. Without it, she's more susceptible to feeling guilt and negative thoughts.
These days Morgan relies on extending grace to herself and wants other mothers to do the same. She says, "[Guilt] can bring on feelings of not being enough for our children or doing well enough at 'mommy-ing.' However, you were blessed with the assignment of that specific child, and you have everything they need. It can be so easy to compare ourselves to other moms, let our own internal narratives run wild, and let mom guilt take over, but I challenge you to identify the triggers and tackle them head-on."
Bridget Chapital– Founder of Hypothesis Haven Science Club
Courtesy of Bridget Chapital
Bridget Chapital is no stranger to the guilt that creeps in when you're chasing your dreamsand raising three incredible humans. She recalls the end of her first pregnancy as an initial trigger of mom guilt.
"[My daughter] was full-term but underweight and not growing, so I ended up having a failed induction, followed by a C-section so that we could get her nourishment on the outside. I remember feeling as though my busy work schedule and non-stop pace might have contributed to a negative outcome for my baby, and it didn't feel good."
Unfortunately, mom guilt persisted throughout her journey of early motherhood.
"When my kids were younger, I poured all of myself into them. I would feel bad if I dropped them off at daycare when I had a day off of work or if I didn't keep up with a million and one of their spirit days at their school," she says. The older her children became, the less guilt she experienced– until COVID-19 took the world by storm.
"Right before the pandemic, I quit my full-time job in the medical research industry to start a health leadership program that teaches the fundamentals of the medical research industry to kids. For the first time in a long time, I was able to balance my work and professional lives by dropping my kids off in the morning and having seven uninterrupted hours of work, and then picking them up at 3 p.m. and having a full evening to focus on them. Once the lockdowns started, I found myself simultaneously home-schooling three kids while putting in the many hours required to launch a business. It was so stressful," she says.
Thankfully, her children – now thirteen, ten, and eight– are not only more independent, but they are also understanding of her and her husband's work schedule.
"[My kids] are very self-sufficient with getting dressed and making snacks and meals if they get hungry, so that stress is lifted off of me. But even though they would love nothing more than to watch TV or play on their tablets all day, I do feel bad if I have to work on a project on the weekend and can't spend as much time with them."
She maximizes her time with each of her children by limiting work to Monday-Friday when she can, by taking them out for solo dates, and by checking in with them. She also credits her husband's flexible work schedule and his ability to keep them busy with extracurricular activities as another factor in decreasing her mom guilt.
But in order to challenge the negative feelings associated with mom guilt, Bridget is adamant about holding fast to her identity outside of motherhood and rediscovering aspects of herself she might have set aside when her children were younger.
"It's okay to enjoy your time away from the kids. Find a trusted person-whether it's your husband, a girlfriend, or an extended family member– and when your child is with them, allow yourself to let go of the pressure of being a mom and just be yourself for a while. Put this time on a calendar and keep it sacred," she says.
Jade Godbolt, Beauty & Motherhood Influencer, Co-Host of The Godbolt Life Podcast
Courtesy of Jade Godbolt
For Jade Godbolt, the pressure to show up and run her business was the source of her mom guilt. Prior to the birth of her first child, Jade was determined to hop back into work right away due to the belief that her business would fail if she didn't. She recalls feeling guilt when she was required to make a decision between work and her family.
"I operated from a perspective that almost forced me to always choose work because I felt like providing financially for my family was the most important thing. If you would've asked me that directly before, I would deny it. But my actions showed, whenever I would rush off to finish a project or shoot content instead of spending time with my babies, that my financial contribution meant more than my presence or attention," she says.
Jade has worked from home since becoming a mother, which is no easy feat. And though there are unique challenges to having young children at home with her while she's working, she makes no apologies about how it's perceived.
"I got used to prefacing anyone I was working with or on a call with that 'If you hear kids screaming in the background, please do not be alarmed.' I couldn't care less if anyone had an issue with it. My family will always come before work or other relationships."
In the past, feelings of guilt led her to overcompensate by buying material things or by going on trips in order to spend time together with her family. However, she notes that this season of her life calls for her to incorporate quality time with her family in her everyday life.
"I don't go out as much as I used to, and that's taken some time to get used to. The pandemic helped because I didn't feel like I was the only one at home, but now that things have begun opening up again, sometimes it is hard because it's not just an easy "yes" or "no" for me to get out of the house with three kids under three. It's a whole conversation and planning session with my husband before I can even think about going anywhere," she explains.
But instead of feeling frustrated over it, she recognizes that this season of her life is temporary and chooses to focus on the positive aspects of raising a family instead.
"The Bible says that children are a gift, and I remind myself of that, especially in the moments when they don't feel like gifts. Motherhood can have its really tough moments, but I lean on my relationship with Christ to get me through when things are smooth and rocky."
And in those moments when mom guilt appears, Jade is quick to challenge the emotion and encourages others to do so as well.
She concludes by adding, "The feeling of guilt can creep in, but it's important to address it while it's a seed so that it doesn't take root in our hearts. Freedom is available to us, we just have to give ourselves and others some grace and forgiveness to get there."
Experiencing guilt as a caregiver may not always be avoidable, but its appearance doesn’t automatically mean you’re making the wrong choices. Instead, its presence can signal just how much you care about the role you play in your children’s life. So instead of feeling bogged down by shame and guilt on your mothering journey, always remember that there is no such thing as a perfect mother.
You can redefine what it means to be a “good mom” and examine the expectations you’ve placed on yourself. More than that, I hope you always remember that you are deserving of self-compassion along the way.
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Featured image courtesy of Morgan Tyler
- 12 Affirmations For New Moms ›
- How These Working Moms Find Balance Amid The Demands Of Work & Family Life ›
- I Gave Up My Career To Be A Stay-At-Home Mom, Now I’m Consumed With Guilt ›
The Fall Staples It Girls From Coast To Coast Are Already Wearing
When it comes to trends, It girls lead, they don’t follow. Keeping one finger on the pulse of fashion and the other on their instincts, it’s their innate ability to dress to the beat of their own heart that makes them stand out amongst everyone else around them.
These women are ahead of their time, forecasting what will eventually be adopted by the masses often years in advance. In most cases, buying into trending items is just a by-product of their love of fashion, however, it's never the key ingredient of a memorable outfit.
As we transition from summer to fall, there’s no need to spend too many coins curating a brand new seasonal wardrobe, especially in this economy. Instead of shopping targeted ads, we interviewed fashion-forward influencers to spark our imagination and gather insight on what they’re already wearing leading into the upcoming season. Keep scrolling to get the scoop on essential items these fashion-forward women are looking forward to wearing this fall.
Helecia Williams, Houston
Comfort
Helecia’s style in three words: “Structured, bold, and explorative.”
Helecia’s outfit inspiration: “I am most interested in comfort as a trend. I am truly enjoying the mix of flats with elevated outfits and the incorporation of street-style elements into the looks. I have seen so much juxtaposition that makes the outfits interesting and intriguing. I love the pairing of fitted caps with [suits] and ballet flats. That mashup is impeccable, and we saw some of that peeking through last fall, and now it's taken on a life of its own.
"As a sneaker lover and comfort sneakers, bringing back flats is just a reimagination of past trends with a fresh twist.”
What color(s) is on Helecia’s fall mood board: “Hands down, red! It's such a bold and bossy color. Now, we see it becoming much more accessible in fashion and realize how easy it is to style and incorporate into a look for that extra pop. It also pairs well with so many other shades and tones. Some of my favorite combos are red and burgundy, red and yellow, and red and brown. Even if you aren't fully convinced that it's the color of the season and still have reservations about it, you can go classic and incorporate it in an accessory or makeup like a red lip.”
Are you bringing anything back from your 2023 fall wardrobe? “I will be returning and recycling all of my 2023 fall wardrobe and just styling it differently or giving it new life. Despite my love for trends, I've curated a wardrobe that I love so I will mix the old in with the new. And not to toot my own horn but a lot of my fashion moments are ahead of the times and still very relevant for this upcoming fall. Expect to see tons of texture, juxtaposition, unexpected color combos, and street style.”
How Helecia is accessorizing this season: “I hate to admit it, but the one trend that has me in a chokehold this fall is bold jewelry, particularly in gold. I've realized that accessories can do wonders, and the Schiaparelli era has me shook. I am a ‘Stan’ of Shop Khoi, a Black-owned jewelry brand that creates some of the most amazing, high-quality fashion jewelry. It just sets off any outfit no matter how simple it may be and easily becomes a conversation piece.”
Courtney Blackwell, New York City
Courtney’s style in three words: “Vintage, oversize, and sexy.”
Courtney’s most anticipated fall fashion items: “The fashion item I am anticipating wearing is vintage leather in all colors!”
Courtney's color picks for fall: “Cherry reds, forest greens, and different shades of gray.”
The trend that has Courtney in a chokehold this season: “Skirts! I’ve never been a skirt girly, well mini skirts girly, but I think I’m going to step it up with the minis this fall.”
Shaniqua Jordan, New York City
Timeless
Shaniqua’s personal styling tip for fall: “I hate to admit it, but the one trend that has me in a chokehold this fall is any oversized outerwear piece, especially oversized blazers. And as basic as it may sound, I can't get enough of them. They instantly elevate any look, and they're so versatile, whether I'm going for a polished vibe or something more casual. Plus, they are perfect for layering as the weather cools down.
"I know most people wouldn't typically opt for suede, but if you've been following my style, you know I'm all about my outerwear. I love adding texture to my looks, even if it's subtle, and a good suede jacket does that for me. The soft texture and rich hues of suede add that cherry on top for any fall look. Whether I'm rocking a bomber style in a jewel tone or a tailored trench in a neutral shade, a suede jacket is one piece I'm looking forward to wearing to elevate my fall wardrobe.”
These colors are all over Shaniqua’s fall mood board: “The colors on my fall mood board are rich earth tones like deep browns and olive greens paired with classic neutrals like camel and cream. I'd like to throw in a pop of butter yellow. I know it might seem more spring-like, but I love how it pairs with deep browns, oxblood, and even grays. It's the perfect way to brighten up those cozy, moody fall vibes. I'm also loving pops of bold jewel tones like emerald and burgundy to add a bit of luxe to the season. These shades give that cozy yet elevated feel I'm always aiming for in my fall wardrobe.”
Shaniqua describes her fall wardrobe in three words: “If I describe my fall wardrobe in three words, they would be chic, layered, and timeless. I love combining unique pieces with a classic touch, creating looks that stand out without trying too hard. It's all about finding that perfect balance between staying true to timeless fashion and adding my own signature flair.”
Are you bringing anything back from your 2023 fall wardrobe? "I am definitely an outfit repeater, so not only will I bring back pieces from my 2023 fall wardrobe, but I also have so many oldies but goodies that I’ll be incorporating into my fall 2024 looks. I think that's what really helps convey my personal style; buying pieces I genuinely love and being able to work them into my style season after season. It's all about longevity and staying true to what I love."
Alasia Allen, Los Angeles
Provocative
Alasia describes her style in three words: “Opulent, sleek, provocative.”
The fashion item Alasia anticipates wearing the most this fall: “I’m really into gloves this season. Whether it’s biker style or long, sleek, leather gloves, they add an interesting take to a fall look.”
The fall colors catching Alasia’s eye: “I’m loving navy or a super deep purple this season so I’ll be adding those into my wardrobe. They’re both so sophisticated and a good alternative to black.”
The fall staple Alaisa plans to bring back from her 2023 wardrobe: “Every year, I wear a shearling coat. It’s timeless, it’s warm, it’s my thing. There’s something very elevating about shearlings that have drawn to me year after year, and that’s what makes them my favorite style of outwear.”
The accessory that has Alasia in a chokehold this season: “Boots. I love a good boot as my go-to accessory for the fall/winter season. My favorites are boots that have a little flair to them and an interesting shape.”
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'It's Not All In Your Head': How Four Black Women Finally Got The Answers They Needed About Fibroids
If someone had told me I’d be working toward my third fibroid surgery in less than six years, I would have had a hard time believing them. First, because obviously, no one wants to ever hear the word "surgery" (unless it’s cosmetic surgery you’re opting for). But the more significant reason is I’d never heard any of the women in my life talk about fibroids, so the idea of having all of the complex issues because of them, on top of surgeries, was truly a foreign concept.
After my doctor told me I’d need a second surgery in March of 2023—a hysteroscopic myomectomy—after bleeding every day for over six months, I was over it. Not just over the symptoms. But I was done feeling siloed on an island dealing with the pain, feeling tired all the time, and the heaviness of what felt like endless trips to the doctor for ultrasounds, blood transfusions, blood count checks, MRIs, etc.
I would try to explain what I was feeling, and my pain was written off because I guess period pain is just supposed to be normal. I’m here to tell you it is not. And because we’ve been conditioned to just deal, that’s the way things should stay. Yeah, no.
What is a hysteroscopic myomectomy? Hysteroscopic myomectomy is the most minimally invasive procedure to treat fibroids. A surgeon removes fibroids by inserting a hysteroscope into the uterine cavity through the vagina and cervix.
So, I wrote and directed an animated short film to bring educational and entertainment value to helping the world learn about fibroids. With $25,000 of my own money, I went forth and made the film titled Super High: A Period Piece. Now, it’s making its rounds on the festival circuit, even gaining entry into two Oscar-qualifying festivals: the Chicago International Film Festival and the New Orleans Film Festival. We even won Best Narrative Short at the Morehouse Human Rights Film Festival in Atlanta.
As I was venturing onto the festival circuit, my editor asked me to write a piece highlighting the experiences of Black women with fibroids. Initially, I planned to highlight up to 15 stories. However, as I started working on this story, I thought hearing the experiences more in-depth would be equally impactful. So, we chatted with four women about their fibroid journeys.
The one thing we all had in common, which made me sad but also made me feel seen, was that none of us knew much about them beforehand. However, our willingness to openly share our stories will hopefully change that for many women now and beyond.
Keep reading for four women’s stories about their journey with fibroids.
Rosco Spears, artist and creative director
Before your journey with fibroids, did you know much about them?
Before my journey with fibroids, I didn't know much about them. I'd never heard of fibroids until women around me started getting diagnosed. I was dealing with heavy, painful periods long before I was privy to any of these diagnoses.
Shortly before I was officially diagnosed with having fibroids (2012), I learned that my sister and other women in my family also had fibroids. As I've grown older, I've learned that my three sisters, many cousins, aunts, etc, have also had fibroids. It's simply an issue that was never discussed.
How did you find out you had fibroids?
I found out that I had fibroids while living in NYC. I was fed up with the pain and discomfort from my period, so I shopped around until I got an answer that I thought made sense. I met a wonderful woman doctor who finally diagnosed me, and she offered me several options for easing the discomfort. During this time, I would often bleed between periods.
In 2013, one of my "in-between" moments was more than the spotting that I was used to, so I took myself to the emergency [room]. I learned that my hemoglobin [levels] were at seven, and the doctors wouldn't let me leave the hospital without getting a blood transfusion. They also highly recommended that I get surgery to remove the fibroids. Once I officially got the diagnosis, it was scary, but it also felt amazing to know that I could begin planning a path forward.
What are hemoglobin levels? To ensure adequate tissue oxygenation—a very important complex dance between the lungs, blood, and cardiovascular system—a sufficient hemoglobin level has to be maintained. The normal Hb level for women is 12 to 16 g/dl. Low hemoglobin levels mean your body isn’t getting enough oxygen, which is why you feel very tired and weak.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I've had two abdominal myomectomies, one in 2013 (16 fibroids were removed) and another in 2020 (51 fibroids were removed). I was nervous about the idea of being cut open during the myomectomy, but I didn't think that the outcome could be any worse than the pain that I was already dealing with. Both surgeries went just as planned (aside from the 2nd surgery being rescheduled due to COVID-19), and my recovery from both was amazing.
In 2013, I was a bit unhinged. I went location scouting for a photo shoot for The Lip Bar three days after I got home from the hospital. My family was very upset, but I honestly felt fine. I had some abdominal pain, but within two weeks, I was back in the studio on my feet all day. After my second surgery, the plan was to try and have a child shortly after recovery. I took my time with healing and did things according to the book.
What is a myomectomy? A myomectomy is surgery to remove uterine fibroids. There are several types of myomectomies, but the procedure you and your doctor decide is right for you will depend on factors like location, number, and size of your fibroids.
How did you feel post-treatment? How has getting treatment changed your quality of life?
I felt/feel amazing post-treatment! For about 2-3 years after both surgeries, my periods were much lighter, and the pain was light [and] much more bearable than it was with the fibroids. My quality of life is much different post-surgery.
There have been years [when] I simply did not have any energy while I was on my period. The most I could do was get up to go to the bathroom and get right back in bed. Or I'd have to carry a change of clothes with me when traveling to work because I couldn't afford to take off during my period, but I knew that at some point, I would bleed through everything. So, in that regard, life is beautiful. I'm no longer passing out, nor do I feel the need to bring an extra set of pants along on the ride.
While my quality of life has improved tremendously, I often joke and say that I have PTSD from having bad periods. What I mean is that I still check my pants often when I'm on my period. And I still get anxiety if I'm in public and I'm on day two or three of my period because who knows if it is just a little blood that I feel coming down or it's a huge clot that's going to ruin my pants. And I still know better than to try and wash my hair on my heavy days because there isn't enough energy to do both.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
You got this, sis! It's a difficult journey, but please seek advice from other women on the journey. If one doctor is not giving you sufficient information, find a new doctor. Make sure you're exploring all of the options for fibroid removal/shrinking treatments [because] it is not one size fits all. And take your iron supplements, boo.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
Oh God, if I could pay women to share their fibroid stories, I would. It's imperative that we talk with one another about our experiences in health. I shared my fibroid story years ago because I was so lost when I was on my journey. One of my sisters had the surgery before I did, but other than her, I didn't have anyone to talk to about fibroids.
I felt very alone, isolated, and somewhat embarrassed because it felt like this wasn't happening to anyone else around me. It makes a world of difference when you can talk with someone about an issue they are also facing. We will learn a lot more by discussing shared experiences—much of which you cannot learn from talking to your doctor or Google.
La-Anna Douglas, women’s advocate and motivational speaker
Before your journey with fibroids, did you know much about them?
Being someone who started my period at the age of 10, I was in the dark when it pertained to fibroids and other reproductive health issues. I had never heard of fibroids, and I didn’t know that the pain I was experiencing, along with fertility delays, was because of the fibroids sitting in between my two uteruses. The pelvic pain, excruciating periods, fatigue, and protruding belly to someone else would have been a dead giveaway. But I had no idea what was going on with my body. I also did not know of anyone in my family dealing with fibroids.
How did you find out you had fibroids?
I was diagnosed with fibroids by a reproductive endocrinologist [and] was finally properly diagnosed after suffering for 16 years. I finally found a doctor willing to listen to my concerns and, most of all, believed that I wasn’t making it up. She scheduled me for a thorough examination, and I was soon scheduled for laparoscopic surgery. I was diagnosed with three fibroids, endometriosis, and a uterus didelphys (two uteruses and two cervixes).
Uterus didelphys is a rare congenital condition where you're born with two uteruses. It's commonly called a double uterus.
Again, I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. I would have cramps for 3-4 days on my left side of my belly and then cramps for 3-4 days on my right. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus. When I heard all of the different diagnoses, I was angry, overwhelmed, scared, and confused. But the worst thing is that I was unprepared mentally and emotionally for the diagnosis and the journey ahead.
"I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus."
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I was told not to worry about removing the fibroids surgically after being diagnosed in my 20s back in 2008. But in 2020, during the pandemic, my pain started to escalate again. So, I was scheduled for an ultrasound, an MRI, and then a double-balloon procedure. I was told that my fibroids had grown and they were contributing to the secondary infertility I was experiencing. My doctor gave me two options. Would I rather have a hysterectomy?
I had already gone through 30 years of horrible periods, eight years of infertility [and] finally having a miracle baby in 2013 by God’s grace, and I had already gone through multiple procedures. Or I could do the robotic laparoscopic myomectomy, where they would remove the fibroids and open my two cervixes by also doing a hysteroscopy. At first, [I] wanted to do a hysterectomy, but [after] talking to my family and praying about it, I decided on having the robotic laparoscopic myomectomy. I was a little nervous but knew I was in good hands.
What is a laparoscopic myomectomy? A laparoscopic myomectomy is a minimally invasive procedure to remove uterine fibroids. A surgeon makes four tiny incisions in your abdomen and then uses a laparoscope, which is a special instrument that contains a light and video camera, to operate through the incisions.
How did you feel post-treatment? How has getting treatment changed your quality of life?
Post-treatment, I felt relieved and grateful. The healing journey was okay. I had a lot of support from my family, especially my husband. After the healing, [I am] loving on my body because the many scars on my belly are my beauty marks. I started to get more confident in who I was. The doctor who did the robotic laparoscopic myomectomy believed that I would get pregnant again.
Well, six months after the surgery, I became pregnant with our second miracle baby girl after eight years of secondary infertility at the age of 40. And to think, [had] I decided on the hysterectomy, she would not be here. Our surprise baby has brought so much happiness to our family.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
For anyone just beginning their fibroid journey, my advice would be to advocate for yourself no matter what the diagnosis may be. Your voice matters, and you control your narrative. If the doctor is not listening to you or your concerns, you have every right to seek a second, third, fourth, or as many opinions as you wish until you are heard and properly cared for. KNOW YOUR WORTH!
[And,] to always love on yourself through the journey with fibroids and anything else you may be going through. YOU ARE ENOUGH. The physical scars and the invisible scars are your beauty marks. And share with others how you are feeling and what you are going through. Please do not suffer in silence!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
It is so important that we share our journey with fibroids because there is power in supportive stories. We all must realize that we are not alone. There are so many of us who have similar situations going on or may be feeling the same feelings you may be feeling.
Sharing your story also helps to heal those hurts that happen on the road to diagnosis. Healing taps into the strength that has been lying dormant inside of us, and when that strength is ignited, there is nothing that can stop you from advocating for yourself and others who begin to share their stories with you.
Dawn Heels, award-winning fibroid advocate and campaigner
Before your journey with fibroids, did you know much about them?
I knew absolutely nothing about fibroids apart from the fact that my mum had one (she found out when she was pregnant with me), but even with this information, she didn't know anything about them.
How did you find out you had fibroids?
I had always suffered [from] extremely heavy, painful periods. I thought [this] was normal, [so] I didn't link it to the fact that something could be wrong with me. I first discovered I had fibroids after experiencing constant pain in the left-hand side of my abdomen in 2016. During an ultrasound scan, I was told I had 2 x 4 cm fibroids by the sonographer.
Two types of ultrasound scan can be used to help diagnose fibroids: an abdominal ultrasound scan – where the ultrasound probe is moved over the outside of your tummy (abdomen) a transvaginal ultrasound scan – where a small ultrasound probe is inserted into your vagina.
I hadn’t a clue what they were, and when I went back to see my doctor, he told me that I had nothing to worry about because fibroids were common, normal, and I should deal with any pain with a hot water bottle and ibuprofen. And because he told me I had nothing to worry about, at that moment, I didn’t worry.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
Over the next six years, my pain and suffering got worse. I displayed horrendous fibroid symptoms: bum cheek pain, leg pain, painful, heavy, clotty periods, lower back pain, extreme pain, abdominal/pelvic pain, early pregnancy symptoms, tiredness, ‘preggo belly,’ painful sex, long periods and was infertile. I finally saw a consultant who changed my life, as he was the first person to listen to me and put a plan in place.
"He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy."
He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy. I cried so many tears because I thought if I was to ever have an operation that resembled the C-section, I would be giving birth to a baby, not tumors! The operation was a success, and he removed 16 fibroids and left 2 in to give me a chance at conceiving. I lost a lot of blood and had an emergency blood transfusion one week later.
After eight weeks of healing, I started to feel much better.
How did you feel post-treatment? How has getting treatment changed your quality of life?
The open myomectomy gave me my life back—a good quality of life. I wasn’t in pain anymore. My periods were shorter and significantly lighter, and best of all, I fell pregnant six months after surgery!
What is an open myomectomy? An abdominal, or open, myomectomy removes fibroids through an incision in the abdomen, typically on the bikini line. The recovery time generally lasts up to six weeks.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
Educate yourself on the condition so you can guide the conversation and ask relevant questions when going into your consultations. Advocate for yourself, too! Too many of us will just agree to all sorts of nonsense just because the medical professional says so! You are the expert over your own body, so speak up!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I became an ‘accidental’ advocate because I shared my story. My inbox was inundated with messages from other ladies who had suffered or were currently suffering. That’s how powerful a share is.
Camille Austin, model and content creator
Before your journey with fibroids, did you know much about them? For example, did you know what symptoms to look out for?
I did not know much, if not anything at all. So, I did not know what symptoms to look out for.
Did you know if anyone in your family had ever dealt with them?
Yes, my mother, but she was already going through menopause, so our symptoms did not seem comparable.
How did you find out you had fibroids?
[I went] to my primary care physician, who is also a WOC. She performed a pelvic exam, and when I told her about all of my symptoms, she thought it was fibroids. It took a while and [was] frankly [an] annoying process to finally get to an MRI where they found three fibroids, one the size of 15cm.
And how did you feel once you got the official diagnosis?
I felt relieved and scared—scared about what this meant about my fertility. [But,] relieved that I had answers and I was going to get better.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I had to have surgery due to the size [of my fibroid.] I had an open and laparoscopic procedure done and was on the table for eight hours. I did not initially trust my surgeon as she wanted to jump straight into a hysterectomy. Common practice says that the only way to stop them from ever coming back is through a hysterectomy, which I find to be a bit extreme. To me, it sounds like it's just under-researched, and not enough efforts are being made because this largely impacts WOC, but I digress.
"My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened."
My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened. I found out I'm allergic to Dilaudid (a common pain med). I broke out and had a third-degree chemical burn around my stomach from the adhesive, and my skin completely broke out. There was not a doctor available to give me even so much as a Benadryl to ease the discomfort. Nurses can't prescribe meds.
It wasn't until I threatened to leave the hospital—I got up and packed my bags—that I received a pink Benadryl pill after waiting for about 6 hours. About a week after I got home, I broke into a fever and was septic. I was rushed back to the hospital and had to spend an additional four days. In short, the healing process did not go according to plan.
After your difficult hospital experience and healing journey, how did you feel post-treatment? How has getting treatment changed your quality of life?
After treatment, I felt so much better after everything was said and done. I would still get the surgery if I had to do it again. When I eventually healed, my periods were shorter. I could fit my clothes again, and I just had more energy to do things since I was not as anemic.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
[First,] push for that MRI sooner than later. If you catch them when they are small, you can look into non-invasive ways to get rid of them.
Make sure your doctor has a hospital list, and ask who will be in charge of taking care of you when your doctor is not around.
What does an MRI mean for fibroids? An MRI uses a magnetic field and radio waves to create computerized, 3D images of the uterus. These images can help your doctor decide which treatment is best for you and rule out other issues like adenomyosis and endometriosis.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I think it's important because we can all learn from each other, and this is not just becoming a "woman over 30" problem. According to my doctors, I was far too young, and due to my age, this was something that went unnoticed. Frankly, it should not have been a far stretch because I have fibroids in my breast tissue as well, but somehow, no correlation has been made.
So we have to press the issue, so hopefully, we can look into why this is happening to so many women and not allow a hysterectomy to be the first response.
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