There's something about deal-breakers that I think a lot of people miss. A deal-breaker is not exactly a standard that you have. Take dating. If you don't want to be with a man who is broke or you'd prefer not to date someone who's been married before, technically, that's not a deal-breaker. For you, that's a standard or personal principle.
By definition, a deal-breaker is more like something that is up for negotiation, but if both parties can't come to an agreement, the "deal" is off of the table. And boy, when it comes to deal-breakers as it specifically relates to sex in relationships, in order for everyone involved to be happy and fulfilled (oh, and safe; don't forget about safe), there definitely needs to be some pre-sex negotiating that goes on.
To me, there are about 10 things that should be discussed between two people who plan on "engaging" one another in the bedroom. For some of y'all, these are standards and I totally get that. But for everyone, there should at least be a conversation—or two or 12—about all of these issues, preferably beforehand. Otherwise, there's a huge chance that not only will coitus not go as planned, but the relationship itself could find itself in some serious jeopardy too.
1. Bad Hygiene
You'd think it would be a given that most people are turned off by bad hygiene. Oh, but not so fast. Studies reveal that many of us ladies are completely into a sweaty man and, let's not act like all sweat smells great. Personally, some of the best sex I ever had came from a guy who dripped sweat the entire time. The problem was, I actually can barely stand my own, so it was getting to a point where I had to ask myself if I wanted to keep sleeping with him. Either we needed to move to Antarctica or I was gonna have to bow out gracefully (we ended up breaking up before it got to that point).
Along these same lines, there are people I know who don't mind having sex after a long day at work (sans a bath, I mean). Then there are others who think it's a given that their partner should wash up first. See what I mean? Some things are not necessarily right or wrong; some things are about personal preference, so there needs to be some upfront negotiating first.
As far as pubic hair grooming goes, I've had partners who definitely prefer a lot of hair and others that feel like having sex with a woman who has little-to-none of it is like having sex with a child (someone literally said that to me); it creeps them out, so a bush is a must. But then, I have a friend who's been married for years whose husband has been begging her to stop "Nair-ing" her vulva; she ain't having it. Sometimes, she grows it out, just to make him smile. Again, there goes an example of sexual negotiating.
Taking all of what I just said into account, when it comes to your partner's hygiene and landscape, what would be your deal-breakers? Do you have any at all? Does he?
2. Condoms. Or Not.
Did you know that reportedly, only one-third of us use condoms? Wow. Even with all of the information out in these streets about STDs being on the rise, folks still ain't wrappin' it up. Although I'm abstinent now, you can read some about my sexually active journey to see that I clearly wasn't the posterchild for safe sex (not even close—SMDH); therefore, I get that using rubbers isn't anything any of us really want to do. But condoms do save lives (and prevent unwanted pregnancies), so whether or not you and your partner are going to use them is a must-have conversation.
If you do decide to partake (which you absolutely should unless you're in a long-term commitment and you both get tested on a regular basis), you need to make sure that he puts it on, every time, unless you consent to otherwise. I needed to say that because, unfortunately, stealthing (the practice of men taking off condoms without their partner's consent) happens more than a lil' bit. This is why condom etiquette is something that should never be assumed.
Oh, and just for the sake of subconscious reinforcement—if a man does happen to stealth you, he doesn't care about you nearly as he should. So yes, there should be no question that what he did qualifies as an automatic deal-breaker.
3. Fetish Expectations
Even as much as I write about sex, even though I used to work alongside a ministry that got people out of porn, I still have moments when I'll read about something and my immediate response is, "I cannot." Literally. Take sexual fetishes, for example. As I was reading a Thought Catalog article on some of the different kinds that are out there— hybristophilia (the reenactment of rape, murder, etc.), hematolagnia (drinking blood during sex), and cuckoldry (enjoying watching yourself getting cheated on by your partner)—while the topic of fetishes really does garner a "to each their own" response, before someone decides to walk into a room with a diaper on or urinate on you, make sure you let them know whether you're down for exploring fetishes. And, if so, which ones.
4. Technology
Back when I was in college (the early to mid-90s), there were some women I knew who, unbeknownst to them, were taped having sex by some guys on the yard. Those "men" would capture footage of those ladies doing all sorts of stuff and then blackmail them throughout the rest of the school year. That is called revenge porn and most states have laws concerning it.
With articles out here like "Should You Make A Sex Tape? How Amateur Adult Films Can Build Intimacy And Lead To Better Sex", it's clear that some people like to film themselves doing-the-do. But with other articles out in cyberspace like "Filming Yourself Having Sex Can Feel Great – but Only If You're Both in Control", make sure that your partner treats you at all times like one of my favorite Usher songs "Superstar"; that just like a concert, if you prefer that all technology be put away, he adheres to your request. No, not request…requirement.
5. An Undesirable Location
I once read a study that said 1 in 3 teen boys are pressured to have sex while 23 percent of girls are. Pressure, by definition, is a type of force or demand. Yeah, it's an op-ed for another time about how many of our men are not as sexually healthy as they should be and it's all because they were introduced to sex via some sort of "pressure". For now, what I'll say is adults can "peer pressure" each other about as much as adolescents tend to do.
That said, I'm all for spontaneity and thinking outside of the box. When I checked out an article on 200 different places to have sex, I must admit that I filed some away in my mental sexual bucket list. But as I thought about some places (in the car, on the side of a building, public bathrooms) and some of the women in my life who've shared with me times when making out turned to their clothes being taken off in places where they didn't want that to happen, even though they wanted the sex itself—that is why I thought it was important to mention this point as well.
He can think that you're frigid, prudish or any other adjective, but you have every right to have sex, not only when but where you want to. Full stop. No apologies.
6. No STD Test/Results
Every once in a while, I'll get asked what my ultimate "sexual low" was. For me, it was having unprotected sex, with three different guys (on three separate days, not all at once), in one week. Back when I was sexually active, my pattern was always to have sex with friends, so it was pretty much a week of "recycle sex". It doesn't matter, though. Because they were my friends, I knew them well enough to know that I wasn't the only person they were "repurposing" with. For this reason alone, I should've required an STD test from them and they should've required one of me.
I've had chlamydia before. Thankfully, that is curable. But hepatitis B, herpes simplex virus (HSV or herpes), HIV and the human papillomavirus (HPV), at least for now, are not. Plus, there are STDs like super gonorrhea that do not currently react to antibiotics (yikes).
I don't care how fine he is, how well you know him, or what he tells you, it's always smart to expect an STD test and to view the results for yourself before sex (especially with a new partner). And since there are now tests that can be taken from the convenience and privacy of your own home (click here for a woman's test, here for a man's), there's really no excuse. Now is there?
7. Inebriation
OK, this is another one of those points that is relevant unless you are in a long-term relationship. I'm pretty sure that all of us who've had sex, have done it while we were drunk, at least, once over the course of our lifetime. The reason why this made the list is because, if the person you're thinking about "engaging" is a new potential partner and you get inebriated, it can get a little murky when it comes to whether or not what you did (or all of what you did) was consensual.
There's no question that, for many, alcohol can intensify sexual arousal and remove anxiety and jitters. But don't wait until after you're tipsy AF to try and decide if you should get it on or not. Again, this is a discussion that should absolutely be had beforehand. If the guy respects you and is looking out for your best interest (and his, come to think about it), he will totally agree.
8. Selfishness
I'll tell you what always has been and forever will be a deal-breaker for me. Don't be over here thinking that you'll get the benefits of my full lips and overbite when "going downtown" (shout out to SWV) ain't even on your radar. Nope. Nada. No sir.
Listen, I'm pretty sure that it comes as absolutely no surprise that in a fairly large (and popular) survey, a whopping 85 percent of men vs. a mere 64 percent of women claimed to have an orgasm during the last sexual encounter that they had. Hmph. The only thing that I can figure is the cause of that is selfishness; men who don't make their partner's pleasure as much of a priority as their own (good lovers do, by the way).
The act of sex between two people can't happen without the participation of both (not if it's consensual, anyway). If your partner doesn't believe that it shouldn't go down unless both of you are also fully satisfied, then there's no question that his selfishness should also be a surefire deal-breaker.
9. Sharing Your Partner
As far as multiple sex partners go, two reads that provide some interesting info is "Promiscuous America: Smart, Secular, and Somewhat Less Happy" and "7 Things People with Multiple Partners Want You to Know About What It's Really Like". Something that particularly stood out to me in the second article was polyamory requires a lot of communication, isn't always easy, and some people "fall into the lifestyle" without even really noticing (getting drunk and having a threesome was the example given).
Yeah, about that last one. Whether it's in the form of a full-on relationship or you simply being cool with you and/or your partner having sex with others, that's one thing. But if you're someone who is under the assumption that you and your partner are exclusive, 1) don't assume that; ask, and 2) if he's not interested in that arrangement and/or he initially agrees, only for you to eventually discover that he lied, hopefully it's a given that this is definitely a deal-breaker as well.
10. The Act Itself
This one is short 'n sweet. From positions to the amount of time to what happens afterwards—sex has hundreds of different combinations. What you consider to be a good time may or may not be what he does. If he mentions or tries anything that makes you uncomfortable, stop. If he pushes you or pressures you beyond your boundary, he is violating you. Yes sis, out of all of these, that is the biggest sexual deal-breaker that there is. Period.
Want more stories like this? Sign up for our newsletter here and check out the related reads below:
What GROWN Women Consider Great Sex To Be
Sexual Compatibility Is As Important As Spiritual Compatibility
Make-Up Sex Might Be Doing Your Relationship More Harm Than Good
If You Have To Wonder If It Was Rape, It Was
Feature image by Giphy
Different puzzle pieces are creating bigger pictures these days. 2024 will mark a milestone on a few different levels, including the release of my third book next October (yay!).
I am also a Professional Certified Coach. My main mission for attaining that particular goal is to use my formal credentials to help people navigate through the sometimes tumultuous waters, both on and offline, when it comes to information about marriage, sex and relationships that is oftentimes misinformation (because "coach" is a word that gets thrown around a lot, oftentimes quite poorly).
I am also still super devoted to helping to bring life into this world as a doula, marriage life coaching will always be my first love (next to writing, of course), a platform that advocates for good Black men is currently in the works and my keystrokes continue to be devoted to HEALTHY over HAPPY in the areas of holistic intimacy, spiritual evolution, purpose manifestation and self-love...because maturity teaches that it's impossible to be happy all of the time when it comes to reaching goals yet healthy is a choice that can be made on a daily basis (amen?).
If you have any PERSONAL QUESTIONS (please do not contact me with any story pitches; that is an *editorial* need), feel free to reach out at missnosipho@gmail.com. A sistah will certainly do what she can. ;)
The Fall Staples It Girls From Coast To Coast Are Already Wearing
When it comes to trends, It girls lead, they don’t follow. Keeping one finger on the pulse of fashion and the other on their instincts, it’s their innate ability to dress to the beat of their own heart that makes them stand out amongst everyone else around them.
These women are ahead of their time, forecasting what will eventually be adopted by the masses often years in advance. In most cases, buying into trending items is just a by-product of their love of fashion, however, it's never the key ingredient of a memorable outfit.
As we transition from summer to fall, there’s no need to spend too many coins curating a brand new seasonal wardrobe, especially in this economy. Instead of shopping targeted ads, we interviewed fashion-forward influencers to spark our imagination and gather insight on what they’re already wearing leading into the upcoming season. Keep scrolling to get the scoop on essential items these fashion-forward women are looking forward to wearing this fall.
Helecia Williams, Houston
Comfort
Helecia’s style in three words: “Structured, bold, and explorative.”
Helecia’s outfit inspiration: “I am most interested in comfort as a trend. I am truly enjoying the mix of flats with elevated outfits and the incorporation of street-style elements into the looks. I have seen so much juxtaposition that makes the outfits interesting and intriguing. I love the pairing of fitted caps with [suits] and ballet flats. That mashup is impeccable, and we saw some of that peeking through last fall, and now it's taken on a life of its own.
"As a sneaker lover and comfort sneakers, bringing back flats is just a reimagination of past trends with a fresh twist.”
What color(s) is on Helecia’s fall mood board: “Hands down, red! It's such a bold and bossy color. Now, we see it becoming much more accessible in fashion and realize how easy it is to style and incorporate into a look for that extra pop. It also pairs well with so many other shades and tones. Some of my favorite combos are red and burgundy, red and yellow, and red and brown. Even if you aren't fully convinced that it's the color of the season and still have reservations about it, you can go classic and incorporate it in an accessory or makeup like a red lip.”
Are you bringing anything back from your 2023 fall wardrobe? “I will be returning and recycling all of my 2023 fall wardrobe and just styling it differently or giving it new life. Despite my love for trends, I've curated a wardrobe that I love so I will mix the old in with the new. And not to toot my own horn but a lot of my fashion moments are ahead of the times and still very relevant for this upcoming fall. Expect to see tons of texture, juxtaposition, unexpected color combos, and street style.”
How Helecia is accessorizing this season: “I hate to admit it, but the one trend that has me in a chokehold this fall is bold jewelry, particularly in gold. I've realized that accessories can do wonders, and the Schiaparelli era has me shook. I am a ‘Stan’ of Shop Khoi, a Black-owned jewelry brand that creates some of the most amazing, high-quality fashion jewelry. It just sets off any outfit no matter how simple it may be and easily becomes a conversation piece.”
Courtney Blackwell, New York City
Courtney’s style in three words: “Vintage, oversize, and sexy.”
Courtney’s most anticipated fall fashion items: “The fashion item I am anticipating wearing is vintage leather in all colors!”
Courtney's color picks for fall: “Cherry reds, forest greens, and different shades of gray.”
The trend that has Courtney in a chokehold this season: “Skirts! I’ve never been a skirt girly, well mini skirts girly, but I think I’m going to step it up with the minis this fall.”
Shaniqua Jordan, New York City
Timeless
Shaniqua’s personal styling tip for fall: “I hate to admit it, but the one trend that has me in a chokehold this fall is any oversized outerwear piece, especially oversized blazers. And as basic as it may sound, I can't get enough of them. They instantly elevate any look, and they're so versatile, whether I'm going for a polished vibe or something more casual. Plus, they are perfect for layering as the weather cools down.
"I know most people wouldn't typically opt for suede, but if you've been following my style, you know I'm all about my outerwear. I love adding texture to my looks, even if it's subtle, and a good suede jacket does that for me. The soft texture and rich hues of suede add that cherry on top for any fall look. Whether I'm rocking a bomber style in a jewel tone or a tailored trench in a neutral shade, a suede jacket is one piece I'm looking forward to wearing to elevate my fall wardrobe.”
These colors are all over Shaniqua’s fall mood board: “The colors on my fall mood board are rich earth tones like deep browns and olive greens paired with classic neutrals like camel and cream. I'd like to throw in a pop of butter yellow. I know it might seem more spring-like, but I love how it pairs with deep browns, oxblood, and even grays. It's the perfect way to brighten up those cozy, moody fall vibes. I'm also loving pops of bold jewel tones like emerald and burgundy to add a bit of luxe to the season. These shades give that cozy yet elevated feel I'm always aiming for in my fall wardrobe.”
Shaniqua describes her fall wardrobe in three words: “If I describe my fall wardrobe in three words, they would be chic, layered, and timeless. I love combining unique pieces with a classic touch, creating looks that stand out without trying too hard. It's all about finding that perfect balance between staying true to timeless fashion and adding my own signature flair.”
Are you bringing anything back from your 2023 fall wardrobe? "I am definitely an outfit repeater, so not only will I bring back pieces from my 2023 fall wardrobe, but I also have so many oldies but goodies that I’ll be incorporating into my fall 2024 looks. I think that's what really helps convey my personal style; buying pieces I genuinely love and being able to work them into my style season after season. It's all about longevity and staying true to what I love."
Alasia Allen, Los Angeles
Provocative
Alasia describes her style in three words: “Opulent, sleek, provocative.”
The fashion item Alasia anticipates wearing the most this fall: “I’m really into gloves this season. Whether it’s biker style or long, sleek, leather gloves, they add an interesting take to a fall look.”
The fall colors catching Alasia’s eye: “I’m loving navy or a super deep purple this season so I’ll be adding those into my wardrobe. They’re both so sophisticated and a good alternative to black.”
The fall staple Alaisa plans to bring back from her 2023 wardrobe: “Every year, I wear a shearling coat. It’s timeless, it’s warm, it’s my thing. There’s something very elevating about shearlings that have drawn to me year after year, and that’s what makes them my favorite style of outwear.”
The accessory that has Alasia in a chokehold this season: “Boots. I love a good boot as my go-to accessory for the fall/winter season. My favorites are boots that have a little flair to them and an interesting shape.”
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'It's Not All In Your Head': How Four Black Women Finally Got The Answers They Needed About Fibroids
If someone had told me I’d be working toward my third fibroid surgery in less than six years, I would have had a hard time believing them. First, because obviously, no one wants to ever hear the word "surgery" (unless it’s cosmetic surgery you’re opting for). But the more significant reason is I’d never heard any of the women in my life talk about fibroids, so the idea of having all of the complex issues because of them, on top of surgeries, was truly a foreign concept.
After my doctor told me I’d need a second surgery in March of 2023—a hysteroscopic myomectomy—after bleeding every day for over six months, I was over it. Not just over the symptoms. But I was done feeling siloed on an island dealing with the pain, feeling tired all the time, and the heaviness of what felt like endless trips to the doctor for ultrasounds, blood transfusions, blood count checks, MRIs, etc.
I would try to explain what I was feeling, and my pain was written off because I guess period pain is just supposed to be normal. I’m here to tell you it is not. And because we’ve been conditioned to just deal, that’s the way things should stay. Yeah, no.
What is a hysteroscopic myomectomy? Hysteroscopic myomectomy is the most minimally invasive procedure to treat fibroids. A surgeon removes fibroids by inserting a hysteroscope into the uterine cavity through the vagina and cervix.
So, I wrote and directed an animated short film to bring educational and entertainment value to helping the world learn about fibroids. With $25,000 of my own money, I went forth and made the film titled Super High: A Period Piece. Now, it’s making its rounds on the festival circuit, even gaining entry into two Oscar-qualifying festivals: the Chicago International Film Festival and the New Orleans Film Festival. We even won Best Narrative Short at the Morehouse Human Rights Film Festival in Atlanta.
As I was venturing onto the festival circuit, my editor asked me to write a piece highlighting the experiences of Black women with fibroids. Initially, I planned to highlight up to 15 stories. However, as I started working on this story, I thought hearing the experiences more in-depth would be equally impactful. So, we chatted with four women about their fibroid journeys.
The one thing we all had in common, which made me sad but also made me feel seen, was that none of us knew much about them beforehand. However, our willingness to openly share our stories will hopefully change that for many women now and beyond.
Keep reading for four women’s stories about their journey with fibroids.
Rosco Spears, artist and creative director
Before your journey with fibroids, did you know much about them?
Before my journey with fibroids, I didn't know much about them. I'd never heard of fibroids until women around me started getting diagnosed. I was dealing with heavy, painful periods long before I was privy to any of these diagnoses.
Shortly before I was officially diagnosed with having fibroids (2012), I learned that my sister and other women in my family also had fibroids. As I've grown older, I've learned that my three sisters, many cousins, aunts, etc, have also had fibroids. It's simply an issue that was never discussed.
How did you find out you had fibroids?
I found out that I had fibroids while living in NYC. I was fed up with the pain and discomfort from my period, so I shopped around until I got an answer that I thought made sense. I met a wonderful woman doctor who finally diagnosed me, and she offered me several options for easing the discomfort. During this time, I would often bleed between periods.
In 2013, one of my "in-between" moments was more than the spotting that I was used to, so I took myself to the emergency [room]. I learned that my hemoglobin [levels] were at seven, and the doctors wouldn't let me leave the hospital without getting a blood transfusion. They also highly recommended that I get surgery to remove the fibroids. Once I officially got the diagnosis, it was scary, but it also felt amazing to know that I could begin planning a path forward.
What are hemoglobin levels? To ensure adequate tissue oxygenation—a very important complex dance between the lungs, blood, and cardiovascular system—a sufficient hemoglobin level has to be maintained. The normal Hb level for women is 12 to 16 g/dl. Low hemoglobin levels mean your body isn’t getting enough oxygen, which is why you feel very tired and weak.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I've had two abdominal myomectomies, one in 2013 (16 fibroids were removed) and another in 2020 (51 fibroids were removed). I was nervous about the idea of being cut open during the myomectomy, but I didn't think that the outcome could be any worse than the pain that I was already dealing with. Both surgeries went just as planned (aside from the 2nd surgery being rescheduled due to COVID-19), and my recovery from both was amazing.
In 2013, I was a bit unhinged. I went location scouting for a photo shoot for The Lip Bar three days after I got home from the hospital. My family was very upset, but I honestly felt fine. I had some abdominal pain, but within two weeks, I was back in the studio on my feet all day. After my second surgery, the plan was to try and have a child shortly after recovery. I took my time with healing and did things according to the book.
What is a myomectomy? A myomectomy is surgery to remove uterine fibroids. There are several types of myomectomies, but the procedure you and your doctor decide is right for you will depend on factors like location, number, and size of your fibroids.
How did you feel post-treatment? How has getting treatment changed your quality of life?
I felt/feel amazing post-treatment! For about 2-3 years after both surgeries, my periods were much lighter, and the pain was light [and] much more bearable than it was with the fibroids. My quality of life is much different post-surgery.
There have been years [when] I simply did not have any energy while I was on my period. The most I could do was get up to go to the bathroom and get right back in bed. Or I'd have to carry a change of clothes with me when traveling to work because I couldn't afford to take off during my period, but I knew that at some point, I would bleed through everything. So, in that regard, life is beautiful. I'm no longer passing out, nor do I feel the need to bring an extra set of pants along on the ride.
While my quality of life has improved tremendously, I often joke and say that I have PTSD from having bad periods. What I mean is that I still check my pants often when I'm on my period. And I still get anxiety if I'm in public and I'm on day two or three of my period because who knows if it is just a little blood that I feel coming down or it's a huge clot that's going to ruin my pants. And I still know better than to try and wash my hair on my heavy days because there isn't enough energy to do both.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
You got this, sis! It's a difficult journey, but please seek advice from other women on the journey. If one doctor is not giving you sufficient information, find a new doctor. Make sure you're exploring all of the options for fibroid removal/shrinking treatments [because] it is not one size fits all. And take your iron supplements, boo.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
Oh God, if I could pay women to share their fibroid stories, I would. It's imperative that we talk with one another about our experiences in health. I shared my fibroid story years ago because I was so lost when I was on my journey. One of my sisters had the surgery before I did, but other than her, I didn't have anyone to talk to about fibroids.
I felt very alone, isolated, and somewhat embarrassed because it felt like this wasn't happening to anyone else around me. It makes a world of difference when you can talk with someone about an issue they are also facing. We will learn a lot more by discussing shared experiences—much of which you cannot learn from talking to your doctor or Google.
La-Anna Douglas, women’s advocate and motivational speaker
Before your journey with fibroids, did you know much about them?
Being someone who started my period at the age of 10, I was in the dark when it pertained to fibroids and other reproductive health issues. I had never heard of fibroids, and I didn’t know that the pain I was experiencing, along with fertility delays, was because of the fibroids sitting in between my two uteruses. The pelvic pain, excruciating periods, fatigue, and protruding belly to someone else would have been a dead giveaway. But I had no idea what was going on with my body. I also did not know of anyone in my family dealing with fibroids.
How did you find out you had fibroids?
I was diagnosed with fibroids by a reproductive endocrinologist [and] was finally properly diagnosed after suffering for 16 years. I finally found a doctor willing to listen to my concerns and, most of all, believed that I wasn’t making it up. She scheduled me for a thorough examination, and I was soon scheduled for laparoscopic surgery. I was diagnosed with three fibroids, endometriosis, and a uterus didelphys (two uteruses and two cervixes).
Uterus didelphys is a rare congenital condition where you're born with two uteruses. It's commonly called a double uterus.
Again, I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. I would have cramps for 3-4 days on my left side of my belly and then cramps for 3-4 days on my right. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus. When I heard all of the different diagnoses, I was angry, overwhelmed, scared, and confused. But the worst thing is that I was unprepared mentally and emotionally for the diagnosis and the journey ahead.
"I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus."
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I was told not to worry about removing the fibroids surgically after being diagnosed in my 20s back in 2008. But in 2020, during the pandemic, my pain started to escalate again. So, I was scheduled for an ultrasound, an MRI, and then a double-balloon procedure. I was told that my fibroids had grown and they were contributing to the secondary infertility I was experiencing. My doctor gave me two options. Would I rather have a hysterectomy?
I had already gone through 30 years of horrible periods, eight years of infertility [and] finally having a miracle baby in 2013 by God’s grace, and I had already gone through multiple procedures. Or I could do the robotic laparoscopic myomectomy, where they would remove the fibroids and open my two cervixes by also doing a hysteroscopy. At first, [I] wanted to do a hysterectomy, but [after] talking to my family and praying about it, I decided on having the robotic laparoscopic myomectomy. I was a little nervous but knew I was in good hands.
What is a laparoscopic myomectomy? A laparoscopic myomectomy is a minimally invasive procedure to remove uterine fibroids. A surgeon makes four tiny incisions in your abdomen and then uses a laparoscope, which is a special instrument that contains a light and video camera, to operate through the incisions.
How did you feel post-treatment? How has getting treatment changed your quality of life?
Post-treatment, I felt relieved and grateful. The healing journey was okay. I had a lot of support from my family, especially my husband. After the healing, [I am] loving on my body because the many scars on my belly are my beauty marks. I started to get more confident in who I was. The doctor who did the robotic laparoscopic myomectomy believed that I would get pregnant again.
Well, six months after the surgery, I became pregnant with our second miracle baby girl after eight years of secondary infertility at the age of 40. And to think, [had] I decided on the hysterectomy, she would not be here. Our surprise baby has brought so much happiness to our family.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
For anyone just beginning their fibroid journey, my advice would be to advocate for yourself no matter what the diagnosis may be. Your voice matters, and you control your narrative. If the doctor is not listening to you or your concerns, you have every right to seek a second, third, fourth, or as many opinions as you wish until you are heard and properly cared for. KNOW YOUR WORTH!
[And,] to always love on yourself through the journey with fibroids and anything else you may be going through. YOU ARE ENOUGH. The physical scars and the invisible scars are your beauty marks. And share with others how you are feeling and what you are going through. Please do not suffer in silence!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
It is so important that we share our journey with fibroids because there is power in supportive stories. We all must realize that we are not alone. There are so many of us who have similar situations going on or may be feeling the same feelings you may be feeling.
Sharing your story also helps to heal those hurts that happen on the road to diagnosis. Healing taps into the strength that has been lying dormant inside of us, and when that strength is ignited, there is nothing that can stop you from advocating for yourself and others who begin to share their stories with you.
Dawn Heels, award-winning fibroid advocate and campaigner
Before your journey with fibroids, did you know much about them?
I knew absolutely nothing about fibroids apart from the fact that my mum had one (she found out when she was pregnant with me), but even with this information, she didn't know anything about them.
How did you find out you had fibroids?
I had always suffered [from] extremely heavy, painful periods. I thought [this] was normal, [so] I didn't link it to the fact that something could be wrong with me. I first discovered I had fibroids after experiencing constant pain in the left-hand side of my abdomen in 2016. During an ultrasound scan, I was told I had 2 x 4 cm fibroids by the sonographer.
Two types of ultrasound scan can be used to help diagnose fibroids: an abdominal ultrasound scan – where the ultrasound probe is moved over the outside of your tummy (abdomen) a transvaginal ultrasound scan – where a small ultrasound probe is inserted into your vagina.
I hadn’t a clue what they were, and when I went back to see my doctor, he told me that I had nothing to worry about because fibroids were common, normal, and I should deal with any pain with a hot water bottle and ibuprofen. And because he told me I had nothing to worry about, at that moment, I didn’t worry.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
Over the next six years, my pain and suffering got worse. I displayed horrendous fibroid symptoms: bum cheek pain, leg pain, painful, heavy, clotty periods, lower back pain, extreme pain, abdominal/pelvic pain, early pregnancy symptoms, tiredness, ‘preggo belly,’ painful sex, long periods and was infertile. I finally saw a consultant who changed my life, as he was the first person to listen to me and put a plan in place.
"He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy."
He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy. I cried so many tears because I thought if I was to ever have an operation that resembled the C-section, I would be giving birth to a baby, not tumors! The operation was a success, and he removed 16 fibroids and left 2 in to give me a chance at conceiving. I lost a lot of blood and had an emergency blood transfusion one week later.
After eight weeks of healing, I started to feel much better.
How did you feel post-treatment? How has getting treatment changed your quality of life?
The open myomectomy gave me my life back—a good quality of life. I wasn’t in pain anymore. My periods were shorter and significantly lighter, and best of all, I fell pregnant six months after surgery!
What is an open myomectomy? An abdominal, or open, myomectomy removes fibroids through an incision in the abdomen, typically on the bikini line. The recovery time generally lasts up to six weeks.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
Educate yourself on the condition so you can guide the conversation and ask relevant questions when going into your consultations. Advocate for yourself, too! Too many of us will just agree to all sorts of nonsense just because the medical professional says so! You are the expert over your own body, so speak up!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I became an ‘accidental’ advocate because I shared my story. My inbox was inundated with messages from other ladies who had suffered or were currently suffering. That’s how powerful a share is.
Camille Austin, model and content creator
Before your journey with fibroids, did you know much about them? For example, did you know what symptoms to look out for?
I did not know much, if not anything at all. So, I did not know what symptoms to look out for.
Did you know if anyone in your family had ever dealt with them?
Yes, my mother, but she was already going through menopause, so our symptoms did not seem comparable.
How did you find out you had fibroids?
[I went] to my primary care physician, who is also a WOC. She performed a pelvic exam, and when I told her about all of my symptoms, she thought it was fibroids. It took a while and [was] frankly [an] annoying process to finally get to an MRI where they found three fibroids, one the size of 15cm.
And how did you feel once you got the official diagnosis?
I felt relieved and scared—scared about what this meant about my fertility. [But,] relieved that I had answers and I was going to get better.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I had to have surgery due to the size [of my fibroid.] I had an open and laparoscopic procedure done and was on the table for eight hours. I did not initially trust my surgeon as she wanted to jump straight into a hysterectomy. Common practice says that the only way to stop them from ever coming back is through a hysterectomy, which I find to be a bit extreme. To me, it sounds like it's just under-researched, and not enough efforts are being made because this largely impacts WOC, but I digress.
"My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened."
My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened. I found out I'm allergic to Dilaudid (a common pain med). I broke out and had a third-degree chemical burn around my stomach from the adhesive, and my skin completely broke out. There was not a doctor available to give me even so much as a Benadryl to ease the discomfort. Nurses can't prescribe meds.
It wasn't until I threatened to leave the hospital—I got up and packed my bags—that I received a pink Benadryl pill after waiting for about 6 hours. About a week after I got home, I broke into a fever and was septic. I was rushed back to the hospital and had to spend an additional four days. In short, the healing process did not go according to plan.
After your difficult hospital experience and healing journey, how did you feel post-treatment? How has getting treatment changed your quality of life?
After treatment, I felt so much better after everything was said and done. I would still get the surgery if I had to do it again. When I eventually healed, my periods were shorter. I could fit my clothes again, and I just had more energy to do things since I was not as anemic.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
[First,] push for that MRI sooner than later. If you catch them when they are small, you can look into non-invasive ways to get rid of them.
Make sure your doctor has a hospital list, and ask who will be in charge of taking care of you when your doctor is not around.
What does an MRI mean for fibroids? An MRI uses a magnetic field and radio waves to create computerized, 3D images of the uterus. These images can help your doctor decide which treatment is best for you and rule out other issues like adenomyosis and endometriosis.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I think it's important because we can all learn from each other, and this is not just becoming a "woman over 30" problem. According to my doctors, I was far too young, and due to my age, this was something that went unnoticed. Frankly, it should not have been a far stretch because I have fibroids in my breast tissue as well, but somehow, no correlation has been made.
So we have to press the issue, so hopefully, we can look into why this is happening to so many women and not allow a hysterectomy to be the first response.
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