For as long as I can remember, I have always been a daddy’s girl. And even though my father has been present in my life, I am fully aware that that is not the same story for others. Regardless of if you are close with your father or not, a father/father figure in your life shapes you as an adult in ways that you may not even realize. Fathers, especially Black fathers, are so important to our community and should be honored just as much as mothers. So it is only right to shine a light on some amazing Black fathers who are out here doing the best they can to enrich their children's lives.
In honor of Black fatherhood as a whole, xoNecole chatted with Kier Gaines is a licensed therapist, a content creator, and the founder of the lifestyle brand Kier and Them; Tony Ingram who works in the U.S. Navy and is well known for his Black Loveepisode he appeared in with his wife, Brittany Ingram; and Anthony Edwards, a digital creator and the host of his podcast, No Guru Ish, where he talks about birth, motherhood, and fatherhood. Each of these men comes from different walks of life.
For this Father’s Day, these Black men were open and honest about their perspectives on what being a father means to them, how their father figures shaped them, and the kind of legacy they hope to leave behind.
xoNecole: Who would you say was a role model for you while growing up?
Kier Gaines, 35: I don’t think I really looked up to anyone when I was growing up. I grew up in the projects of Washington D.C. and during the crack-cocaine epidemic, so I had a weird mix of environments. Outside my home, there’s violence and crime. But inside my home, there’s love, culture, and comfort. I saw older guys with things that I wanted like clothes, cars, and women. But at the same time, it was clear to me that those same guys lived lifestyles that I didn’t want. So I never saw myself in them. Now as an adult, I do have a couple of people that I look up to. But back then, I didn’t.
Tony Ingram, 38: I had a unique situation growing up. I have two dads. I have my stepfather and my biological father. They were both very present in my life. My stepfather raised me. My biological father and my mom were young parents and they didn’t work out. Then, my stepfather met my mom and raised me as his own. He fostered an environment for me to stay connected with my biological father. Both of my fathers had great attributes that really helped me become the father I am today.
Anthony Edwards, 33: For me, it’s a no-brainer that my role model is my father. My father worked hard and was a hustler. He was born in Jamaica and he had three jobs. Despite working a lot, he always tried to make time for me, even though it was hard at times.
xoN: How has your relationship with your father shaped how you display fatherhood to your children?
Kier: I didn’t have a relationship with my father. It was really my peers that were my father figures. My friends are the people I chose at the rawest stages in my life, so we were able to grow together. It’s different when it’s your peers because they do not have the wisdom of "years of experience" compared to you, but you still respect their lived experiences. At the end of the day, after all the trials and tribulations, my friends are still good fathers, good husbands, and most importantly, good humans. That is what I relate to the most. We feed into each other.
Tony: My stepfather was my coach. He taught me how to be respectful, and determined, and how to stand on your word. Now I pride myself on chivalry. I display that with my wife and both of my daughters. Now, with my biological father, he is the kindest person you would ever meet. He is the type of man that will give the shirt off his back for someone. He is also an adoptive father. He and my stepmother adopted my little brother at birth. The kind of heart that you have to have to do that is next level for me. I learned how to be compassionate [toward] others from him.
Anthony: It’s a little different for me. My father worked a lot which made him miss certain events in my life that I wish he was present for. I think those moments made me realize that, when I have a son, I will make sure to be completely present with my son. So you can say that my relationship with my dad made me want to do the opposite of some of the things he did as a father.
"At the end of the day, after all the trials and tribulations, my friends are still good fathers, good husbands, and most importantly, good humans. That is what I relate to the most. We feed into each other."
Courtesy of Kier Gaines
xoN: What is something that you wish you could've asked your father as a child that you didn't get a chance to?
Kier: It’s so funny. My brain has a protective mechanism where it leads me to believe that I do not need those kinds of answers. That is something that I am currently working through. I am less interested in asking why he wasn’t present. But one thing I am curious about is the origin story of my mom and his relationship. I don’t know anything about it. Like what did they talk about? Or what made them gravitate towards one another? You know, outside of the romantic side of things.
Tony: If I could ask them a question it would be about relationships with women. Like, how to establish a healthy relationship with a woman. To be transparent, yes my stepfather was a great father, but he wasn’t the greatest husband. He told me everything I was supposed to do, but I didn’t see it always displayed with my mom. With my biological father, I remember that he and my stepmother got divorced when I was a senior in high school. Honestly, that really crushed me. So I would ask him, how do you maintain a healthy marriage? I am curious about what happened there.
Anthony: You know, my father is really good at soccer. He still plays soccer to this day. I think I would ask him what his life was like before he met my mother. I know I had a life before my family. I didn’t have the heart to ask my dad those questions back then. I want to be able to share that kind of stuff with my son when he gets older.
Courtesy of Anthony Edwards
xoN: What do you enjoy most about being a father?
Kier: Man, being a girl dad is different. When you become a girl dad, you become a feminist. Automatically! For me, I have a weird relationship with parenthood. I don't always love it, I’m not going to lie to you. But I am always deeply in love with my children. I think the main thing is watching them grow. It’s crazy to me! You hear people talk about it all the time, but there’s a true bond there. I grew up as an only child, so watching both of my daughters grow as individuals and growing together is such a beautiful thing. It brings me so much joy.
Tony: The coolest thing I love about being a father is that I get to be a role model for my daughters. I’m able to show them what ‘doing things right’ looks like in my eyes. I can set a precedent for my daughters on who to give your energy to based on setting a standard and honoring your values. On a smaller scale, I love when I come home from work, I walk through the door, and both of my daughters welcome me at the door. They say “Hi Daddy!” like 30 times and it is just the best feeling in the world. Coming home from work to them is a whole new joy for me.
Anthony: Honestly, I like the responsibility of being a father. It makes you poke your chest out a little bit. I see fatherhood as ‘I’m a captain of my team and I am leading my team to victory.’ I like the challenge of being a father and being able to learn along the way.
xoN: What have your children taught you about the definition of what being a father means?
Kier: So my first daughter wasn’t planned. I had my daughter with my then-girlfriend, who is now my wife. At that time, we actually decided to break up a couple of months later. Sometimes in those situations, it is a tough hill to climb. So falling in love with my first daughter was a different journey. Now my second daughter, whom I had with my wife, was planned. What my daughters taught me, I could write 40 novels about it so far (laughs). But overall, how I came to love them taught me a lot about love, life, and about myself.
Tony: Harleigh is my first born. With her, I didn’t have a clue what I was doing and I felt unprepared. But to be honest, becoming a father is nothing you can ever be fully prepared for. Admittedly, I was more stern with her because I was very protective of her. With Willow, I was more lenient about things. I figured out which things matter and which things didn't matter as much. I have learned to be patient from Harleigh to Willow. I have also learned about being more in tune with my feelings because of my daughters. Man, I can cry at the drop of a hat now!
Anthony: I was a stepfather before having my son. My daughter, I have known her since she was 2 years old. My daughter plays a huge role in everything that I do as a father. She has taught me patience and setting boundaries as a stepparent because her father is still a part of her life. My son has taught me something different about what being a father means. On my podcast, No Guru Ish, I express that my wife and I had to go through IVF because I am infertile.
When we talk about infertility, we always highlight women. But there are men out there who experience male infertility and I’m one of them. The process was very stressful and to say that I needed help to have my son still kind of bothers me, if we are being completely real. But I am so grateful for my son because IVF is still not guaranteed. It is a miracle to have my son and it is an honor for me to be his father. Every minute is so precious to me when it comes to fatherhood.
"When we talk about infertility, we always highlight women. But there are men out there who experience male infertility and I’m one of them. It is a miracle to have my son and it is an honor for me to be his father. Every minute is so precious to me when it comes to fatherhood."
Courtesy of Anthony Edwards
xoN: Are there things that you wish you had done differently as a father?
Kier: No. I’m a firm believer in 'a series of doors leads into a series of doors and that leads to another series of doors.’ You make decisions and those decisions trickle down. I will say though, that I am glad I went to therapy before becoming a father. That is something I am really proud of myself for doing. I believe this journey of fatherhood would have been much more arduous if I hadn’t.
Tony: I am in the Navy. That requires me to travel a lot. The last three years, I haven’t been home as much and time is what I miss the most. You can’t get that time back. I wouldn’t say I would make another career choice because I am very grateful for the position I am in now. But looking back, I would take my career choice more into consideration when it comes to how it will affect my time spent with my family.
Anthony: I will start with my son. My son is only 6 months old, so I will say that I would push him to do things like make him roll over and stuff but I had to take a step back and remind myself that I need to slow down. I need him to do things on his own in his own time. With my daughter, she’s 15 now and I’m 33 years old. So the age difference is at the point where we can hang out, but when it comes to discipline, I have to be that authority figure. I didn’t set that boundary in the beginning. I wish that I could’ve set that boundary between friend and parent earlier than I did now.
xoN: How has being a father shaped your views on love in your marriage?
Kier: Parenthood has made my wife and I a better team. We are both committed to the idea “I got into this relationship with you and not these kids. We put ourselves first.” Now I know that’s a very controversial thing to say. I know people have different hierarchies where they place their children. And hey, that thing (hierarchy chart) moves too! But being a father has taught me how to take care of my wife as a person beyond motherhood. I know she still needs me as a friend, as a husband, and as a companion.
Tony: Being a father has allowed me the space to demonstrate to my daughters what authentic love looks like by the way I love my wife. I am very intentional about how I communicate with my wife and vice versa. My wife and I respect each other’s boundaries and prioritize being on one accord, even if we disagree on something. I need my daughters to witness and understand what a positive healthy relationship looks like. Because if I am being toxic to my wife, then there’s a chance that is what they are going to seek without realizing it. Model behavior is key.
Anthony: The love I have for my wife has grown and I didn’t think it would. The fact that my wife stuck it out through IVF for me is amazing. Now that I’m a father [biologically], my son definitely completed the circle. The bond between us has really gotten deeper after we had our son and it is true unconditional love.
"Being a father has allowed me the space to demonstrate to my daughters what authentic love looks like by the way I love my wife. I am very intentional about how I communicate with my wife and vice versa. My wife and I respect each other’s boundaries and prioritize being on one accord, even if we disagree on something."
Courtesy of Tony Ingram
xoN: What advice do you have for other men that are looking for that sense of community of being a father?
Kier: I say to broaden your circle. Sometimes we automatically look for people who look like us because we assume they have shared the same life experiences and have similar perspectives. That is mostly true. But when you are able to connect with someone on a human level, those differences aren’t a huge factor. There are some things you could miss out on if you do not connect with people with different backgrounds.
Anthony: With my situation, building a sense of community can be a little challenging. I would be vulnerable with some people about my infertility and you never know how people are going to respond. It can definitely be triggering. So what I’m learning now is when I talk about dismantling the stigma on male infertility, I have to look past the negative responses that I might receive. It’s about making awareness and knowing that the awareness helps so many other couples feel seen. So the advice I can give is I think it’s important for men to first know their status with producing children. There are fertility specialists out there and to not only depend on women to know those things. Whether you are a biological father or not, being a father is a blessing and having space to share those experiences with other fathers is important too.
xoN: How would you like your legacy to be remembered? What would you like your children to keep with them about their father, years down the line?
Kier: I think that when you talk about legacy, it’s not really on you. I can bring things into the world, and people are going to read into those things however they want. But the main thing that I want my children to keep with them is to pay it forward. I want them to be satisfied with who they are as individuals because they saw their father happy with who he was. My daughters do not need to be perfect or widely accomplished women. I know there are women who have multiple degrees and multiple businesses but are still unhappy with themselves. So as long as my daughters are happy and know that their father is/was a good man who tried to put good in the Universe, that’s the only thing that matters to me.
Tony: When it comes to legacy, your character and integrity are non-negotiable. The values that I have, have to be solid. For my daughters, I want them to know their father was courageous, his character and integrity were intact, and how to stay ten toes down for what they believe in. Now my wife and I will be having a son soon. When I tell you when we found out we were having a son, there was something that came over me. I thought to myself, ‘You are about to have a mini you.’ My prayer for my son is to be a healthy masculine young man that walks with courage, faith, and integrity. I want him to respect himself and be mindful of his feelings. I want to teach him that it is okay to feel his feelings. Manhood is vulnerability as well as being firm. I want to teach him to not allow others to put him in a box. I want him to be great in his own right. I want him to look up to me and be proud of me.
Anthony: I want my children to know that their dad is relentless and I invested so much into them. I want them to know it is important to believe in themselves and not allow society to throw them off the course. I want my children to also know that if things do get hard, it’s okay because their father made sure that there is a soft landing for them to bounce back from when they fall.
Featured image courtesy of Anthony Edwards
'K' is a multi-hyphenated free spirit from Chicago. She is a lover of stories and the people who tell them. As a writer, 9-5er, and Safe Space Curator, she values creating the life she wants and enjoying the journey along the way. You can follow her on Instagram @theletter__k_.
The Fall Staples It Girls From Coast To Coast Are Already Wearing
When it comes to trends, It girls lead, they don’t follow. Keeping one finger on the pulse of fashion and the other on their instincts, it’s their innate ability to dress to the beat of their own heart that makes them stand out amongst everyone else around them.
These women are ahead of their time, forecasting what will eventually be adopted by the masses often years in advance. In most cases, buying into trending items is just a by-product of their love of fashion, however, it's never the key ingredient of a memorable outfit.
As we transition from summer to fall, there’s no need to spend too many coins curating a brand new seasonal wardrobe, especially in this economy. Instead of shopping targeted ads, we interviewed fashion-forward influencers to spark our imagination and gather insight on what they’re already wearing leading into the upcoming season. Keep scrolling to get the scoop on essential items these fashion-forward women are looking forward to wearing this fall.
Helecia Williams, Houston
Comfort
Helecia’s style in three words: “Structured, bold, and explorative.”
Helecia’s outfit inspiration: “I am most interested in comfort as a trend. I am truly enjoying the mix of flats with elevated outfits and the incorporation of street-style elements into the looks. I have seen so much juxtaposition that makes the outfits interesting and intriguing. I love the pairing of fitted caps with [suits] and ballet flats. That mashup is impeccable, and we saw some of that peeking through last fall, and now it's taken on a life of its own.
"As a sneaker lover and comfort sneakers, bringing back flats is just a reimagination of past trends with a fresh twist.”
What color(s) is on Helecia’s fall mood board: “Hands down, red! It's such a bold and bossy color. Now, we see it becoming much more accessible in fashion and realize how easy it is to style and incorporate into a look for that extra pop. It also pairs well with so many other shades and tones. Some of my favorite combos are red and burgundy, red and yellow, and red and brown. Even if you aren't fully convinced that it's the color of the season and still have reservations about it, you can go classic and incorporate it in an accessory or makeup like a red lip.”
Are you bringing anything back from your 2023 fall wardrobe? “I will be returning and recycling all of my 2023 fall wardrobe and just styling it differently or giving it new life. Despite my love for trends, I've curated a wardrobe that I love so I will mix the old in with the new. And not to toot my own horn but a lot of my fashion moments are ahead of the times and still very relevant for this upcoming fall. Expect to see tons of texture, juxtaposition, unexpected color combos, and street style.”
How Helecia is accessorizing this season: “I hate to admit it, but the one trend that has me in a chokehold this fall is bold jewelry, particularly in gold. I've realized that accessories can do wonders, and the Schiaparelli era has me shook. I am a ‘Stan’ of Shop Khoi, a Black-owned jewelry brand that creates some of the most amazing, high-quality fashion jewelry. It just sets off any outfit no matter how simple it may be and easily becomes a conversation piece.”
Courtney Blackwell, New York City
Courtney’s style in three words: “Vintage, oversize, and sexy.”
Courtney’s most anticipated fall fashion items: “The fashion item I am anticipating wearing is vintage leather in all colors!”
Courtney's color picks for fall: “Cherry reds, forest greens, and different shades of gray.”
The trend that has Courtney in a chokehold this season: “Skirts! I’ve never been a skirt girly, well mini skirts girly, but I think I’m going to step it up with the minis this fall.”
Shaniqua Jordan, New York City
Timeless
Shaniqua’s personal styling tip for fall: “I hate to admit it, but the one trend that has me in a chokehold this fall is any oversized outerwear piece, especially oversized blazers. And as basic as it may sound, I can't get enough of them. They instantly elevate any look, and they're so versatile, whether I'm going for a polished vibe or something more casual. Plus, they are perfect for layering as the weather cools down.
"I know most people wouldn't typically opt for suede, but if you've been following my style, you know I'm all about my outerwear. I love adding texture to my looks, even if it's subtle, and a good suede jacket does that for me. The soft texture and rich hues of suede add that cherry on top for any fall look. Whether I'm rocking a bomber style in a jewel tone or a tailored trench in a neutral shade, a suede jacket is one piece I'm looking forward to wearing to elevate my fall wardrobe.”
These colors are all over Shaniqua’s fall mood board: “The colors on my fall mood board are rich earth tones like deep browns and olive greens paired with classic neutrals like camel and cream. I'd like to throw in a pop of butter yellow. I know it might seem more spring-like, but I love how it pairs with deep browns, oxblood, and even grays. It's the perfect way to brighten up those cozy, moody fall vibes. I'm also loving pops of bold jewel tones like emerald and burgundy to add a bit of luxe to the season. These shades give that cozy yet elevated feel I'm always aiming for in my fall wardrobe.”
Shaniqua describes her fall wardrobe in three words: “If I describe my fall wardrobe in three words, they would be chic, layered, and timeless. I love combining unique pieces with a classic touch, creating looks that stand out without trying too hard. It's all about finding that perfect balance between staying true to timeless fashion and adding my own signature flair.”
Are you bringing anything back from your 2023 fall wardrobe? "I am definitely an outfit repeater, so not only will I bring back pieces from my 2023 fall wardrobe, but I also have so many oldies but goodies that I’ll be incorporating into my fall 2024 looks. I think that's what really helps convey my personal style; buying pieces I genuinely love and being able to work them into my style season after season. It's all about longevity and staying true to what I love."
Alasia Allen, Los Angeles
Provocative
Alasia describes her style in three words: “Opulent, sleek, provocative.”
The fashion item Alasia anticipates wearing the most this fall: “I’m really into gloves this season. Whether it’s biker style or long, sleek, leather gloves, they add an interesting take to a fall look.”
The fall colors catching Alasia’s eye: “I’m loving navy or a super deep purple this season so I’ll be adding those into my wardrobe. They’re both so sophisticated and a good alternative to black.”
The fall staple Alaisa plans to bring back from her 2023 wardrobe: “Every year, I wear a shearling coat. It’s timeless, it’s warm, it’s my thing. There’s something very elevating about shearlings that have drawn to me year after year, and that’s what makes them my favorite style of outwear.”
The accessory that has Alasia in a chokehold this season: “Boots. I love a good boot as my go-to accessory for the fall/winter season. My favorites are boots that have a little flair to them and an interesting shape.”
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'It's Not All In Your Head': How Four Black Women Finally Got The Answers They Needed About Fibroids
If someone had told me I’d be working toward my third fibroid surgery in less than six years, I would have had a hard time believing them. First, because obviously, no one wants to ever hear the word "surgery" (unless it’s cosmetic surgery you’re opting for). But the more significant reason is I’d never heard any of the women in my life talk about fibroids, so the idea of having all of the complex issues because of them, on top of surgeries, was truly a foreign concept.
After my doctor told me I’d need a second surgery in March of 2023—a hysteroscopic myomectomy—after bleeding every day for over six months, I was over it. Not just over the symptoms. But I was done feeling siloed on an island dealing with the pain, feeling tired all the time, and the heaviness of what felt like endless trips to the doctor for ultrasounds, blood transfusions, blood count checks, MRIs, etc.
I would try to explain what I was feeling, and my pain was written off because I guess period pain is just supposed to be normal. I’m here to tell you it is not. And because we’ve been conditioned to just deal, that’s the way things should stay. Yeah, no.
What is a hysteroscopic myomectomy? Hysteroscopic myomectomy is the most minimally invasive procedure to treat fibroids. A surgeon removes fibroids by inserting a hysteroscope into the uterine cavity through the vagina and cervix.
So, I wrote and directed an animated short film to bring educational and entertainment value to helping the world learn about fibroids. With $25,000 of my own money, I went forth and made the film titled Super High: A Period Piece. Now, it’s making its rounds on the festival circuit, even gaining entry into two Oscar-qualifying festivals: the Chicago International Film Festival and the New Orleans Film Festival. We even won Best Narrative Short at the Morehouse Human Rights Film Festival in Atlanta.
As I was venturing onto the festival circuit, my editor asked me to write a piece highlighting the experiences of Black women with fibroids. Initially, I planned to highlight up to 15 stories. However, as I started working on this story, I thought hearing the experiences more in-depth would be equally impactful. So, we chatted with four women about their fibroid journeys.
The one thing we all had in common, which made me sad but also made me feel seen, was that none of us knew much about them beforehand. However, our willingness to openly share our stories will hopefully change that for many women now and beyond.
Keep reading for four women’s stories about their journey with fibroids.
Rosco Spears, artist and creative director
Before your journey with fibroids, did you know much about them?
Before my journey with fibroids, I didn't know much about them. I'd never heard of fibroids until women around me started getting diagnosed. I was dealing with heavy, painful periods long before I was privy to any of these diagnoses.
Shortly before I was officially diagnosed with having fibroids (2012), I learned that my sister and other women in my family also had fibroids. As I've grown older, I've learned that my three sisters, many cousins, aunts, etc, have also had fibroids. It's simply an issue that was never discussed.
How did you find out you had fibroids?
I found out that I had fibroids while living in NYC. I was fed up with the pain and discomfort from my period, so I shopped around until I got an answer that I thought made sense. I met a wonderful woman doctor who finally diagnosed me, and she offered me several options for easing the discomfort. During this time, I would often bleed between periods.
In 2013, one of my "in-between" moments was more than the spotting that I was used to, so I took myself to the emergency [room]. I learned that my hemoglobin [levels] were at seven, and the doctors wouldn't let me leave the hospital without getting a blood transfusion. They also highly recommended that I get surgery to remove the fibroids. Once I officially got the diagnosis, it was scary, but it also felt amazing to know that I could begin planning a path forward.
What are hemoglobin levels? To ensure adequate tissue oxygenation—a very important complex dance between the lungs, blood, and cardiovascular system—a sufficient hemoglobin level has to be maintained. The normal Hb level for women is 12 to 16 g/dl. Low hemoglobin levels mean your body isn’t getting enough oxygen, which is why you feel very tired and weak.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I've had two abdominal myomectomies, one in 2013 (16 fibroids were removed) and another in 2020 (51 fibroids were removed). I was nervous about the idea of being cut open during the myomectomy, but I didn't think that the outcome could be any worse than the pain that I was already dealing with. Both surgeries went just as planned (aside from the 2nd surgery being rescheduled due to COVID-19), and my recovery from both was amazing.
In 2013, I was a bit unhinged. I went location scouting for a photo shoot for The Lip Bar three days after I got home from the hospital. My family was very upset, but I honestly felt fine. I had some abdominal pain, but within two weeks, I was back in the studio on my feet all day. After my second surgery, the plan was to try and have a child shortly after recovery. I took my time with healing and did things according to the book.
What is a myomectomy? A myomectomy is surgery to remove uterine fibroids. There are several types of myomectomies, but the procedure you and your doctor decide is right for you will depend on factors like location, number, and size of your fibroids.
How did you feel post-treatment? How has getting treatment changed your quality of life?
I felt/feel amazing post-treatment! For about 2-3 years after both surgeries, my periods were much lighter, and the pain was light [and] much more bearable than it was with the fibroids. My quality of life is much different post-surgery.
There have been years [when] I simply did not have any energy while I was on my period. The most I could do was get up to go to the bathroom and get right back in bed. Or I'd have to carry a change of clothes with me when traveling to work because I couldn't afford to take off during my period, but I knew that at some point, I would bleed through everything. So, in that regard, life is beautiful. I'm no longer passing out, nor do I feel the need to bring an extra set of pants along on the ride.
While my quality of life has improved tremendously, I often joke and say that I have PTSD from having bad periods. What I mean is that I still check my pants often when I'm on my period. And I still get anxiety if I'm in public and I'm on day two or three of my period because who knows if it is just a little blood that I feel coming down or it's a huge clot that's going to ruin my pants. And I still know better than to try and wash my hair on my heavy days because there isn't enough energy to do both.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
You got this, sis! It's a difficult journey, but please seek advice from other women on the journey. If one doctor is not giving you sufficient information, find a new doctor. Make sure you're exploring all of the options for fibroid removal/shrinking treatments [because] it is not one size fits all. And take your iron supplements, boo.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
Oh God, if I could pay women to share their fibroid stories, I would. It's imperative that we talk with one another about our experiences in health. I shared my fibroid story years ago because I was so lost when I was on my journey. One of my sisters had the surgery before I did, but other than her, I didn't have anyone to talk to about fibroids.
I felt very alone, isolated, and somewhat embarrassed because it felt like this wasn't happening to anyone else around me. It makes a world of difference when you can talk with someone about an issue they are also facing. We will learn a lot more by discussing shared experiences—much of which you cannot learn from talking to your doctor or Google.
La-Anna Douglas, women’s advocate and motivational speaker
Before your journey with fibroids, did you know much about them?
Being someone who started my period at the age of 10, I was in the dark when it pertained to fibroids and other reproductive health issues. I had never heard of fibroids, and I didn’t know that the pain I was experiencing, along with fertility delays, was because of the fibroids sitting in between my two uteruses. The pelvic pain, excruciating periods, fatigue, and protruding belly to someone else would have been a dead giveaway. But I had no idea what was going on with my body. I also did not know of anyone in my family dealing with fibroids.
How did you find out you had fibroids?
I was diagnosed with fibroids by a reproductive endocrinologist [and] was finally properly diagnosed after suffering for 16 years. I finally found a doctor willing to listen to my concerns and, most of all, believed that I wasn’t making it up. She scheduled me for a thorough examination, and I was soon scheduled for laparoscopic surgery. I was diagnosed with three fibroids, endometriosis, and a uterus didelphys (two uteruses and two cervixes).
Uterus didelphys is a rare congenital condition where you're born with two uteruses. It's commonly called a double uterus.
Again, I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. I would have cramps for 3-4 days on my left side of my belly and then cramps for 3-4 days on my right. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus. When I heard all of the different diagnoses, I was angry, overwhelmed, scared, and confused. But the worst thing is that I was unprepared mentally and emotionally for the diagnosis and the journey ahead.
"I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus."
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I was told not to worry about removing the fibroids surgically after being diagnosed in my 20s back in 2008. But in 2020, during the pandemic, my pain started to escalate again. So, I was scheduled for an ultrasound, an MRI, and then a double-balloon procedure. I was told that my fibroids had grown and they were contributing to the secondary infertility I was experiencing. My doctor gave me two options. Would I rather have a hysterectomy?
I had already gone through 30 years of horrible periods, eight years of infertility [and] finally having a miracle baby in 2013 by God’s grace, and I had already gone through multiple procedures. Or I could do the robotic laparoscopic myomectomy, where they would remove the fibroids and open my two cervixes by also doing a hysteroscopy. At first, [I] wanted to do a hysterectomy, but [after] talking to my family and praying about it, I decided on having the robotic laparoscopic myomectomy. I was a little nervous but knew I was in good hands.
What is a laparoscopic myomectomy? A laparoscopic myomectomy is a minimally invasive procedure to remove uterine fibroids. A surgeon makes four tiny incisions in your abdomen and then uses a laparoscope, which is a special instrument that contains a light and video camera, to operate through the incisions.
How did you feel post-treatment? How has getting treatment changed your quality of life?
Post-treatment, I felt relieved and grateful. The healing journey was okay. I had a lot of support from my family, especially my husband. After the healing, [I am] loving on my body because the many scars on my belly are my beauty marks. I started to get more confident in who I was. The doctor who did the robotic laparoscopic myomectomy believed that I would get pregnant again.
Well, six months after the surgery, I became pregnant with our second miracle baby girl after eight years of secondary infertility at the age of 40. And to think, [had] I decided on the hysterectomy, she would not be here. Our surprise baby has brought so much happiness to our family.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
For anyone just beginning their fibroid journey, my advice would be to advocate for yourself no matter what the diagnosis may be. Your voice matters, and you control your narrative. If the doctor is not listening to you or your concerns, you have every right to seek a second, third, fourth, or as many opinions as you wish until you are heard and properly cared for. KNOW YOUR WORTH!
[And,] to always love on yourself through the journey with fibroids and anything else you may be going through. YOU ARE ENOUGH. The physical scars and the invisible scars are your beauty marks. And share with others how you are feeling and what you are going through. Please do not suffer in silence!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
It is so important that we share our journey with fibroids because there is power in supportive stories. We all must realize that we are not alone. There are so many of us who have similar situations going on or may be feeling the same feelings you may be feeling.
Sharing your story also helps to heal those hurts that happen on the road to diagnosis. Healing taps into the strength that has been lying dormant inside of us, and when that strength is ignited, there is nothing that can stop you from advocating for yourself and others who begin to share their stories with you.
Dawn Heels, award-winning fibroid advocate and campaigner
Before your journey with fibroids, did you know much about them?
I knew absolutely nothing about fibroids apart from the fact that my mum had one (she found out when she was pregnant with me), but even with this information, she didn't know anything about them.
How did you find out you had fibroids?
I had always suffered [from] extremely heavy, painful periods. I thought [this] was normal, [so] I didn't link it to the fact that something could be wrong with me. I first discovered I had fibroids after experiencing constant pain in the left-hand side of my abdomen in 2016. During an ultrasound scan, I was told I had 2 x 4 cm fibroids by the sonographer.
Two types of ultrasound scan can be used to help diagnose fibroids: an abdominal ultrasound scan – where the ultrasound probe is moved over the outside of your tummy (abdomen) a transvaginal ultrasound scan – where a small ultrasound probe is inserted into your vagina.
I hadn’t a clue what they were, and when I went back to see my doctor, he told me that I had nothing to worry about because fibroids were common, normal, and I should deal with any pain with a hot water bottle and ibuprofen. And because he told me I had nothing to worry about, at that moment, I didn’t worry.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
Over the next six years, my pain and suffering got worse. I displayed horrendous fibroid symptoms: bum cheek pain, leg pain, painful, heavy, clotty periods, lower back pain, extreme pain, abdominal/pelvic pain, early pregnancy symptoms, tiredness, ‘preggo belly,’ painful sex, long periods and was infertile. I finally saw a consultant who changed my life, as he was the first person to listen to me and put a plan in place.
"He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy."
He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy. I cried so many tears because I thought if I was to ever have an operation that resembled the C-section, I would be giving birth to a baby, not tumors! The operation was a success, and he removed 16 fibroids and left 2 in to give me a chance at conceiving. I lost a lot of blood and had an emergency blood transfusion one week later.
After eight weeks of healing, I started to feel much better.
How did you feel post-treatment? How has getting treatment changed your quality of life?
The open myomectomy gave me my life back—a good quality of life. I wasn’t in pain anymore. My periods were shorter and significantly lighter, and best of all, I fell pregnant six months after surgery!
What is an open myomectomy? An abdominal, or open, myomectomy removes fibroids through an incision in the abdomen, typically on the bikini line. The recovery time generally lasts up to six weeks.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
Educate yourself on the condition so you can guide the conversation and ask relevant questions when going into your consultations. Advocate for yourself, too! Too many of us will just agree to all sorts of nonsense just because the medical professional says so! You are the expert over your own body, so speak up!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I became an ‘accidental’ advocate because I shared my story. My inbox was inundated with messages from other ladies who had suffered or were currently suffering. That’s how powerful a share is.
Camille Austin, model and content creator
Before your journey with fibroids, did you know much about them? For example, did you know what symptoms to look out for?
I did not know much, if not anything at all. So, I did not know what symptoms to look out for.
Did you know if anyone in your family had ever dealt with them?
Yes, my mother, but she was already going through menopause, so our symptoms did not seem comparable.
How did you find out you had fibroids?
[I went] to my primary care physician, who is also a WOC. She performed a pelvic exam, and when I told her about all of my symptoms, she thought it was fibroids. It took a while and [was] frankly [an] annoying process to finally get to an MRI where they found three fibroids, one the size of 15cm.
And how did you feel once you got the official diagnosis?
I felt relieved and scared—scared about what this meant about my fertility. [But,] relieved that I had answers and I was going to get better.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I had to have surgery due to the size [of my fibroid.] I had an open and laparoscopic procedure done and was on the table for eight hours. I did not initially trust my surgeon as she wanted to jump straight into a hysterectomy. Common practice says that the only way to stop them from ever coming back is through a hysterectomy, which I find to be a bit extreme. To me, it sounds like it's just under-researched, and not enough efforts are being made because this largely impacts WOC, but I digress.
"My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened."
My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened. I found out I'm allergic to Dilaudid (a common pain med). I broke out and had a third-degree chemical burn around my stomach from the adhesive, and my skin completely broke out. There was not a doctor available to give me even so much as a Benadryl to ease the discomfort. Nurses can't prescribe meds.
It wasn't until I threatened to leave the hospital—I got up and packed my bags—that I received a pink Benadryl pill after waiting for about 6 hours. About a week after I got home, I broke into a fever and was septic. I was rushed back to the hospital and had to spend an additional four days. In short, the healing process did not go according to plan.
After your difficult hospital experience and healing journey, how did you feel post-treatment? How has getting treatment changed your quality of life?
After treatment, I felt so much better after everything was said and done. I would still get the surgery if I had to do it again. When I eventually healed, my periods were shorter. I could fit my clothes again, and I just had more energy to do things since I was not as anemic.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
[First,] push for that MRI sooner than later. If you catch them when they are small, you can look into non-invasive ways to get rid of them.
Make sure your doctor has a hospital list, and ask who will be in charge of taking care of you when your doctor is not around.
What does an MRI mean for fibroids? An MRI uses a magnetic field and radio waves to create computerized, 3D images of the uterus. These images can help your doctor decide which treatment is best for you and rule out other issues like adenomyosis and endometriosis.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I think it's important because we can all learn from each other, and this is not just becoming a "woman over 30" problem. According to my doctors, I was far too young, and due to my age, this was something that went unnoticed. Frankly, it should not have been a far stretch because I have fibroids in my breast tissue as well, but somehow, no correlation has been made.
So we have to press the issue, so hopefully, we can look into why this is happening to so many women and not allow a hysterectomy to be the first response.
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