The Reality Of Living With Severe Asthma – As Told By 2 Women On Their Disease Journey
This post is in partnership with Amgen.
The seemingly simple task of taking a breath is something most of us don’t think twice about. But for people who live with severe asthma, breathing does not always come easily. Asthma, a chronic respiratory condition that inflames and narrows the airways in the lungs, affects millions of people worldwide – 5-10% of which live with severe asthma. Severe asthma is a chronic and lifelong condition that is unpredictable and can be difficult to manage. Though often invisible to the rest of the world, severe asthma is a not-so-silent companion for those who live with it, often interrupting schedules and impacting day-to-day life.
Among the many individuals who battle severe asthma, Black women face a unique set of challenges. It's not uncommon for us to go years without a proper diagnosis, and finding the right treatment often requires some trial and error. Thankfully, all hope is not lost for those who may be fighting to get their severe asthma under control. We spoke with Juanita Brown Ingram, Esq. and Jania Watson, two inspiring Black women who have been living with severe asthma and have found strength, resilience, and a sense of purpose in their journeys.
Juanita Brown Ingram, Esq.
Juanita Ingram has a resume that would make anyone’s jaw drop. On top of being recently crowned Mrs. Universe, she’s also an accomplished attorney, filmmaker, and philanthropist. From the outside, it seems there’s nothing this talented woman won’t try, and likely succeed at. In her everyday life, however, Juanita exercises a lot more caution. From a young age, Juanita has struggled with severe asthma. Her symptoms were always exacerbated by common illnesses like a cold or flu. “I've heard these stories of my breathing struggles, but I remember distinctly when I was younger not being able to breathe every time I got a virus,” says Ingram. “I remember missing a lot of school and crying a lot because asthma is painful. I [was taken] to see my doctor often if I got sick with anything so I was hypervigilant as a child, and I still am.”
Today, Juanita says her symptoms are best managed when she’s working closely with her care team, avoiding getting sick and staying ahead of any symptoms. Ingram said she’s been blessed with skilled doctors who are just as vigilant of her symptoms as she is. While competing in the Mrs. Universe competition, Juanita took extra care to stay clear of other competitors to ensure she didn’t catch a cold or virus that would trigger her severe asthma. “I would stand off to the side and sometimes that could be taken as ‘oh, she thinks she's better than everybody else.’ But if I get sick during a pageant, I'm done. I had to compete with that in mind because my sickness doesn't look like everybody else's sickness.”
Even when her symptoms are under control, living with severe asthma still presents challenges. Juanita relies on her strong support system to overcome the hurdles caused by a lack of understanding from the public, “I think that there's a lot of lack of awareness about how serious severe asthma is. I would [also] tell women to advocate and to trust their intuition and not to allow someone to dismiss what you're experiencing.”
Jania Watson
Jania, a content creator from Atlanta, Georgia, has been living with severe asthma for many years. Thanks to early testing by asthma specialists, Jania was diagnosed with severe asthma as a child after experiencing frequent flare-ups and challenges in her day-to-day life. “I specifically remember, I was starting school, and we were moving into a new house. One of the triggers for me and my younger sister at the time were certain types of carpets. We had just moved into this new house and within weeks of us being there, my parents literally had to pay for all new carpet in the house.”
As Jania grew older, she was suffering from fewer flare-ups and thought her asthma was well under control. However, a trip back to her doctor during high school revealed that her severe asthma was affecting her more than she realized. “That was the first time in a long time I had to do a breathing test,” she describes. “The doctor had me take a deep breath in and blow into a machine to test my breathing. They told me to blow as hard as I could. And I was doing it. I was giving everything I got. [My dad and the doctor] were looking at me like ‘girl, stop playing.’ And at that point [it confirmed] I still have severe asthma because I've given it all I got. It doesn't really go away, but I just learned how to help manage it better.”
Jania recognizes that people who aren’t living with asthma, may not understand the disease and mistake it for something less serious. Or there could be others who think their symptoms are minor, and not worth bringing up. So, for Jania, communicating with others about her diagnosis is key. “Having severe asthma [flare-ups] in some cases looks very similar to being out of shape,” she said. “But this is a chronic illness that I was born with. This is just something that I live with that I've been dealing with. And I think it's important for people to know because that determines the next steps. [They might ask] ‘Do you need a bottle of water, or do you need an inhaler? Do you need to take a break, or do we need to take you to the hospital?’ So, I think letting the people around you know what's going on, just in case anything were to happen plays a lot into it as well.”
Like Juanita, Jania’s journey has been marked by ups and downs, but she remains an unwavering advocate for asthma awareness and support within the Black community. She hopes that her story can be an inspiration to other women with asthma who may not yet have their symptoms under control. “There's still life to be lived outside of having severe asthma. It is always going to be there, but it's not meant to stop you from living your life. That’s why learning how to manage it and also having that support system around you, is so important.”
By sharing their journeys, Juanita and Jania hope to encourage others to embrace their conditions, obtain a proper management plan from a doctor or asthma specialist like a pulmonologist or allergist, and contribute to the improvement of asthma awareness and support, not only within the Black community, but for all individuals living with severe asthma.
Read more stories from others like Juanita and Jania on Amgen.com, or visit Uncontrolled Asthma In Black Women | BREAK THE CYCLE to find support and resources.
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LIST HERE.
Don’t forget to also check out the ItGirl Directory, featuring 50 Black-woman-owned marketing and branding agencies, photographers and videographers, publicists, and more.
THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
II. An ItGirl celebrates all the things that make her unique.
III. An ItGirl empowers others to become the best versions of themselves.
IV. An ItGirl leads by example, inspiring others through her actions and integrity.
V. An ItGirl paves the way for authenticity and diversity in all aspects of life.
VI. An ItGirl uses the power of her voice to advocate for positive change in the world.
Let’s make things inbox official! Sign up for the xoNecole newsletter for daily love, wellness, career, and exclusive content delivered straight to your inbox.
You're Catching Feelings For Your Guy Friend. Now What?
Let me just start this all off by saying that I will never be the kind of person who thinks that men and women can’t be friends (or that single people and married people can’t be friends). Choosing friends is about looking into someone’s character and how they complement your life; it should never be about their gender or relational status. Don’t get it twisted, though — in order to properly navigate the dynamic between a man and a woman, there are some things that should be pondered and then discussed.
For instance, is the relationship truly platonic? Even though our culture has reduced that word to simply mean that two people are friends and nothing more, the actual definition is that BOTH individuals do not have any type of sexual interest or attraction at all; that only a spiritual kind of love exists. Is that possible? I have a few male friends where that word applies. I won’t lie, though — most of my (unmarried) male friends are more in the lane of, “You could get it. We just value the friendship too much to explore it”…and no, it hasn’t been “game” whenever they’ve brought it up.
Contrary to the notoriously toxic belief of so many folks out here, not every man has coochie on the brain 24/7 and/or lacks self-control and/or is willing to risk it all in order to get some. In fact, not one man in my life is even remotely that shallow.
Now, that doesn’t mean that I don’t get that the line between just friends and possibly more isn’t a tightrope for some friendships from time to time. Like, what happens if the person who ends up “with a little extra,” as far as emotions go for a friend, ends up being you? Even further, what if that question isn’t even close to being rhetorical because it’s something that you’re experiencing right at this very moment, and you’re not exactly sure what you should do about it?
If that’s the case, have no fear. I think I might be able to offer up a bit of insight that can get you through the (potential) internal stress of what happens when you look up one day and it really does seem like, out of nowhere, you suddenly want your guy friend to become something…more.
What Kind of Friendship Is It?
GiphySo before we talk about anything else, the first thing that you should get clear on is the type of friendship that you’re in. What I mean by that is, although we tend to use “friend” to cover all of the bases of someone who we’re not romantically involved with (or isn’t a relative or we can’t stand — and chile,don’t even get me started on frenemies), the reality is that friendships definitely have levels to them (check out “Always Remember That Friendships Have 'Levels' To Them”).
Like,is he a work friend? Is he a church friend? Is he someone you’ve recently gotten to know over the past couple of months? Is he an online friend? Or is it deeper, like a guy who you’ve been friends with for a couple of years now or someone who you used to have in the friend zone (check out “Before You 'Friend Zone' Someone, Read This.”)? Or — and lawd have mercy, if so — is he your best friend, and you’re starting to see him in a completely different light?
Do you see how, just breaking down some of these friendship dynamics, the situations are quite different? For instance, if you have feelings for a co-worker friend, you’ve got to take into consideration what your work environment will be like if the two of you date and it ultimately doesn’t work out. If he’s an online friend (especially if he’s in another city, state, or country), the risk of potential rejection probably won’t be as impactful as if you have to see him every weekend at church.
If he’s someone you already put into the friend zone, I’m gonna tell you right now that if he has any sort of self-esteem, you’re gonna have to eat a few slices of humble pie to get him to entertain being more than friends (because guys tend to move on once they find out that they fall into that space). And if he’s your best friend? Well, while it probably won’t cost you your friendship, it could make things awkward for a while at best or shift the relationship a bit at worst.
That’s why I definitely think that getting real about the kind of friendship you have with the guy is what you should get mentally cleared up first. Then, we can move on to the next thing.
What Do You Want to Come from the Matter?
GiphyAnyway, because I do have a nice circle of male friends, many of whom are single or divorced, I get asked often if it’s hard to be just friends with them. It’s not because I really like what we have as being friends only. There is a type of intimacy and balance of energies that come from a male-female friendship that you can never get from same-sex ones. I value it all too much to risk it. What I want from my male friends — a certain level of protection (because I’m single), insight from a male perspective, doing things that my female friends may not want to do, etc. — I get…and that’s worth more than seeing if the sex would be bomb or if we should try something more and it end up being a bad decision that we can’t come back from.
That’s me, though. That doesn’t have to be you and your guy friend. For example, what if what you want is to explore a sexual relationship (check out “5 Things You Should Ask Yourself Before Having Sex with A Friend”) because you can’t seem to get sex with him out of your head? For better or for worse, chile, back when I was out in these sex streets, that was pretty much my pattern: sex with close friends (check out “14 Lessons I've Learned From 14 Sex Partners”), and it’s not an impossible feat.
You’ve just got to be real with yourself about whether that’s truly all that you want and if you can handle it gracefully if things don’t go as planned (check out “How To Preserve Your Friendship After BAD Casual Sex”) or the sex is so good that now you can’t decide if you’re into him or just into…it. Oh, and don’t even get me started on if he’s seeing other people (because all you wanted was sex…right?). Yeah, a movie that I like calledSleeping with Other People has a scene where a woman is mad that her casual sex partner is sleeping around. His response was on-point: “Keeping our arrangement doesn’t make me an as-hole, but it does make you a liar.” #checkmate
That’s just one example to emphasize the point that, yes, you need to figure out what you want to come from your more-than-just-friends feelings. Do you just want to get it off of your chest and you’re not sure if you want or need to do anything more than that? Do you want just sex? Would you like to go on a few dates to see ifthe chemistry is mutual? Are you “deeply in” and you’re hoping that he feels the same way so that you two can have a full-blown relationship?
Listen, I have watched enough relationships in my lifetime to know that when it comes to something that needs to be as thoughtfully approached as this, it’s not fair to share your feelings with someone and then expect them to know what you want to come from doing so. You need to know…first. So before bringing it to him, figure it out on your own.
Tell Him the Deal. No Hinting Around.
GiphyAlthough timing and delivery matter, I don’t know one man who isn’t a “straight no-chaser” type of individual. This means no hinting around. No guessing games. No 50 million questions to try and see if he likes you first. I promise you that all of these approaches are off-putting to guys and will get them to mentally and emotionally tap out before you get around to making your point. Besides, if he’s a FRIEND friend, you should be able to express your genuine feelings — and honestly, this is a huge plus to telling him: you will be able to see how mature he is when it comes to handling matters of the heart.
Can there be a reason to not tell your guy friend how you feel? I mean, honestly, if you’re avoiding it, I’m assuming that it’s mostly due to fear, and trying to maintain anything with fear as your “fuel,” ultimately, isn’t going to get you anywhere. Plus, the more that you suppress what is going on inside of you, the more it’s going to alter the energy between the two of you, and that could cause unnecessary stress and strain to where either you start unnecessarily projecting things onto him, or he wants to spend less time around you because you’re making him feel as uncomfortable as you are.
Are there any exceptions to this? Eh. If you’re more like good acquaintances than actual friends, perhaps. Personally, though, I think that solid friendships are rooted in honesty — and how can you claim that you’ve got a healthy friendship with someone if you’re holding something as big back as having feelings for them away from them? Logically, it just doesn’t make much sense.
Prepare Yourself for His Response. And Don’t Penalize the Friendship If He Doesn’t Feel the Same Way.
GiphyOnce you tell him, for the most part, there are three ways that telling him can go: he can like you back, he can want some time and space to consider the possibilities, or he can not be interested. Let’s briefly unpack all three.
Liking you back...
So, what if you tell him how you feel, and he feels the same way (or something close)? My two cents would be for the two of you to still go slowly. Where I’ve seen many mess up is they think that they can go from friend to more-than-friends in two days or less, and that’s super unrealistic. Meaning, someone having feelings for you, too doesn't mean that they can, should, or will automatically stop seeing other people or that you two can or should immediately start becoming intimate.
Take some time to really discuss each other’s feelings, thoughts, and expectations — and what you guys should do trying to move into a different relational space ultimately proves to not be the best thing for one or both of you. If anything should take the “ounce of prevention is worth a pound of cure” approach, it’s friends who are transitioning into something more — or else.
Wanting time and space...
Going from friends to potentially something different is a lot like shifting gears in a car — and if you move too fast, you can strip them. That said, just because you’ve been sitting with your feelings for a while, it’s not fair to want to rush him after he finds out. Whether he wants time and space to figure out how he feels about your feelings or time and space from you altogether — both are warranted.
Should it be for weeks with no contact? Not if he’s a good friend. On the other hand, should you pressure him into making you feel at ease about what he’s just now learning? Eh. You might want to go to another friend to help you out with that. I mean, how would you feel if the shoe was on the other foot? Right…exactly.
He's not interested...
No one likes rejection; that’s real. At the same time, though, it’s not fair to penalize him if he doesn’t feel the same way that you do. Clearly, if he’s your friend (especially a close friend), he adores and values you on some level. However, if that’s not romantically, try and be emotionally mature enough to know and then accept that not wanting all of what you desire from the relationship doesn’t mean that he doesn’t want you in his life at all.
At the end of the day, if it’s too hard to be his friend when you want something else, you’ve got to do what’s best for you. Just make sure that you’re not going to lose a great person in your life because your ego got bruised or your pride couldn’t handle him not reciprocating what you were offering. It’s not fair, and it could end up costing you…A LOT. Take the kind of space you need to redirect your focus. If he loves you, he’ll be there when you get…back.
___
I’ve developed feelings for a friend before; more than once. Was it always easy to work through? Not always. My friendships always survived it, though — whether the feelings were reciprocated or not. And it was because we valued the friendship too much to lose it.
And honestly, I think that is one of the best things to come out of having feelings for a friend: you end up finding out just how solid the bond actually is. And in a world where really good friends are hard to come by…that can never not be a good thing.
Let’s make things inbox official! Sign up for the xoNecole newsletter for daily love, wellness, career, and exclusive content delivered straight to your inbox.
Featured image by FG Trade/Getty Images