Living With PCOS As A Black Woman
Heavy periods, weight gain, mood changes, pain, and acne. Sounds like normal symptoms of that dreaded time of the month, right? Maybe. But it actually could be more than that. It could also be symptoms of a hormonal disorder called polycystic ovary syndrome (PCOS). PCOS is a condition that affects a woman's ovaries. Women who have PCOS often experience irregular periods (infrequent or prolonged) due to PCOS' effect on the reproductive hormones. Doctors aren't exactly sure what causes PCOS and in fact many women don't even know they have it and often chalk the symptoms they are experiencing up to menstrual cycle symptoms.
PCOS affects women of all races and ethnicities who are of reproductive age. In fact, one study's findings "suggests that there are no racial or ethnic influences on the prevalence of PCOS." So, while black women are not necessarily more prone to PCOS, they are often misdiagnosed or misunderstood. "Most of my PCOS warriors are white or Hispanic. I've found that black women have had trouble with their diagnosis. They have no idea that they have it. In the black community, a lot of us aren't even aware of what PCOS is or how to support each other. But as an overall community, we are being recognized more, and more women are doing their research and finding fellow PCOS sisters. We're finding out how to change this stigma of people brushing it off like it's not real," said Alicia W. shared with xoNecole.
September is PCOS Awareness Month and women like Alicia, Mieko, and Tanny are doing their part to educate and bring awareness of the disorder, all while educating women on PCOS. Check out their stories below.
Alicia W.
I remember having severe cramps, like I was on my cycle. Not too long after, I began to think something was wrong. I was trying to Google what was wrong with me until the pain got out of control. It got so bad my boyfriend took me to the emergency room. After arriving at the hospital, I was told that a cyst had ruptured and I was given the diagnosis of PCOS. Before then, I knew something felt a little weird and a little off.
"I was experiencing period symptoms, but they were happening without a period and they were coming more frequently than my period was coming. I brushed off all of those symptoms. I never thought to look into PCOS because I was going to my OB/GYN every year and it never came up."
In terms of treatment, I have been on just about everything you can possibly imagine. So, initially when they diagnosed me, they told me that all I needed to do was lose weight. No medicine, no nothing. I ended up dealing with the same symptoms for two years. I came home and started going to my current OB/GYN. I tried Metformin and it was horrible. It was not for me. It made me sick every time. I even tried to take it off and on along with birth control. But with birth control, my hair growth, also known as hirsutism, was getting worse. I was getting cystic acne and having more pain.
What I'm doing now is Ovasitol. I just started this year and it has been what works best for me by far. It's amazing. Ovasitol is a powder supplement. You mix it in your water or whatever drink you choose. It helps to level out hormones, control cravings, and regulate your cycle. I still have symptoms, but they are more manageable. The only thing you can't really reverse is the hair growth. That's the only thing that has not been managed. Literally after a month of Ovasitol (even without taking it regularly), my period came back after six months of not having one. I also take Goli gummies as well, just as an additional vitamin to help give me some energy in the morning.
"I hope that more black women feel empowered to talk to their doctors about PCOS. As black women, we are completely overlooked because we are traditionally heavier or have more curves. We are immediately told to lose weight which is not the answer for everyone. When we tell them about our symptoms, they attribute it to needing to lose weight. They rarely look into anything else."
One day, I put a little quiz on my Instagram story for women to take to see if they have PCOS symptoms. I received about 35 DMs from black women saying, "Oh my God, I think I have PCOS!" I was thinking what in the world is happening when these women are going to see their doctors? My advice to other women would be to ask questions and be sure they are listening to their bodies. I would also encourage other women to raise awareness because there are so many women out there going through the same thing.
To continue following Alicia's journey, be sure to follow her @lelestyleme.
Mieko B.
After about two years of my partner and I trying to conceive, I finally made an appointment with my OB/GYN and expressed to him my concern of not conceiving. My periods were usually normal. Every now and then, they would be three to five days late but I didn't think too much of it and I also would get painful cramps and heavier cycles with larger than usual blood clots. I also noticed the last few years I've been getting more unwanted body hair which was pretty embarrassing. I even found myself hiding it from my partner.
"It did take a few appointments, bloodwork, HSG, and then finally my laparoscopic and hysteroscopy procedure for my doctor to finally say that it was PCOS. It seemed like my doctor did not want to diagnose me before getting all of those tests done but after doing research myself and matching up some symptoms, that's when I pretty much self-diagnosed myself."
Since I was only diagnosed a month ago, so far I've mainly been focusing on regulating my diet, being that I want to tackle this the most natural way possible. I've cut down on my sugars and white flour. I've increased my omega-3 intake and other supplements. I've also increased the amount of light exercises I do and added more stretching to my regimen.
After being diagnosed with PCOS, the effects have been more emotional than physical. Although I do have physical symptoms more around ovulation and my period, it doesn't affect me as much as the mental side. The emotions of knowing that I have been diagnosed with this and that it will take me more effort to finally conceive, it has become a bit discouraging and I tend to blame myself.
"Every month, for pretty much the past two years, I cry every time my period comes and this was even before officially being diagnosed because I just knew something was wrong. I do feel that I am more prone to have mood swings and I have a major shift in my emotions and little things make me cry easily now."
My words of advice to other black women living with PCOS is to stay strong! When you're dealing with something so personal, you tend to question why this is happening to you. Never blame yourself or beat yourself up over this diagnosis, try your best to come up with a regimen that will specifically help you and your symptoms and stick to it. Most importantly, remember that you are not alone.
To continue following Mieko's journey, follow her @Scxbanx.
Tanny B.
I experienced a wrath of vaginal and hormonal issues that had an impact on my health. I was extremely anxious, moody, had a low libido, dry scalp, skin problems, my periods were irregular or would appear for more than 14 days, and one of the biggest detectors for me was consistent vaginitis due to my hormone imbalances.
"I went from WAP to DAP, had a painful vagina, and recurrent bacterial vaginosis no matter what I did to cure it. I tried at-home remedies, over-the-counter drugs, I even meditated on my vagina but nothing worked."
I visited several physicians until I found one with the patience to investigate my health problems. I was diagnosed with PCOS in 2017, after an extensive hormone and blood test which showed disproportionate hormones and excess in androgen. To this day, it is rare to find a physician to diagnose and provide real PCOS advice. I didn't receive any advice or helpful info after my diagnosis.
After I received my diagnosis, I wasted no time to do my own research on how I could improve my symptoms. At the moment, I take several vitamins and supplements to improve my well-being and fight PCOS symptoms. Myo & D-Chiro Inositol, Vitamin D, Omega-7, a probiotic, a multivitamin, and maca root powder, to name a few. I've realized it's so important to stay active and maintain a PCOS-friendly diet.
I cope with my PCOS roller coaster by venting through my blog vtalksgyn.com. It's the best way to connect with other women and to let other black women know that they are not alone in the fight. I also struggle with low libido which has a direct affect on both my mental and sexual health. For a long time, I had no sexual confidence because I felt like my vagina just didn't work. Throughout the years of experimenting with various supplements, products, foods, and birth control, my symptoms are kept at bay by staying true to my daily regimen. I have a strong support system of friends who work to understand my journey which makes my day-to-day hardships just a little easier.
"When I received the news that I had PCOS, I cried for an entire week and had absolutely no guidance. In my mind, it meant I would never have children and that my vagina was broken. One day, I decided that I would not be defeated by my disorder."
I want to scream, "PCOS is not the final destination!" Take control of your symptoms and become stronger than your excuses! Take one day at a time, listen to your body, and do what makes you feel best. We have to support one another and continue to have these types of conversations so none of us feel alone.
To continue to follow Tanny's journey, be sure to follow her @Vtalksgyn.
Featured image by Shutterstock
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Erica Green is a Clinical Research Associate, blogger, and a sneakerhead. She has a love for all things women and she's pretty sure that women are God's greatest creation. Connect with her on Instagram @ erica_britt_ or www.lovethegspot.com
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LIST HERE.
Don’t forget to also check out the ItGirl Directory, featuring 50 Black-woman-owned marketing and branding agencies, photographers and videographers, publicists, and more.
THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
II. An ItGirl celebrates all the things that make her unique.
III. An ItGirl empowers others to become the best versions of themselves.
IV. An ItGirl leads by example, inspiring others through her actions and integrity.
V. An ItGirl paves the way for authenticity and diversity in all aspects of life.
VI. An ItGirl uses the power of her voice to advocate for positive change in the world.
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Sheila Rashid's Androgynous Approach To Unisex Clothing Is A Lesson In Embracing Individuality
The ItGirl 100 List is a celebration of 100 Black women who aren’t afraid to pull up their own seats to the table.
For Sheila Rashid, it all started with some free-hand drawings and a few strokes of paint.
The Chicago-based clothing designer and creative director of Sheila Rashid Brand recalls using her spare time in high school to hand paint designs on t-shirts and distressed hoodies, distributing them to classmates as walking billboards for her art.
Rashid sought to pursue fashion design at Columbia College in Chicago but eventually took the self-taught route to build upon her knack for crafting one-of-a-kind, androgynous pieces.
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Thanks to the mentorship of local designers taking her under their wings, Rashid was able to gain valuable experience in putting together collections and creating patterns; equipping her with them with the necessary skills to pursue her own collections.
After two years of living in New York, Rashid returned home to the Chi and uncovered the unique flair she could offer the city. “I moved to New York after that because I wanted to be in the fashion capital world,” she tells xoNecole. “That's when I really got a leg up. I found myself when I moved back to Chicago after moving to New York.”
For the Midwest native, inspiration comes from her time around creative peers and the city’s notorious winters — known to be a main character in many Chicagoans stories. “It's a different perspective and mindset when I'm making stuff because of the weather here,” she explains. “When we get summer, it’s ‘Summertime Chi’ — it's amazing. It's beautiful. Still, I find myself always making clothes that cater to the winter.”
"I moved to New York after that because I wanted to be in the fashion capital world. That's when I really got a leg up. I found myself when I moved back to Chicago after moving to New York.”
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Many designers have a signature aesthetic or theme in their creations. In Rashid’s design story, dancing between the lines of femininity and masculinity is how she’s been able to distinguish herself within the industry. Her androgynous clothing has garnered the eye of celebrities like Zendaya, Chance the Rapper, WNBA star Sydney Colson, and more — showing her range and approach to designs with inclusivity in mind.
“I think I do reflect my own style,” she says. “When I do make pieces, I'm very tomboyish, androgynous. My work is unisex because I feel like everybody can wear it. I cater to everybody and that's how I try to approach my clothes.” From denim to overalls, and color-drenched outerwear, Rashid has mastered the structure of statement pieces that tell a story.
“Each collection, I never know what's going to be the thing I'm going to focus on. I try to reflect my own style and have fun with the storytelling,” she shares. “I look at it more like it's my art in this small way of expressing myself, so it's not that calculated.”
"My work is unisex because I feel like everybody can wear it. I cater to everybody and that's how I try to approach my clothes."
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Still, if you were able to add up all the moments within Rashid’s 20-year career in design, one theme that has multiplied her into becoming an “ItGirl” is her confidence to take up space within the fashion industry as a queer, Black woman. “Being an ItGirl is about being yourself, loving what you do, finding your niche, and mastering that,” she says.
No matter where you are on your ItGirl journey, Rashid says to always remain persistent and never hesitate to share your art with the world. “Don’t give up. Even if it's something small, finish it and don't be afraid to put it out,” she says, “It's about tackling your own fear of feeling like you have to please everybody, but just please yourself, and that's good enough.”
To learn more about the ItGirl 100 List, view the full list here.
Featured image Courtesy