You're Not Crazy: Managing An Undiagnosed Illness
Thirteen days is the number of days between my last period. It is slightly depressing, especially since it took me five years to get to the 21 days I enjoyed between each cycle for the past year. It is less about an irregular period and more about the glaring truth that something is wrong with me. Combined with debilitating fatigue, migraines, and a host of gut issues, there is no way to hide from my body's need for a reprieve.
I've tried for many years to figure out what's wrong with me, from doctors to specialists, homeopathic remedies, and following a FODMAP diet - an elimination diet of food that causes gas, bloating, stomach pain, diarrhea, and constipation. I've had some progress, but nothing that sticks. It feels like I'm in a never-ending episode of The Twilight Zone, haunted by an undiagnosed illness.
One thing for sure, I know I'm not crazy. The pain I feel is real.
Now that it's affecting my daily life, I feel more responsible for figuring out the cause. The most menial tasks feel like a mountain of work, and my energy drops so low that all I can do is sleep. My projects and collaborations have suffered as a result of what's going on. As a certified life coach, my job is to help people fix their lives, but what happens when I'm depleted, sick, and tired? Who helps me? I turn to trusted professionals, and I feel let down. I know getting tested offers hope at what might be wrong, but it is not a panacea to managing my symptoms.
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The healthcare system has a history of implicit bias towards patients based on their race and gender. To be a Black woman means my experience with some healthcare professionals has left me thinking whatever I'm feeling is all in my head after I receive negative test results. The Today Show reported the following:
"A 2016 study found that nearly half of first and second-year medical students believed that Black people have thicker skin than white people, and perceived Black people as experiencing less pain than white people, an idea born from 19th-century experiments that were conducted by a (white) physician named Thomas Hamilton."
This is one of the many reasons Black people and people of color feel like their pain is not taken seriously. As a result, some people choose not to share their symptoms with doctors or take matters into their own hands.
When it comes to healing your body, you have to be all in it. There is no all-in-one-type of approach to personal health. It means you are in the driver's seat navigating the path to making conscious decisions to be healthy in mind, body, and spirit. You have the power to ask for more information when discussing your issues with physicians and choosing the best care provider for your needs.
That means it's OK to find another doctor that can communicate better, where you can build mutual trust and respect.
If you are currently undiagnosed and feeling miserable, I see you. I know you can feel overlooked, even with a lot of evaluations. You have to remain hopeful that one day you will find the cause of your pain. Until then, find a support system that recognizes what you're going through and empathizes with it. You could use cheerleaders, people who will cheer you on during tough times. Educate yourself on the symptoms you're experiencing.
I find it extremely helpful to keep a record of my symptoms. No detail is too small, especially when you're early in your journey. You may go down the WebMD rabbit hole, so take everything with a grain of salt. It may also be worth implementing a plan to work around fatigue. I start projects earlier than usual and jot down notes rather than creating big picture messaging, which can take longer and require more focus than I have. It keeps my work current without compromising deadlines. And if you need more time, ask for it, don't wait until the last minute for fear of retribution.
Last but certainly not least, be aware of the seriousness of depression. Although you may not be experiencing symptoms at this moment, depression is one of the most common complications of many chronic illnesses. Be kind to yourself during these moments.
Protect your energy by removing things that don't serve you. Your health is the priority. You cannot help anyone until you take care of yourself.
Featured image by Shutterstock
Ayana Iman is a certified life coach, professional speaker, and mama of one based in New Jersey. She's also known for her love of big hair, travel, and cooking. Find her across social @AyanaIman.
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LISTÂ HERE.
Don’t forget to also check out the ItGirl Directory, featuring 50 Black-woman-owned marketing and branding agencies, photographers and videographers, publicists, and more.
THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
II. An ItGirl celebrates all the things that make her unique.
III. An ItGirl empowers others to become the best versions of themselves.
IV. An ItGirl leads by example, inspiring others through her actions and integrity.
V. An ItGirl paves the way for authenticity and diversity in all aspects of life.
VI. An ItGirl uses the power of her voice to advocate for positive change in the world.
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When discussing the topic of raising children, discipline is often the first thing that comes to mind. Children need discipline. Full stop. But what is discipline? And how do we draw the line between discipline and revenge?
The origin of the word "discipline" can be traced back to the Latin word "disciplina," which means "instruction" or "teaching." Over time, however, discipline has come to be synonymous with punishment, with parents relying on shame, fear, and/or physical pain to curb undesirable behavior.
Teaching takes time, so nipping it in the bud in whatever fashion parents deem necessary (within reason) has become the norm. But is this what’s best for children? And when does it become less about curbing undesirable behavior and more about getting our licks back for offenses we feel our children should know better to do?
In my work as a parenting coach, I’ve often heard parents say, “I asked him nicely three times before spanking him. He didn’t stop doing it until I did, so clearly talking doesn’t work.”
And the parent isn’t wrong. Talking often doesn’t work the first, the third, or the even the 10th time. And the reason is directly tied to brain development.
Children cannot and do not process information the way an adult can. Auditory processing is not fully developed until a child is 14 or 15 years old. And even then, if a child has auditory processing delays or Auditory Processing Disorder (APD), they may always struggle with processing auditory commands. According to Susie S. Loraine, MA, CCC-SLP, the term auditory processing refers to how the brain perceives and interprets sound information. Several skills determine auditory processing ability—or listening success. They develop in a general four-step hierarchy, but all work together and are essential for daily listening.
Without this understanding, discipline can easily become revenge because parents will then view their child’s misdeeds as a personal slight. Instead of teaching them to do better, parents now want to show them the consequences of not doing better. This is why it's imperative for parents to discern between discipline and revenge to maintain healthy relationships with their children.
5 WAYS TO DISTINGUISH BETWEEN PARENTAL GUIDANCE AND RETALIATION:Â Â
​Understanding The Intent
Discipline is rooted in love and concern for the child's well-being. It focuses on teaching lessons and helping children understand the consequences of their actions. Conversely, revenge-driven actions stem from a desire to inflict pain or punishment as payback for perceived slights or disobedience. Parents should reflect on their motives before taking disciplinary actions. Ask yourself whether your intention is to help your child learn or to make them suffer for upsetting you.
Example: If a child accidentally breaks a valuable item, a disciplinary response would involve discussing the importance of being careful and working with the child to come up with a way to replace or fix what they’ve broken. On the other hand, a vengeful reaction might involve yelling, harsh punishment, or bringing up past mistakes to intensify guilt.
​Maintaining Emotional Regulation
Effective discipline requires parents to remain calm and composed, even in challenging situations. It's natural to feel upset or frustrated when children misbehave, but responding with anger or resentment can escalate the situation and blur the line between discipline and revenge. Before addressing the issue, take a moment to breathe and collect your thoughts.
Example: If a child cannot follow instructions, a disciplined response would involve calmly explaining why their cooperation is necessary in working with the child to accomplish the goal. Conversely, a retaliatory response might involve shouting, name-calling, or resorting to physical punishment out of anger.
​Promoting Growth and Learning
Discipline should always aim to promote growth and learning. It involves guiding children toward making better choices and understanding the impact of their actions on themselves and others. Effective discipline strategies include positive reinforcement, setting clear expectations, and providing opportunities for reflection and growth.
Example: If a child repeatedly forgets to complete their chores, a disciplinary approach would involve discussing the importance of responsibility and finding solutions together, such as creating a chore chart or setting reminders with Siri or Alexa. In contrast, a revenge-driven response might involve imposing overly harsh punishments or belittling the child, which can undermine their self-esteem and hinder their ability to learn from their mistakes.
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Building Trust and Communication
Trust and open communication are essential components of a healthy parent-child relationship. Discipline should strengthen this bond by fostering trust and encouraging children to confide in their parents without fear of judgment or retaliation. When children feel safe and supported, they're more likely to accept discipline as a form of guidance rather than punishment.
Example: If a child admits to breaking a rule or making a mistake, a disciplined response would involve listening to their perspective, discussing the consequences of their actions, and working together to find a solution. Conversely, a retaliatory response might involve accusations, blame, or shutting down communication, which can erode trust and damage the parent-child relationship.
Seeking Professional Guidance
Parenting is a learning journey, and, disciplining children is a delicate balance between guiding them toward responsible behavior and nurturing their growth. By understanding the intent behind our actions, maintaining emotional regulation, promoting growth and learning, building trust and communication, and seeking professional guidance when needed, as parents we can help our children built on love, respect, and understanding.
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Featured image by Courtney Hale/Getty Images