The first time that I had ever heard of Be The Match was years ago when Good Morning America co-host Robin Roberts announced her cancer diagnosis.
In the campaign that acted as a 30-second television spot, Roberts said, “I have a chance to survive blood cancer because my big sister answered 'yes' to being my marrow donor. You can join the Be The Match Registry today at BeTheMatch.org, and stand ready to cure someone with a disease like leukemia."
It was a powerful call-to-action that made me feel some type of way about resting on my laurels as opposed to doing what I can for those in need. The potential to be someone's cure really spoke to me. I found myself signing up to register as a donor in the registry shortly after.
But I stopped myself from continuing with the process after receiving some input from my mother who felt that it was a painful process and just something that black people just “don't do". That phrase is something that stops us in our tracks as a community a lot, sometimes to our detriment – that day five years ago was no different.
The Urgent Need for Diversity in Bone Marrow Donors
My encounters with Be The Match came full circle for me the other day when I received an email from a representative who felt like Black History Month would be the perfect time to relay a message to our readers that was a simple, clear, yet resounding, “We need you." Even though Roberts' campaign led to over 40,000 new donors signing up, there is still an undeniable void amongst one group of people in the registry: black people.
Patients are most likely to match a donor that closely shares their ancestry. Black people have historically had the lowest odds of finding a match compared to other populations in the registry. Why? Because…
- Black people have the most diverse genetic tissue types compared to other ethnicities.
- Not enough black people volunteer as bone marrow donors in the registry.
Currently, we only make up 6% of the registry, which is a far cry from the 51% that account for white people in the registry. As the global leader of umbilical cord blood transplants and bone marrow transplants, Be The Match is often the only hope for patients looking to find a cure for blood-related cancers like leukemia and lymphoma, as well as sickle cell anemia, and other anemic/blood disorders. It should be noted that bone marrow is so far the only cure out there for sickle cell anemia.
Since we just make up 6% of donors in the registry, bone marrow transplants that are a match can be hard for many patients to find. And, without access to qualifying donors, a cure is less likely for recipients to find. You would think that if you have siblings, you'd be covered, like in Roberts case where her sister was a match for her and her cancer was cured.
But Roberts is the exception, not the rule. In fact, 70% of patients do not have a fully matched marrow donor in their family, which is why Be The Match is so pivotal to offering a cure to those in dire need of finding a viable marrow transplant, like Shaunise Robinson for example.
The Importance of Be The Match
Shaunise Robinson at an Aplastic Anemia Awareness drive
Shaunise Robinson is a 27-year-old third grade teacher who believes her life purpose is to help children through education. The mother of one (a son who turned 4 this month) is a doctoral-degree candidate at Texas A&M. But this past fall, a fulfilled life took an unexpected turn when in November 2016, Shaunise was officially diagnosed with aplastic anemia, a really rare blood disorder that causes all of her blood counts to be severely low, causing severe fatigue, shortness of breath, a very weak immune system, and profuse bleeding (because blood cannot clot).
Eventually, her bone marrow may not be able to make enough new blood cells, which can lead to many more health problems, including an enlarged heart, irregular heartbeats, heart failure, infections, bleeding, and even death.
Regarding the disorder, Shaunise says:
“They don't know how this happened, they don't know where it came from. In most cases, you'll never really find out how you got it, it just happens. It doesn't run in your family. It has nothing to do with that."
She remembers being in the middle of teaching a class when she got the call that confirmed all her concerns about her health. Earlier in that week, she had gone to her OBGYN and explained an issue she had been having with profuse bleeding. After years of feeling like something was off with her body, but being told again and again that everything was fine, her OBGYN went above and beyond by taking her blood count to find the root of her problems. Tests were ran and her blood counts were revealed to be severely low. She had to rush to the hospital immediately. Doctors believed it was some form of cancer, but after extracting a bone marrow biopsy from her back, they found the real culprit to her health issues: aplastic anemia.
After being connected to a larger hospital, Shaunise was also given the information and connected with Be The Match. She started hosting drives to find a donor and began her journey of raising awareness for the organization and giving a voice to the voiceless, because oftentimes, patients with blood-related illnesses and diseases are young children who can't speak up for themselves.
Shaunise has no donor, can't teach her students (due to potential illnesses she could catch) who miss her as much as she misses them, but she still manages to have an incredible and giving spirit in the midst of her hardship. During my brief call with her, I noticed that her light was undeniable and absolutely radiated, even during a time where most would be overcome by darkness. “I have a lot of faith that I'm going to find a donor and that everything's going to be fine. I feel like I have a purpose and a lot of things I still have to accomplish in life. So, I really don't think negatively about it. I think about it like everything happens for a reason. I'm able to tell people about it that maybe would never have known about it and they're able to join the registry and help someone else. I always think about it that way and that everything happens for a reason and that God's purpose was for me to have this. I don't know the exact reason why, but I know there's a reason why this happened to me."
"I want to make the best of it. I want to raise awareness so that me going through this isn't in vain."
What the Bone Marrow Donation Process Is Really Like
Aside from not knowing about Be The Match, I realized a common theme that stops people from signing up is the fear of the process. People hear the words “extraction", hear about the long needle, hesitance goes into overdrive, and they aren't willing to donate bone marrow at all. I don't blame them, I too fell victim to believing the hype that the procedure was far too painful to endure and thus wiped my hands of the possibility of it. However, former Villanova University defensive back CJ Logan sang a different tune for me.
The now 23-year-old New York-based financial advisor was on the Villanova University football team back in the spring of 2013 when he signed up for the registry. At the time, he was on a football team led by Coach Talley, who believed in giving back to the community in any way that they could and who had a close personal connection to the message of the Be The Match foundation.
After submitting a cheek swab for the registry, CJ wouldn't get a call about a bone marrow donation until two years later in the fall of 2015, during his senior year. He got a follow-up email detailing that he and two other people could potentially be a match for a patient in need of a transplant. He went to a nearby hospital where they drew some extra blood. “About a week or so later, they told me, 'Hey, you're the definite match. Are you interested in doing it? Can you come in?' I was like, 'Absolutely'," he says with a smile in his voice, “As far as I was concerned, if it was my mom or my sister in that position – because I was donating to a 33-year-old international woman – I definitely wish that someone who had the opportunity to make a difference would step up and do it."
CJ Logan after his donation to a bone marrow transplant recipient
The morning of December 15, 2015, CJ went in for surgery to begin the bone marrow donation procedure. “I came in early - 5:30, 6 am. I gave some more blood. I talked to the nurses. I met the surgeon who was going to do the operation. I relaxed. Like an hour and a half later, I remember them talking to me and (after that) I just (remember that I) woke up. It was because of the anesthesia," he laughs. “It was very quick. Afterwards, I stayed in the hospital just because. The following morning, Coach Talley had one of the assistant coaches pick me up from the hospital."
Despite the intimidating length of the needle, CJ said he felt no pain at all during his procedure because of the drugs he was given. In fact, the only pain he felt was more like a soreness in his back for the first couple of weeks post-surgery and said the discomfort was comparable to losing a game to Delaware and the “battle wounds" that'd include. “It was a little stiff. But with that being said, I didn't think it was too discouraging. If anybody were to get a call saying they were a match, I would 100% encourage them to do it."
"I never thought that as an individual that I could make that big of an impact on someone else's life."
It being all about the bigger picture was a recurring theme in both conversations I had with Shaunise and CJ, just told through different perspectives. Although he didn't know much about the woman who recieved the life-changing donation, he felt blessed to be able to change and extend someone's life and that was louder than any fear. "It's a blessing. If there were any doubts about me making it to heaven prior to that surgery, I hope that secured it," CJ shares with a laugh, "But no, honestly, it was a remarkable experience, because I never thought as a single person, as an individual, that I could make that big of an impact on someone else's life. So that's definitely something that I carry with me."
The Bottom Line
In response to anyone who still might have reservations about joining the registry, Shaunise states, "One of the biggest things right now is the registry isn't that diverse. I'm an African-American. You have to find a donor that represents your DNA. My best match is going to be someone who shares my ancestry, an African-American. The problem is, African-Americans represent 6% of the registry. Hispanics represent 10%. Asians represent 6%, so if you are of a diverse background, we're not really represented in the registry. This could happen to anybody. I'm 27 years old. I was healthy. I was active my whole life. This happens to anyone, little kids. I met this two-year-old girl. I can't imagine being a child going through this. For people who are hesitant, we have to think beyond that. We need to help each other."
Shaunise Robinson's story was exactly the thing that I needed to remember how much good could happen from the smallest thing. Registering is simple and to the point, the donation process is straightforward and includes anesthesia, and the end result is saving someone's life who might otherwise not have a solution to what's slowly killing them or making them ill. I was reminded of the power of community and again the ripple effect that comes with doing the right thing. Not to mention the good karma.
"If you are of a diverse background, we're not really represented in the registry. This could be anybody."
I think as black people we need to make ourselves present in all spaces, especially spaces where there is a demand for diversity. It's great that we're on more television shows, that we can shout FUBU anthems from the mountain tops, and that we can shop black, but we also need to make sure that we show our faces in these places and uplift our community health-wise as well. Shaunise and CJ are right, it could be any of us.
I hope to someday be the match for someone in need. Until then, I am an active member of the registry, on-call to be a donor at any time for anyone. At least, until I'm 65.
So, will you join the registry?
This article is in partnership with Sensodyne.
Our teeth are connected to so many things - our nutrition, our confidence, and our overall mood. We often take for granted how important healthy teeth are, until issues like tooth sensitivity or gum recession come to remind us. Like most things related to our bodies, prevention is the best medicine. Here are five things you can do immediately to improve your oral hygiene, prevent tooth sensitivity, and avoid dental issues down the road.
1) Go Easy On the Rough Brushing: Brushing your teeth is and always will be priority number one in the oral hygiene department. No surprises there! However, there is such a thing as applying too much pressure when brushing…and that can lead to problems over time. Use a toothbrush with soft bristles and brush in smooth, circular motions. It may seem counterintuitive, but a gentle approach to brushing is the most effective way to clean those pearly whites without wearing away enamel and exposing sensitive areas of the teeth.
2) Use A Desensitizing Toothpaste: As everyone knows, mouth pain can be highly uncomfortable; but tooth sensitivity is a whole different beast. Hot weather favorites like ice cream and popsicles have the ability to trigger tooth sensitivity, which might make you want to stay away from icy foods altogether. But as always, prevention is the best medicine here. Switching to a toothpaste like Sensodyne’s Sensitivity & Gum toothpaste specifically designed for sensitive teeth will help build a protective layer over sensitive areas of the tooth. Over time, those sharp sensations that occur with extremely cold foods will subside, and you’ll be back to treating yourself to your icy faves like this one!
3) Floss, Rinse, Brush. (And In That Order!): Have you ever heard the saying, “It’s not what you do, but how you do it”? Well, the same thing applies to taking care of your teeth. Even if you are flossing and brushing religiously, you could be missing out on some of the benefits simply because you aren’t doing so in the right order. Flossing is best to do before brushing because it removes food particles and plaque from places your toothbrush can’t reach. After a proper flossing sesh, it is important to rinse out your mouth with water after. Finally, you can whip out your toothbrush and get to brushing. Though many of us commonly rinse with water after brushing to remove excess toothpaste, it may not be the best thing for our teeth. That’s because fluoride, the active ingredient in toothpaste that protects your enamel, works best when it gets to sit on the teeth and continue working its magic. Rinsing with water after brushing doesn’t let the toothpaste go to work like it really can. Changing up your order may take some getting used to, but over time, you’ll see the difference.
4) Stay Hydrated: Upping your water supply is a no-fail way to level up your health overall, and your teeth are no exception to this rule. Drinking water not only helps maintain a healthy pH balance in your mouth, but it also washes away residue and acids that can cause enamel erosion. It also helps you steer clear of dry mouth, which is a gateway to bad breath. And who needs that?
5) Show Your Gums Some Love: When it comes to improving your smile, you may be laser-focused on getting your teeth whiter, straighter, and overall healthier. Rightfully so, as these are all attributes of a megawatt smile; but you certainly don’t want to leave gum health out of the equation. If you neglect your gums, you’ll start to notice the effects of plaque buildup, which can irritate the gums and cause gingivitis, the earliest stage of gum disease. Seeing blood while brushing and flossing is a tell-tale sign that your gums are suffering. You may also experience gum recession — a condition where the gum tissue surrounding your teeth pulls back, exposing more of your tooth. Brushing at least twice a day with a gum-protecting toothpaste like Sensodyne Sensitivity and Gum, coupled with regular dentist visits, will keep your gums shining as bright as those pearly whites.
What's a classic manicure look getting a fall 2023 aesthetic update? Look no further than the micro-French nails that are trending this fall. Minimal nail art ideas are in, and the super thin lines within the micro-French nail trend scream minimal chic when it comes to nail design choice.
If you're wondering exactly what to request from your nail tech, according to Cosmopolitan, there's been "a rise in micro-French manis on square nail shapes." And if you are in need of a little nail inspo to bookmark for your next appointment, we have you covered on that front, too.
Keep scrolling for design ideas for your future set of micro-French nails.
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