

The first time that I had ever heard of Be The Match was years ago when Good Morning America co-host Robin Roberts announced her cancer diagnosis.
In the campaign that acted as a 30-second television spot, Roberts said, “I have a chance to survive blood cancer because my big sister answered 'yes' to being my marrow donor. You can join the Be The Match Registry today at BeTheMatch.org, and stand ready to cure someone with a disease like leukemia."
It was a powerful call-to-action that made me feel some type of way about resting on my laurels as opposed to doing what I can for those in need. The potential to be someone's cure really spoke to me. I found myself signing up to register as a donor in the registry shortly after.
But I stopped myself from continuing with the process after receiving some input from my mother who felt that it was a painful process and just something that black people just “don't do". That phrase is something that stops us in our tracks as a community a lot, sometimes to our detriment – that day five years ago was no different.
The Urgent Need for Diversity in Bone Marrow Donors
My encounters with Be The Match came full circle for me the other day when I received an email from a representative who felt like Black History Month would be the perfect time to relay a message to our readers that was a simple, clear, yet resounding, “We need you." Even though Roberts' campaign led to over 40,000 new donors signing up, there is still an undeniable void amongst one group of people in the registry: black people.
Patients are most likely to match a donor that closely shares their ancestry. Black people have historically had the lowest odds of finding a match compared to other populations in the registry. Why? Because…
- Black people have the most diverse genetic tissue types compared to other ethnicities.
- Not enough black people volunteer as bone marrow donors in the registry.
Currently, we only make up 6% of the registry, which is a far cry from the 51% that account for white people in the registry. As the global leader of umbilical cord blood transplants and bone marrow transplants, Be The Match is often the only hope for patients looking to find a cure for blood-related cancers like leukemia and lymphoma, as well as sickle cell anemia, and other anemic/blood disorders. It should be noted that bone marrow is so far the only cure out there for sickle cell anemia.
Since we just make up 6% of donors in the registry, bone marrow transplants that are a match can be hard for many patients to find. And, without access to qualifying donors, a cure is less likely for recipients to find. You would think that if you have siblings, you'd be covered, like in Roberts case where her sister was a match for her and her cancer was cured.
But Roberts is the exception, not the rule. In fact, 70% of patients do not have a fully matched marrow donor in their family, which is why Be The Match is so pivotal to offering a cure to those in dire need of finding a viable marrow transplant, like Shaunise Robinson for example.
The Importance of Be The Match
Shaunise Robinson at an Aplastic Anemia Awareness drive
Shaunise Robinson is a 27-year-old third grade teacher who believes her life purpose is to help children through education. The mother of one (a son who turned 4 this month) is a doctoral-degree candidate at Texas A&M. But this past fall, a fulfilled life took an unexpected turn when in November 2016, Shaunise was officially diagnosed with aplastic anemia, a really rare blood disorder that causes all of her blood counts to be severely low, causing severe fatigue, shortness of breath, a very weak immune system, and profuse bleeding (because blood cannot clot).
Eventually, her bone marrow may not be able to make enough new blood cells, which can lead to many more health problems, including an enlarged heart, irregular heartbeats, heart failure, infections, bleeding, and even death.
Regarding the disorder, Shaunise says:
“They don't know how this happened, they don't know where it came from. In most cases, you'll never really find out how you got it, it just happens. It doesn't run in your family. It has nothing to do with that."
She remembers being in the middle of teaching a class when she got the call that confirmed all her concerns about her health. Earlier in that week, she had gone to her OBGYN and explained an issue she had been having with profuse bleeding. After years of feeling like something was off with her body, but being told again and again that everything was fine, her OBGYN went above and beyond by taking her blood count to find the root of her problems. Tests were ran and her blood counts were revealed to be severely low. She had to rush to the hospital immediately. Doctors believed it was some form of cancer, but after extracting a bone marrow biopsy from her back, they found the real culprit to her health issues: aplastic anemia.
After being connected to a larger hospital, Shaunise was also given the information and connected with Be The Match. She started hosting drives to find a donor and began her journey of raising awareness for the organization and giving a voice to the voiceless, because oftentimes, patients with blood-related illnesses and diseases are young children who can't speak up for themselves.
Shaunise has no donor, can't teach her students (due to potential illnesses she could catch) who miss her as much as she misses them, but she still manages to have an incredible and giving spirit in the midst of her hardship. During my brief call with her, I noticed that her light was undeniable and absolutely radiated, even during a time where most would be overcome by darkness. “I have a lot of faith that I'm going to find a donor and that everything's going to be fine. I feel like I have a purpose and a lot of things I still have to accomplish in life. So, I really don't think negatively about it. I think about it like everything happens for a reason. I'm able to tell people about it that maybe would never have known about it and they're able to join the registry and help someone else. I always think about it that way and that everything happens for a reason and that God's purpose was for me to have this. I don't know the exact reason why, but I know there's a reason why this happened to me."
"I want to make the best of it. I want to raise awareness so that me going through this isn't in vain."
What the Bone Marrow Donation Process Is Really Like
Aside from not knowing about Be The Match, I realized a common theme that stops people from signing up is the fear of the process. People hear the words “extraction", hear about the long needle, hesitance goes into overdrive, and they aren't willing to donate bone marrow at all. I don't blame them, I too fell victim to believing the hype that the procedure was far too painful to endure and thus wiped my hands of the possibility of it. However, former Villanova University defensive back CJ Logan sang a different tune for me.
The now 23-year-old New York-based financial advisor was on the Villanova University football team back in the spring of 2013 when he signed up for the registry. At the time, he was on a football team led by Coach Talley, who believed in giving back to the community in any way that they could and who had a close personal connection to the message of the Be The Match foundation.
After submitting a cheek swab for the registry, CJ wouldn't get a call about a bone marrow donation until two years later in the fall of 2015, during his senior year. He got a follow-up email detailing that he and two other people could potentially be a match for a patient in need of a transplant. He went to a nearby hospital where they drew some extra blood. “About a week or so later, they told me, 'Hey, you're the definite match. Are you interested in doing it? Can you come in?' I was like, 'Absolutely'," he says with a smile in his voice, “As far as I was concerned, if it was my mom or my sister in that position – because I was donating to a 33-year-old international woman – I definitely wish that someone who had the opportunity to make a difference would step up and do it."
CJ Logan after his donation to a bone marrow transplant recipient
The morning of December 15, 2015, CJ went in for surgery to begin the bone marrow donation procedure. “I came in early - 5:30, 6 am. I gave some more blood. I talked to the nurses. I met the surgeon who was going to do the operation. I relaxed. Like an hour and a half later, I remember them talking to me and (after that) I just (remember that I) woke up. It was because of the anesthesia," he laughs. “It was very quick. Afterwards, I stayed in the hospital just because. The following morning, Coach Talley had one of the assistant coaches pick me up from the hospital."
Despite the intimidating length of the needle, CJ said he felt no pain at all during his procedure because of the drugs he was given. In fact, the only pain he felt was more like a soreness in his back for the first couple of weeks post-surgery and said the discomfort was comparable to losing a game to Delaware and the “battle wounds" that'd include. “It was a little stiff. But with that being said, I didn't think it was too discouraging. If anybody were to get a call saying they were a match, I would 100% encourage them to do it."
"I never thought that as an individual that I could make that big of an impact on someone else's life."
It being all about the bigger picture was a recurring theme in both conversations I had with Shaunise and CJ, just told through different perspectives. Although he didn't know much about the woman who recieved the life-changing donation, he felt blessed to be able to change and extend someone's life and that was louder than any fear. "It's a blessing. If there were any doubts about me making it to heaven prior to that surgery, I hope that secured it," CJ shares with a laugh, "But no, honestly, it was a remarkable experience, because I never thought as a single person, as an individual, that I could make that big of an impact on someone else's life. So that's definitely something that I carry with me."
The Bottom Line
In response to anyone who still might have reservations about joining the registry, Shaunise states, "One of the biggest things right now is the registry isn't that diverse. I'm an African-American. You have to find a donor that represents your DNA. My best match is going to be someone who shares my ancestry, an African-American. The problem is, African-Americans represent 6% of the registry. Hispanics represent 10%. Asians represent 6%, so if you are of a diverse background, we're not really represented in the registry. This could happen to anybody. I'm 27 years old. I was healthy. I was active my whole life. This happens to anyone, little kids. I met this two-year-old girl. I can't imagine being a child going through this. For people who are hesitant, we have to think beyond that. We need to help each other."
Shaunise Robinson's story was exactly the thing that I needed to remember how much good could happen from the smallest thing. Registering is simple and to the point, the donation process is straightforward and includes anesthesia, and the end result is saving someone's life who might otherwise not have a solution to what's slowly killing them or making them ill. I was reminded of the power of community and again the ripple effect that comes with doing the right thing. Not to mention the good karma.
"If you are of a diverse background, we're not really represented in the registry. This could be anybody."
I think as black people we need to make ourselves present in all spaces, especially spaces where there is a demand for diversity. It's great that we're on more television shows, that we can shout FUBU anthems from the mountain tops, and that we can shop black, but we also need to make sure that we show our faces in these places and uplift our community health-wise as well. Shaunise and CJ are right, it could be any of us.
I hope to someday be the match for someone in need. Until then, I am an active member of the registry, on-call to be a donor at any time for anyone. At least, until I'm 65.
So, will you join the registry?
Visit Be The Match today and find out ways how to be of service to people fighting blood-related illnesses and diseases and how to support the cause by joining the bone marrow registry.
Devale Ellis On Being A Provider, Marriage Growth & Redefining Fatherhood
In this candid episode of the xoMAN podcast, host Kiara Walker talked with Devale Ellis, actor, social media personality, and star of Zatima, about modern masculinity, learning to be a better husband, emotional presence in marriage, fatherhood for Black men, and leading by example.
“I Wasn’t Present Emotionally”: Devale Ellis on Marriage Growth
Devale Ellis On Learning He Was a ‘Bad Husband’
Ellis grew up believing that a man should prioritize providing for his family. “I know this may come off as misogynistic, but I feel like it’s my responsibility as a man to pay for everything,” he said, emphasizing the wise guidance passed down by his father. However, five years into his marriage to long-time partner Khadeen Ellis, he realized provision wasn’t just financial.
“I was a bad husband because I wasn’t present emotionally… I wasn’t concerned about what she needed outside of the resources.”
Once he shifted his mindset, his marriage improved. “In me trying to be of service to her, I learned that me being of service created a woman who is now willing to be of service to me.”
On Redefining Masculinity and Fatherhood
For Ellis, “being a man is about being consistent.” As a father of four, he sees parenthood as a chance to reshape the future.
“Children give you another chance at life. I have four different opportunities right now to do my life all over again.”
He also works to uplift young Black men, reinforcing their worth in a world that often undermines them. His values extend to his career—Ellis refuses to play roles that involve domestic violence or sexual assault.
On Marriage, Family Planning, and Writing His Story
After his wife’s postpartum preeclampsia, Ellis chose a vasectomy over her taking hormonal birth control, further proving his commitment to their partnership. He and Khadeen share their journey in We Over Me, and his next book, Raising Kings: How Fatherhood Saved Me From Myself, is on the way.
Through honesty and growth, Devale Ellis challenges traditional ideas of masculinity, making his story one that resonates deeply with millennial women.
For the xoMAN podcast, host Kiara Walker peels back the layers of masculinity with candid conversations that challenge stereotypes and celebrate vulnerability. Real men. Real stories. Real talk.
Want more real talk from xoMAN? Catch the full audio episodes every Tuesday on Spotify and Apple Podcasts, and don’t miss the full video drops every Wednesday on YouTube. Hit follow, subscribe, and stay tapped in.
Featured image by YouTube/xoNecole
My personal relationship with birth control pills is a bit of an odd one. Back when I first became sexually active (I started having sex with my first boyfriend a couple of months shy of 19), I took them for a couple of months, didn’t like how they made me feel, and so I quit using them altogether (and got pregnant almost immediately after). The rest of my adult life, I stayed off of the pill and pretty much only used condoms (and even then, not consistently — SMDH).
And yet here I am, now, all these years later, back on them again: surprise, surprise.
These days, it's for a completely different purpose, though. Now that I am in the hopefully latter stages of perimenopause (I’m not sure because my mother had a full hysterectomy at 29, her mother died at 53 and I don’t deal with my paternal grandmother because…chile… ) — although I have always had relatively easy cycles and I could definitely set my watch to them, about two years ago, my periods started to show up whenever they felt like it and it was damn near a crime scene once they did.
It was driving me crazy, and so, my nurse practitioner recommended that I take progestin-only pills to shorten, if not completely stop, my cycle: “After a year or so, we can wean off and see if you are entering into menopause on your own.” (Whew, perimenopause, chile.)
Although the first five months of being on this particular pill made me wonder if it was worth it to take this approach, I actually re-upped for another 12-month cycle because the extra progestin (a synthetic form of progesterone) has benefitted me in other areas as well because I am sleeping more soundly and my weight is more stabilized (by the way, when these things are “off,” they are signs of low progesterone levels). However, I did ask my nurse practitioner if, once I do decide to wean off of the pill, would there be any issues.
Her response is what inspired me to write this article because, until she said “post-birth control syndrome” to me, I had no idea there was such a thing. Anyway, if you give me a sec, I’ll explain to you what it is and why you should care if hormone-related birth control is currently a part of your life.
Yes, Post-Birth Control Syndrome Is a Very Real Thing
Okay, so it’s important to always remember that the way that birth control works is it “manipulates” your hormones so that you can significantly reduce your chances of conceiving. This means that taking them could result in some side effects including nausea; weight gain; headaches; irregular periods and/or spotting; increased stress; depression; blurry vision; breast tenderness, and/or a lowered libido.
That said, even though birth control pills are basically 99 percent effective (when taken correctly and consistently), if the side effects that you are experiencing are making you close to miserable, you should absolutely share that with your healthcare provider because…what’s the sense in preventing pregnancy when you don’t even feel up to having sex because you don’t feel good or your sex drive is shot? More times than not, your provider can find you another pill brand or option that will help you to feel more like yourself.
With that out of the way, think about it — if going on the pill can produce side effects, why would going off of it…not? And this is where post-birth control syndrome comes in.
For the most part, it’s what can happen to your body once you decide to come off of birth control. Typically, the symptoms will last anywhere between 4-6 months and, although the symptoms seem to present themselves most intensely as it relates to going off of the pill, any hormone-related birth control (like IUDs, injections, patches, the ring or implants) could produce similar outcomes.
Outcomes like what?
- Irregular cycles
- Breakouts
- Excessive gas and/or bloating
- Weight gain
- Anxiety and/or depression
- Fertility issues
- Migraines and/or headaches
- Shifts in your libido
- Sleeplessness/restlessness
- Hair loss
Whoa, right? And if a part of you is wondering, “Okay, if this is indeed the case, why have I not heard of this syndrome before?” It’s because it’s not a term that conventional method uses nearly as much as alternative medicine does. Still, it makes all of the sense in the world that if your body has to adjust to an uptick in hormonal intake, it would also need to adjust to removing those extra doses of hormones from your system as well. COMMON. DAMN. SENSE.
Anyway, if you were thinking about taking a break from birth control and taking all of this in has you feeling a bit…let’s go with the word “trepidatious” about doing so, I totally get it. There are some things that you can do to make experiencing post-birth control syndrome either a non-issue or a far more bearable one, though.
7 Home Remedies That Can Make Coping with Post-Birth Control Syndrome Easier
1. Take a multivitamin.Something that’s fascinating about what going off of birth control can do is it sometimes has the ability to lower your nutrition levels as it relates to certain vitamins and minerals; this is especially the case when it comes to vitamins B, C, E and minerals like magnesium, selenium and zinc. So, if you don’t currently take a multivitamin, now would be the time to start (along with consuming foods that are particularly high in those nutrients as well).
2. Up your vitamin D intake. Speaking of nutrient levels, a vitamin level that commonly drops after going off of birth control isvitamin D. This is hella critical to keep in mind as a Black woman since many of us tend to be naturally deficient in the vitamin as-is and vitamin D is important when it comes to fighting off diseases, regulating weight and keeping your moods stabilized (for starters). So, make sure that your multivitamin has vitamin D in it. Also make sure to consume vitamin D-enriched foods like fatty fish, eggs, mushrooms, yogurt and fortified orange juice.
3. Drink herbal teas. Since going off of birth control will cause your hormones to be all over the place for a season, consider drinking some herbal teas that will help to stabilize them. Black cohosh contains phytoestrogen properties, Chasteberry can help to level out your prolactin levels and green tea can help your hormones out by helping to balance out your insulin (which can sometimes directly affect them).
4. Keep some ibuprofen nearby. The headaches and migraines? Until those subside, you and ibuprofen are probably going to become really good friends; although I will add that ginger tea and inhaling essential oils like chamomile and lavender can help to ease migraine-related symptoms too.
5. Do some meditating. Waiting for your hormones to get back on track can be stressful as all get out. That said, something that can get your cortisol (stress hormone) levels to chill out is to meditate. If meditation is new for you, check out “7 Meditation Hacks (For People Who Can't Seem To Do It).”
6. Get massages. As if you needed an excuse to get a massage, right (check out “12 Different Massage Types. How To Know Which Is Right For You.”)? However, there is some evidence to back the fact that regular massages (somewhere around once a month) can help to lower your stress, boost your dopamine, increase blood flow and drain your lymphatic system so that you will have more energy.
7. Sleep/rest more. There is plenty of scientific research out here which says that sleep deprivation can throw your hormones out of whack — and since your hormones are already trying to stabilize themselves, you definitely need to get 6-8 hours of sleep and not feel the least bit guilty about taking naps sometimes too.
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Post-birth control syndrome may not be the most pleasant thing about getting off of birth control yet it is manageable. So, now that you know all about it, you can feel more confident about taking a birth control break (or getting off altogether) — without the surprises that can come with doing it. Give thanks.
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