I remember the day of my wedding…when I started feeling my contraception ring coming out of my vagina. I had only recently started using the ring even though I was more used to taking the pill. There I was in the bathroom stall with one of my bridesmaids, and she was literally helping to guide my ring back up into my vagina because I could feel it slipping out of me. Although quite embarrassing, let's just say that we're forever bonded by that experience. So, have you ever tried a new birth control method that wasn't the best for you but it seemed to work well for others?
During a recent interview with Board Certified Obstetrician & Gynecologist, Dr. Chimsom Oleka, she provided a list of all of the birth control methods currently available, which can potentially serve as a starting point for those of you who may be exploring new contraceptive methods.* As you continue reading, you'll notice that the list is organized based on what Dr. Oleka refers to as Short-acting (hormonal and non-hormonal), to Long-acting, to Barriers of Protection.
Before we dive into the list, let's first clarify specifically what birth control does. As. Dr. Oleka explained, for most methods, birth control releases certain hormones in your body which contributes to the ultimate end goal: block ovulation or keep an egg from being released, thicken the mucus in the cervix so that sperm can't pass through, and/or thin the lining of the uterus, which decreases chances of implantation. Each birth control method is designed to do each or all of these things, but depending on the method, they will either do them better, worse, or not at all.
Choosing The Best Birth Control Method For You
SHORT-ACTING BIRTH CONTROL METHODS
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Note: Throughout this section, you will notice references related to "continuous" or "extended" usage. As Dr. Oleka explained, many of us have a false idea of what the period is supposed to do. Contrary to popular belief in terms of what our menstrual cycle does and why it's "necessary" every month, ultimately its main purpose is for pregnancy. That's it.
As Dr. Oleka expertly pointed out, "It's the birth control's period, not your period. Your birth control will start stimulating the lining and doing all of the things that cause you to bleed." So, as long as you have a hormone that's assisting with protecting and keeping your uterus lining thin, and as long as you've consulted your physician beforehand, then you don't have to necessarily worry about shedding the lining every month (i.e. having a period).
Consider, for example, women who have bleeding disorders (i.e. their bodies bleed too much or won't stop bleeding), female athletes, as well as those who may suffer with things such as menstrual migraines…situations like these support the case for continuous or extended methods.
Method: Birth Control Pill (Hormonal - Estrogen and Progesterone)
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How It's Administered: Self-ingested orally, daily
Efficacy: 7 to 9% failure rate (i.e., approximately 1 in 10 will get pregnant)
Description & Overview:
Birth control pills usually come in 28-day pill packs (four rows of seven pills) including a week of placebo, non-active pills. There are different variations as well, but it's critical that you take it every day at the same time.
The most commonly used pill has both estrogen and progesterone. With estrogen, it tends to help provide more stability of the lining. However, some people may not want estrogen or they may have an underlying medical issue that conflicts with the estrogen. There is a risk of blood clots, although fairly low, but the risk of this goes up when you're pregnant. With the pill, it helps regulate the bleeding, which in turn, helps make it predictable. It's known to have protective benefits such as helping to decrease risk of certain cancers and it can help reduce symptoms related to fibroids.
Also, you can use this method, as well as other methods, continuously or in an extended way so that you can delay or skip the bleeding (i.e. going on vacation). For example, if you wanted to try an extended use, then you could delay the withdrawal bleeding (period) for a set number of weeks or months by skipping the last row for let's say two months. Then, you would take the last row of inactive pills the third month, so that you would only bleed approximately every 10 weeks.
On the other hand, if you're someone who decides "I don't want to bleed at all," then you could skip the last row of inactive pills and move forward with starting the new pack each month. Keep in mind, if you don't bleed or you bleed too heavily already, there may be other medical issues going on, so as always, you'll want to consult your physician about this.
Side effects can vary, but some of the most common side effects include: nausea, breast tenderness, and initial irregular bleeding.
Method: Birth Control Pill (Hormonal - Progesterone Only)
How It's Administered: Self-ingested orally, daily
Efficacy: 7 to 9% failure rate
Description & Overview:
This method basically works pretty much the same as the first pill mentioned above, but it doesn't include estrogen. It only includes progesterone.
Progesterone-only pills can be harder for some women to use because you have to be really consistent. If the daily pill ingestion time is missed by as little as three hours, then it loses its efficacy. Hence, it's critical that you take the pill every day at the same time.
With the progesterone-only pill, there's also a greater chance of irregular bleeding. Hence, this method is usually recommended by the physician if there are estrogen-related conflicting medical issues.
Method: Vaginal Ring (Hormonal – Estrogen and Progesterone)
Michael Kraus/Shutterstock
How It's Administered: Self-inserted through Vagina
Efficacy: 7 to 9% failure rate
Description & Overview:
The vaginal ring is a soft, flexible ring approximately two inches wide and four centimeters thick that is self-inserted and removed in/out of the vagina. Some women will tie a string to the ring and there's also an applicator that can be used to assist with insertion and removal.
The vaginal ring stays in for three weeks and releases hormones every day. Once removed for seven days, it allows withdrawal bleeding (period) to occur. Then, a new ring is inserted every four weeks. This method can be used continuously if you bypass the seven days and move forward with inserting the new ring every three or four weeks, or in an extended way if you bypass the seven days every few months or so.
The ring has been known to cause breakthrough or irregular bleeding. Not to mention, there are times when the ring can slip out during sex, which of course can directly impact the efficacy.
Method: Progesterone-Only Shot (Hormonal - commonly referred to as “Depo”, short for Depo Medroxyprogesterone Acetate)
How It's Administered: Injected in arm by physician
Efficacy: 6% failure rate
Description & Overview:
The progesterone-only shot is usually injected every three months (or every 11 to 13 weeks). Although the failure rate is approximately 6%, that's also related to the fact that patients are late with getting their scheduled shot.
Depo is known to decrease bone mineral density (contributes to the risk of fractures) within the first two years, but you start to recover it within 30 months after you stop taking it.
Also, because the shot can linger in your system up to nine months after your last shot (not the efficacy), it has the propensity to delay the return to your normal fertility state.
Some of the most common side effects include weight gain with research showing that it can act as an appetite stimulant.
Method: The Patch (Hormonal – Estrogen and Progesterone)
Michael Kraus/Shutterstock
How It's Administered: Self-adhesive
Efficacy: 7 to 9% failure rate
Description & Overview:
The patch is a small, square-shaped band-aid like adhesive or patch that can be applied to your upper arm, abdomen, or butt. You receive a new patch every three weeks and the fourth week is when you're patch free to allow for withdrawal bleeding.
This method is not recommended for extended or continuous cycles like with the pill and ring because it has higher levels of estrogen, which means increased risk for blood clots. Also, if you have sensitive skin or you're prone to breakouts and rashes, then you may want to avoid this method as well.
The patch can cause irregular or breakthrough bleeding or no bleeding at all depending on the individual. During the first few months of use, you may experience that as well as nausea, but it usually improves over time.
Method: Family Planning (Non-hormonal)
How It's Administered: N/A - Personal planning and scheduling
Efficacy: Up to 40% failure rate
Description & Overview:
There are a variety of options as it relates to family planning including: use of calendars, basal body temperature, cervical mucus, and more. There are a lot of useful tracking apps that can help with these methods as well.
Family planning can be taught and is a pretty well-accepted method. However, it can only be used if you have a regular cycle. Also, it has a very high failure rate because it requires extensive tracking and managing certain records such as time, ovulation, and temperature. So, you have to be extremely detailed-oriented, organized, and highly motivated to be successful with family planning. Otherwise, it can be extremely overwhelming for some people.
Due to the excessive planning and stringent scheduling, it can potentially decrease sexual spontaneity and/or convenience.
LONG-ACTING BIRTH CONTROL METHODS
Method: IUD (Hormonal - Progesterone Only)
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How It's Administered: Inserted vaginally by physician (through opening of cervix, into the uterus)
Efficacy: Less than 1% failure rate
Description & Overview:
The IUD has varying brands (Mirena has been around the longest), costs, and dosages. The IUD is a small, t-shaped plastic piece, approximately 3 cm in size, although the size can vary as well. In addition to women who have had children, the IUD can be used in teenagers as well as women who have not have had babies.
Remember, this is a longer-acting method, so this is ideal for someone who wants to hold off on having children for a longer period of time.
Some of the most common side effects include insertional discomfort (I'm a personal witness to this) and irregular bleeding although it tends to help those who suffer from painful periods and heavy flow. The longer you leave it in, the less likely you'll bleed.
Method: Copper IUD (Non-hormonal)
How It's Administered: Inserted vaginally by physician (through opening of cervix, into the uterus)
Efficacy: Less than 1% failure rate
Description & Overview:
Similar to the IUD previously mentioned, the copper IUD is a latex-free, t-shaped, plastic piece but it also includes areas of exposed copper. By releasing copper salts into your body, the copper tricks the uterus into thinking something foreign is inside, creating an appearance of a "chaotic" environment in your system, which ultimately blocks sperm and prevents reproduction. It can last for 10 years, but it has been known to be effective for up to 12 years.
The copper IUD is ideal for someone who doesn't want to deal with hormones, or someone who is certain they don't want children for a long time. There are instances where it can be used as emergency contraception but it won't work if something has already been implanted.
Because this method doesn't affect ovulation, this method is also ideal for women who want to continue bleeding or women within certain cultures where the idea of contraception isn't readily accepted. This can serve as contraception method without anyone else truly knowing that you're taking it because you will still have a period as normal.
The most common side effects usually include more painful cramping or heavier bleeding.
Method: Contraceptive Implant (Hormonal – Progesterone Only)
Michael Kraus/Shutterstock
How It's Administered: Implanted in arm by physician
Efficacy: Less than 1% failure rate (the most effective method)
Description & Overview:
The contraceptive implant is a flexible, plastic rod that's placed inside the upper arm. It's small and thick - approximately 4 cm long and 2 mm thick. It releases hormones daily, and lasts for three years, although recent data shows it may last longer than that. After three years, you get a new one if you choose to do so. Otherwise, you will return back to your baseline fertility.
Some of the most common side effects can include irregular bleeding, no bleeding (approximately 6%), or heavier bleeding. For those who experience irregular bleeding, there are ways to decrease it and make it more manageable. Also, there are rare occasions where, if placed improperly, it can shift or migrate.
BARRIERS OF PROTECTION** BIRTH CONTROL METHODS
The most common effects for any of the following methods can include vaginal discharge and irritation. After the use of these, the return to fertility is usually fairly quick.
As it relates to a lot of these barriers of protection, Dr. Oleka likes to think of it this way, "Condoms should be used more so for STD and HIV/AIDS protection, and less for pregnancy prevention." Nevertheless, they are still considered methods for both pregnancy and STD/HIV prevention.
Method: Male Condom (Non-hormonal)
Michael Kraus/Shutterstock
How It's Administered: Applied by male on his penis
Efficacy: 15% failure rate (research across the board states this although it seems quite questionable by both the expert and the writer)
When to Apply: Right before sex
Description & Overview:
Condoms are usually latex or you can opt for lambskin if you're allergic to latex. However, anything non-latex has been known to be less effective in preventing pregnancy as well as STDs. With condoms, common things like inconsistent use, slippage during sex, and the risk of it tearing are a few factors that can directly impact the overall efficacy.
Method: Female Condom (Non-hormonal)
How It's Administered: Self-inserted vaginally
Efficacy: 21% failure rate
When to Apply: Right before sex
Description & Overview:
Similar to the male condom, the female condom has a thick ring that's used for placement within the vagina along with the pouch that goes in when it's time to have sex. There's also a thin ring that goes outside of the vagina. With this method, proper placement is just as important because it helps prevent condom slippage during sex. Also, the male condom should not be used when the female condom is used because it can cause tearing.
Method: Diaphragm
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How It's Administered: Self-inserted vaginally
Efficacy: 16% failure rate
When to Apply: Up to six hours before sex.
Description & Overview:
The Diaphragm is reusable silicon disk that's self-inserted through the vagina. Similar to the cervical cap, it should be inserted up to six hours before you have sex and should remain in your vagina at least six hours after sex. A spermicide should also be used in conjunction with the diaphragm to help ensure efficacy. It's also possible for the diaphragm to become dislodged during sex.
Method: Cervical Cap (Non-hormonal)
How It's Administered: Self-inserted vaginally
Efficacy: 14 to 20% failure rate
When to Apply: Up to six hours before sex
Description & Overview:
The cervical cap is a reusable silicone rubber cup that sits on the cervix while you're having sex. Think of it as a "hat" that comes in different sizes and sits on your cervix. It's usually inserted into the vagina up to six hours prior to sex, it should remain in there for at least six hours after sex (and can remain there up to 48 hours). Of note, it only works if used with a spermicide. There's usually only one brand available in the United States.
One thing to consider is proper placement of the cap, and making sure you're comfortable with putting it in your vagina. Also, if you've already had a baby, then you'll have a higher risk of contraception failure.
Additionally, here are a few things Dr. Oleka suggests women should consider before choosing a contraceptive:
- What are your chances of getting pregnant with this method (efficacy)?
- What do you want your bleeding profile to look like (i.e. how often do you want your "withdrawal bleeding" or menstrual cycle to occur)? How will this affect my bleeding profile?
- What does your lifestyle look like (i.e. will it be difficult to remember to take the pill every day versus another option that may not require as much involvement)?
- What are your priorities? What does the timeline for trying, starting, or growing your family look like?
- How long do you want it to be in effect or control?
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As always, Dr. Oleka reminds everyone to be sure and consult your physician* when deciding on a method because hormones affect individuals differently. Not to mention, there's certain criteria and health/risk factors that doctors review and consider when determining contraception needs for their patients.
With most methods, efficacy is usually effective within a week or so, but to be safe, Dr. Oleka suggests giving the new contraception at least a month or two to allow enough time to confirm efficacy on your side and to see how well your body reacts to it.
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Shonda Brown White is a bestselling author, blogger, life coach, and brand strategist. When she's not jumping out of a plane or zip lining, she's living the married life with her husband in Atlanta, GA. Connect with her on social @ShondaBWhite and her empowering real talk on her blog.
'It's Not All In Your Head': How Four Black Women Finally Got The Answers They Needed About Fibroids
If someone had told me I’d be working toward my third fibroid surgery in less than six years, I would have had a hard time believing them. First, because obviously, no one wants to ever hear the word "surgery" (unless it’s cosmetic surgery you’re opting for). But the more significant reason is I’d never heard any of the women in my life talk about fibroids, so the idea of having all of the complex issues because of them, on top of surgeries, was truly a foreign concept.
After my doctor told me I’d need a second surgery in March of 2023—a hysteroscopic myomectomy—after bleeding every day for over six months, I was over it. Not just over the symptoms. But I was done feeling siloed on an island dealing with the pain, feeling tired all the time, and the heaviness of what felt like endless trips to the doctor for ultrasounds, blood transfusions, blood count checks, MRIs, etc.
I would try to explain what I was feeling, and my pain was written off because I guess period pain is just supposed to be normal. I’m here to tell you it is not. And because we’ve been conditioned to just deal, that’s the way things should stay. Yeah, no.
What is a hysteroscopic myomectomy? Hysteroscopic myomectomy is the most minimally invasive procedure to treat fibroids. A surgeon removes fibroids by inserting a hysteroscope into the uterine cavity through the vagina and cervix.
So, I wrote and directed an animated short film to bring educational and entertainment value to helping the world learn about fibroids. With $25,000 of my own money, I went forth and made the film titled Super High: A Period Piece. Now, it’s making its rounds on the festival circuit, even gaining entry into two Oscar-qualifying festivals: the Chicago International Film Festival and the New Orleans Film Festival. We even won Best Narrative Short at the Morehouse Human Rights Film Festival in Atlanta.
As I was venturing onto the festival circuit, my editor asked me to write a piece highlighting the experiences of Black women with fibroids. Initially, I planned to highlight up to 15 stories. However, as I started working on this story, I thought hearing the experiences more in-depth would be equally impactful. So, we chatted with four women about their fibroid journeys.
The one thing we all had in common, which made me sad but also made me feel seen, was that none of us knew much about them beforehand. However, our willingness to openly share our stories will hopefully change that for many women now and beyond.
Keep reading for four women’s stories about their journey with fibroids.
Rosco Spears, artist and creative director
Before your journey with fibroids, did you know much about them?
Before my journey with fibroids, I didn't know much about them. I'd never heard of fibroids until women around me started getting diagnosed. I was dealing with heavy, painful periods long before I was privy to any of these diagnoses.
Shortly before I was officially diagnosed with having fibroids (2012), I learned that my sister and other women in my family also had fibroids. As I've grown older, I've learned that my three sisters, many cousins, aunts, etc, have also had fibroids. It's simply an issue that was never discussed.
How did you find out you had fibroids?
I found out that I had fibroids while living in NYC. I was fed up with the pain and discomfort from my period, so I shopped around until I got an answer that I thought made sense. I met a wonderful woman doctor who finally diagnosed me, and she offered me several options for easing the discomfort. During this time, I would often bleed between periods.
In 2013, one of my "in-between" moments was more than the spotting that I was used to, so I took myself to the emergency [room]. I learned that my hemoglobin [levels] were at seven, and the doctors wouldn't let me leave the hospital without getting a blood transfusion. They also highly recommended that I get surgery to remove the fibroids. Once I officially got the diagnosis, it was scary, but it also felt amazing to know that I could begin planning a path forward.
What are hemoglobin levels? To ensure adequate tissue oxygenation—a very important complex dance between the lungs, blood, and cardiovascular system—a sufficient hemoglobin level has to be maintained. The normal Hb level for women is 12 to 16 g/dl. Low hemoglobin levels mean your body isn’t getting enough oxygen, which is why you feel very tired and weak.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I've had two abdominal myomectomies, one in 2013 (16 fibroids were removed) and another in 2020 (51 fibroids were removed). I was nervous about the idea of being cut open during the myomectomy, but I didn't think that the outcome could be any worse than the pain that I was already dealing with. Both surgeries went just as planned (aside from the 2nd surgery being rescheduled due to COVID-19), and my recovery from both was amazing.
In 2013, I was a bit unhinged. I went location scouting for a photo shoot for The Lip Bar three days after I got home from the hospital. My family was very upset, but I honestly felt fine. I had some abdominal pain, but within two weeks, I was back in the studio on my feet all day. After my second surgery, the plan was to try and have a child shortly after recovery. I took my time with healing and did things according to the book.
What is a myomectomy? A myomectomy is surgery to remove uterine fibroids. There are several types of myomectomies, but the procedure you and your doctor decide is right for you will depend on factors like location, number, and size of your fibroids.
How did you feel post-treatment? How has getting treatment changed your quality of life?
I felt/feel amazing post-treatment! For about 2-3 years after both surgeries, my periods were much lighter, and the pain was light [and] much more bearable than it was with the fibroids. My quality of life is much different post-surgery.
There have been years [when] I simply did not have any energy while I was on my period. The most I could do was get up to go to the bathroom and get right back in bed. Or I'd have to carry a change of clothes with me when traveling to work because I couldn't afford to take off during my period, but I knew that at some point, I would bleed through everything. So, in that regard, life is beautiful. I'm no longer passing out, nor do I feel the need to bring an extra set of pants along on the ride.
While my quality of life has improved tremendously, I often joke and say that I have PTSD from having bad periods. What I mean is that I still check my pants often when I'm on my period. And I still get anxiety if I'm in public and I'm on day two or three of my period because who knows if it is just a little blood that I feel coming down or it's a huge clot that's going to ruin my pants. And I still know better than to try and wash my hair on my heavy days because there isn't enough energy to do both.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
You got this, sis! It's a difficult journey, but please seek advice from other women on the journey. If one doctor is not giving you sufficient information, find a new doctor. Make sure you're exploring all of the options for fibroid removal/shrinking treatments [because] it is not one size fits all. And take your iron supplements, boo.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
Oh God, if I could pay women to share their fibroid stories, I would. It's imperative that we talk with one another about our experiences in health. I shared my fibroid story years ago because I was so lost when I was on my journey. One of my sisters had the surgery before I did, but other than her, I didn't have anyone to talk to about fibroids.
I felt very alone, isolated, and somewhat embarrassed because it felt like this wasn't happening to anyone else around me. It makes a world of difference when you can talk with someone about an issue they are also facing. We will learn a lot more by discussing shared experiences—much of which you cannot learn from talking to your doctor or Google.
La-Anna Douglas, women’s advocate and motivational speaker
Before your journey with fibroids, did you know much about them?
Being someone who started my period at the age of 10, I was in the dark when it pertained to fibroids and other reproductive health issues. I had never heard of fibroids, and I didn’t know that the pain I was experiencing, along with fertility delays, was because of the fibroids sitting in between my two uteruses. The pelvic pain, excruciating periods, fatigue, and protruding belly to someone else would have been a dead giveaway. But I had no idea what was going on with my body. I also did not know of anyone in my family dealing with fibroids.
How did you find out you had fibroids?
I was diagnosed with fibroids by a reproductive endocrinologist [and] was finally properly diagnosed after suffering for 16 years. I finally found a doctor willing to listen to my concerns and, most of all, believed that I wasn’t making it up. She scheduled me for a thorough examination, and I was soon scheduled for laparoscopic surgery. I was diagnosed with three fibroids, endometriosis, and a uterus didelphys (two uteruses and two cervixes).
Uterus didelphys is a rare congenital condition where you're born with two uteruses. It's commonly called a double uterus.
Again, I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. I would have cramps for 3-4 days on my left side of my belly and then cramps for 3-4 days on my right. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus. When I heard all of the different diagnoses, I was angry, overwhelmed, scared, and confused. But the worst thing is that I was unprepared mentally and emotionally for the diagnosis and the journey ahead.
"I was misdiagnosed for years, and my pain was minimized. I was labeled as the girl with bad periods. In actuality, I was having two periods from two different uteruses with three fibroids pressing on my wombs with endometriosis wrapped around my fallopian tubes and my uterus."
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I was told not to worry about removing the fibroids surgically after being diagnosed in my 20s back in 2008. But in 2020, during the pandemic, my pain started to escalate again. So, I was scheduled for an ultrasound, an MRI, and then a double-balloon procedure. I was told that my fibroids had grown and they were contributing to the secondary infertility I was experiencing. My doctor gave me two options. Would I rather have a hysterectomy?
I had already gone through 30 years of horrible periods, eight years of infertility [and] finally having a miracle baby in 2013 by God’s grace, and I had already gone through multiple procedures. Or I could do the robotic laparoscopic myomectomy, where they would remove the fibroids and open my two cervixes by also doing a hysteroscopy. At first, [I] wanted to do a hysterectomy, but [after] talking to my family and praying about it, I decided on having the robotic laparoscopic myomectomy. I was a little nervous but knew I was in good hands.
What is a laparoscopic myomectomy? A laparoscopic myomectomy is a minimally invasive procedure to remove uterine fibroids. A surgeon makes four tiny incisions in your abdomen and then uses a laparoscope, which is a special instrument that contains a light and video camera, to operate through the incisions.
How did you feel post-treatment? How has getting treatment changed your quality of life?
Post-treatment, I felt relieved and grateful. The healing journey was okay. I had a lot of support from my family, especially my husband. After the healing, [I am] loving on my body because the many scars on my belly are my beauty marks. I started to get more confident in who I was. The doctor who did the robotic laparoscopic myomectomy believed that I would get pregnant again.
Well, six months after the surgery, I became pregnant with our second miracle baby girl after eight years of secondary infertility at the age of 40. And to think, [had] I decided on the hysterectomy, she would not be here. Our surprise baby has brought so much happiness to our family.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
For anyone just beginning their fibroid journey, my advice would be to advocate for yourself no matter what the diagnosis may be. Your voice matters, and you control your narrative. If the doctor is not listening to you or your concerns, you have every right to seek a second, third, fourth, or as many opinions as you wish until you are heard and properly cared for. KNOW YOUR WORTH!
[And,] to always love on yourself through the journey with fibroids and anything else you may be going through. YOU ARE ENOUGH. The physical scars and the invisible scars are your beauty marks. And share with others how you are feeling and what you are going through. Please do not suffer in silence!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
It is so important that we share our journey with fibroids because there is power in supportive stories. We all must realize that we are not alone. There are so many of us who have similar situations going on or may be feeling the same feelings you may be feeling.
Sharing your story also helps to heal those hurts that happen on the road to diagnosis. Healing taps into the strength that has been lying dormant inside of us, and when that strength is ignited, there is nothing that can stop you from advocating for yourself and others who begin to share their stories with you.
Dawn Heels, award-winning fibroid advocate and campaigner
Before your journey with fibroids, did you know much about them?
I knew absolutely nothing about fibroids apart from the fact that my mum had one (she found out when she was pregnant with me), but even with this information, she didn't know anything about them.
How did you find out you had fibroids?
I had always suffered [from] extremely heavy, painful periods. I thought [this] was normal, [so] I didn't link it to the fact that something could be wrong with me. I first discovered I had fibroids after experiencing constant pain in the left-hand side of my abdomen in 2016. During an ultrasound scan, I was told I had 2 x 4 cm fibroids by the sonographer.
Two types of ultrasound scan can be used to help diagnose fibroids: an abdominal ultrasound scan – where the ultrasound probe is moved over the outside of your tummy (abdomen) a transvaginal ultrasound scan – where a small ultrasound probe is inserted into your vagina.
I hadn’t a clue what they were, and when I went back to see my doctor, he told me that I had nothing to worry about because fibroids were common, normal, and I should deal with any pain with a hot water bottle and ibuprofen. And because he told me I had nothing to worry about, at that moment, I didn’t worry.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
Over the next six years, my pain and suffering got worse. I displayed horrendous fibroid symptoms: bum cheek pain, leg pain, painful, heavy, clotty periods, lower back pain, extreme pain, abdominal/pelvic pain, early pregnancy symptoms, tiredness, ‘preggo belly,’ painful sex, long periods and was infertile. I finally saw a consultant who changed my life, as he was the first person to listen to me and put a plan in place.
"He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy."
He transvaginally scanned me and told me I actually had at least six fibroids, the biggest being the size of a grapefruit, and with that, I would have to have an open myomectomy. I cried so many tears because I thought if I was to ever have an operation that resembled the C-section, I would be giving birth to a baby, not tumors! The operation was a success, and he removed 16 fibroids and left 2 in to give me a chance at conceiving. I lost a lot of blood and had an emergency blood transfusion one week later.
After eight weeks of healing, I started to feel much better.
How did you feel post-treatment? How has getting treatment changed your quality of life?
The open myomectomy gave me my life back—a good quality of life. I wasn’t in pain anymore. My periods were shorter and significantly lighter, and best of all, I fell pregnant six months after surgery!
What is an open myomectomy? An abdominal, or open, myomectomy removes fibroids through an incision in the abdomen, typically on the bikini line. The recovery time generally lasts up to six weeks.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
Educate yourself on the condition so you can guide the conversation and ask relevant questions when going into your consultations. Advocate for yourself, too! Too many of us will just agree to all sorts of nonsense just because the medical professional says so! You are the expert over your own body, so speak up!
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I became an ‘accidental’ advocate because I shared my story. My inbox was inundated with messages from other ladies who had suffered or were currently suffering. That’s how powerful a share is.
Camille Austin, model and content creator
Before your journey with fibroids, did you know much about them? For example, did you know what symptoms to look out for?
I did not know much, if not anything at all. So, I did not know what symptoms to look out for.
Did you know if anyone in your family had ever dealt with them?
Yes, my mother, but she was already going through menopause, so our symptoms did not seem comparable.
How did you find out you had fibroids?
[I went] to my primary care physician, who is also a WOC. She performed a pelvic exam, and when I told her about all of my symptoms, she thought it was fibroids. It took a while and [was] frankly [an] annoying process to finally get to an MRI where they found three fibroids, one the size of 15cm.
And how did you feel once you got the official diagnosis?
I felt relieved and scared—scared about what this meant about my fertility. [But,] relieved that I had answers and I was going to get better.
If you're comfortable, we'd love to hear about your treatment. Did things go as planned? Were you nervous about what your doctor suggested?
I had to have surgery due to the size [of my fibroid.] I had an open and laparoscopic procedure done and was on the table for eight hours. I did not initially trust my surgeon as she wanted to jump straight into a hysterectomy. Common practice says that the only way to stop them from ever coming back is through a hysterectomy, which I find to be a bit extreme. To me, it sounds like it's just under-researched, and not enough efforts are being made because this largely impacts WOC, but I digress.
"My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened."
My surgeon thought because I'm so young, healthy, and strong, she did not put me on a hospital list, which gives another doctor the ability to treat me overnight should something happen. Well, something happened. I found out I'm allergic to Dilaudid (a common pain med). I broke out and had a third-degree chemical burn around my stomach from the adhesive, and my skin completely broke out. There was not a doctor available to give me even so much as a Benadryl to ease the discomfort. Nurses can't prescribe meds.
It wasn't until I threatened to leave the hospital—I got up and packed my bags—that I received a pink Benadryl pill after waiting for about 6 hours. About a week after I got home, I broke into a fever and was septic. I was rushed back to the hospital and had to spend an additional four days. In short, the healing process did not go according to plan.
After your difficult hospital experience and healing journey, how did you feel post-treatment? How has getting treatment changed your quality of life?
After treatment, I felt so much better after everything was said and done. I would still get the surgery if I had to do it again. When I eventually healed, my periods were shorter. I could fit my clothes again, and I just had more energy to do things since I was not as anemic.
For someone just starting their fibroid journey, what are two pieces of advice you'd give them?
[First,] push for that MRI sooner than later. If you catch them when they are small, you can look into non-invasive ways to get rid of them.
Make sure your doctor has a hospital list, and ask who will be in charge of taking care of you when your doctor is not around.
What does an MRI mean for fibroids? An MRI uses a magnetic field and radio waves to create computerized, 3D images of the uterus. These images can help your doctor decide which treatment is best for you and rule out other issues like adenomyosis and endometriosis.
How important do you think it is for us to share our fibroid stories with each other and talk about this openly?
I think it's important because we can all learn from each other, and this is not just becoming a "woman over 30" problem. According to my doctors, I was far too young, and due to my age, this was something that went unnoticed. Frankly, it should not have been a far stretch because I have fibroids in my breast tissue as well, but somehow, no correlation has been made.
So we have to press the issue, so hopefully, we can look into why this is happening to so many women and not allow a hysterectomy to be the first response.
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From Shrinking To Shining: Shelah Marie's Journey To Becoming Unapologetically ‘Unruly’
A significant part of becoming a woman is developing a deep understanding of who we truly are.
However, societal expectations to be kind, meek, and palatable often stifle our boldness before it fully emerges. For author, content creator, and women’s wellness influencer Shelah Marie, growing up as the only Black person in her household and often feeling pressured to shrink herself ultimately motivated her to embrace her most authentic, confident, and "unruly" self—the version she proudly embodies today.
Her upcoming book, Unruly: A Guide to Reclaiming Your True Self, serves as a guide for women on the journey of embracing their complexities and contradictions through radial forgiveness. A process that Shelah came to understand at an early age. “I had a crash course in identity politics growing up,” she tells xoNecole. After her parents divorced, her mother, who’s white and Cuban, remarried a white man, and they had a daughter together. This resulted in Shelah being raised in a predominately white household, prompting questions about her own identity.
“What I was starting to understand, in its infancy, were identity politics and how we perform race, gender, and ultimately perform who we are,” she says. “The good news is that I could pull from my acting background; the best actors don't perform for an audience, they perform authentically in front of an audience.” With this insight, Shelah combined her self-development journey with her creative path, showing other women the power of reclaiming their lost parts to unlock their main character energy.
Credit: Greg Castel
The concept of "main character energy" has become a popular colloquium, as it invites us to reflect on how we show up in our own lives. It’s the idea of taking charge of your own narrative, stepping into the spotlight, and living with authenticity and confidence as if you’re the protagonist of your story. For Shelah, coming into this energy came from the realization that she had been playing the role of a side character in her own life.
“A lot of women are socialized to be neat, to fit into a box, to be pleasant, to be polite, and ultimately, to think about others before we think about ourselves and how we affect everyone else,” she shares. “But sometimes that's at the expense of us being true to ourselves.”
This can manifest as internalized pressure to be "good"—to stay quiet, and avoid being too loud, too disruptive, or too opinionated. But this tendency to shrink ourselves for the comfort of others can mean that we don’t live fully or authentically, making the shift into main character energy tantamount to our growth.
But how do you tap into your main character energy? While Shelah shares that the process doesn’t happen overnight, committing to the journey of getting to know yourself on a deeper level and “becoming friends with yourself,” is the first step.
“Everybody you've ever been lives within you,” she explains. “Every time you have a major transition, you birth a new version of yourself that is able to exist in that transition, but those other versions don't disappear. They still stay in you.”
Shelah Marie 'Unruly'
"Everybody you've ever been lives within you. Every time you have a major transition, you birth a new version of yourself that is able to exist in that transition, but those other versions don't disappear."
When we begin to honor the complex parts of ourselves, observe them without judgment, and not view them as something “negative,” we can start to integrate those aspects into our lives more authentically.
“When I know these things, then I can direct them like a director,” she continues. “I can call the show and tell them to come on stage or exit. I can move them like an ensemble within myself.”
She adds, “It's not that I disown parts of myself, judge them, or think that they're bad and make them go away. No, it's just that we can work together for my highest good, as opposed to them begging for attention and causing me to act out in ways that are not productive.”
In recognizing that she was reenacting old narratives in her relationships, she realized she had been seeking validation and acceptance from places that were outside of herself. This moment of clarity empowered her to take control of her own self-worth, committing to doing whatever it took to heal the deepest relationship any of us can have with anyone: the one we have with ourselves.
Credit: Greg Castel
“What I learned is that I was looking for something that I can only give to myself,” she says. “I took it as a stance of power and this is an opportunity for me to never be in this situation quite like this again, and whatever I have to do to get there, I will do.”
While society often sends messages aimed at Black women to shrink their presence, Shelah hopes that readers of Unruly open themselves up to more possibilities and give themselves permission to grow beyond societal limitations. After all, “You get to choose.”
Unruly: A Guide to Reclaiming Your True Self is out on Oct. 22.
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Featured image by Greg Castel