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Today, June 19th, is World Sickle Cell Awareness Day.


From Tionne "T- Boz" Watkins, a singer in the girl group TLC, to Prodigy, a rapper and former member of the hip-hop duo, Mobb Deep, there are over 2 million sickle cell patients in the United States.

Sickle cell disease (SCD) is a red blood cell disorder that changes the shape of the red blood cells. The cells are supposed to be disc-shaped, but SCD changes them into a crescent, or sickle, shape. The sickle-shaped cells can stick to vessel walls, causing blockages that can slow or completely stop the flow of blood.

1 in 13 Black or African-American babies is born with the sickle cell trait (SCT) and sickle cell disease (SCD) affects approximately 8 percent of African-Americans.

Although the narrative of sickle cell anemia is often accompanied by sympathy and heartbreaking images, three strong women, who are a part of the Sikcell Twitter Community, are seeking to change the narrative by sharing their stories. With The Warrior Series, photographer Bukky Adeyokunnu wants to show the world that they are warriors, not victims to their disease.

They are more than a statistic. Check out their stories of truth and triumph below.

Bukky

"For me, I wanted to capture how it's an invisible sickness. You see me and I look completely normal – I go to work, I work out just like everyone else. When I go ghost due to crisis pain, I often hear, 'But you don't look sick,' which is exactly how I want to live my life. I've never let it define who I was and what I was capable of doing. [My] resilience and faith in God I've developed are my secret weapons." - Bukky Adeyokunnu, Portrait Photographer, Creative Director and former Obama White House Intern

Have you been tested for the sickle cell disease genotype? Learn more about SCD testing here.

 

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