Today, June 19th, is World Sickle Cell Awareness Day.
From Tionne "T- Boz" Watkins, a singer in the girl group TLC, to Prodigy, a rapper and former member of the hip-hop duo, Mobb Deep, there are over 2 million sickle cell patients in the United States.
Sickle cell disease (SCD) is a red blood cell disorder that changes the shape of the red blood cells. The cells are supposed to be disc-shaped, but SCD changes them into a crescent, or sickle, shape. The sickle-shaped cells can stick to vessel walls, causing blockages that can slow or completely stop the flow of blood.
1 in 13 Black or African-American babies is born with the sickle cell trait (SCT) and sickle cell disease (SCD) affects approximately 8 percent of African-Americans.
Although the narrative of sickle cell anemia is often accompanied by sympathy and heartbreaking images, three strong women, who are a part of the Sikcell Twitter Community, are seeking to change the narrative by sharing their stories. With The Warrior Series, photographer Bukky Adeyokunnu wants to show the world that they are warriors, not victims to their disease.
They are more than a statistic. Check out their stories of truth and triumph below.
Beatrice
"Being born with Sickle Cell Anemia has its ups and downs. This disease has humbled me, and through that humility, I've developed a better spiritual relationship with God. My image represents a fighter who wins. Yes, I may fail and go through pain, but during those times, I know I can do all things through Christ who strengthens me. I fight through it, refusing to stay stagnant, and walking equipped with the full armor of God. He never said that we will not go through pain, but rather He will be with during rough times (Isaiah 41:10) This picture represents me being an individual born with Sickle Cell Anemia, fighting, and winning!" - Beatrice Adinlewa, MBA. Owner of Bee Hollywood Studio, LLC
Bukky
"For me, I wanted to capture how it's an invisible sickness. You see me and I look completely normal – I go to work, I work out just like everyone else. When I go ghost due to crisis pain, I often hear, 'But you don't look sick,' which is exactly how I want to live my life. I've never let it define who I was and what I was capable of doing. [My] resilience and faith in God I've developed are my secret weapons." - Bukky Adeyokunnu, Portrait Photographer, Creative Director and former Obama White House Intern
Princess
"Living with Sickle Cell Anemia is not easy, but I don't let that stop me. The saying, 'What doesn't kill you makes you stronger' is very true in my life. Ultimately, the goal is awareness on the social and medical front. Sickle cell disease is considered an orphan disease and primarily affects minorities. As such, it is often neglected by the medical community and lacks funding from the government and other sources. Lack of funding means that medical professionals are unable to conduct extensive research to further understand the disease or space to be innovative in treatment. On the social front, people need to be aware of their genotype and have a better understanding of what it mean to have the trait and the disease." - Princess Salau, Nursing student at Prince George's College
Have you been tested for the sickle cell disease genotype? Learn more about SCD testing here.
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It's easy for couples to fall into a routine, going through the motions and letting their connection sit on autopilot. While comfort is natural in a long-term relationship, it’s important to remember: that what you don’t nurture, eventually fades. So, why not make 2025 the year you reset your relationship? Here’s how to start the year with a renewed bond, reigniting the spark that brought you together.
Step 1: Schedule Your Reset Meeting
The first step to hitting the reset button is a State of the Union meeting with your partner. This is your chance to take a pulse on the relationship, discuss what's working, and identify areas that need attention. It’s all about creating space to reflect, without distractions.
Grab a pen and paper (or open a shared note on your phone) and come prepared to share your top 2-3 desires for your relationship.
What do you both want to feel more of in 2025? Maybe it’s feeling more appreciated, or perhaps you want to reignite the passion you had when you first started dating. Whatever it is, get clear about it, and make sure both of you are on the same page.
This isn’t just about listing your own wants, it’s also about discussing ways to nurture each other’s needs. Relationship goals should be focused on fostering deeper intimacy, trust, and mutual respect. Use this time to check in, not only with each other but with your individual feelings and expectations. Set the foundation for a fulfilling year ahead.
Alistair Berg/Getty ImagesStep 2: Set A Date (Or Multiple!)
Having the meeting is only the first step. Now, it’s time to take action. One of the simplest ways to breathe new life into a relationship is by reintroducing consistent, intentional time spent together. For many couples, life gets busy, and date nights fall by the wayside. But dating doesn’t stop when you say "I do"—in fact, it’s even more essential.
During your reset meeting, lock in a regular date night that works for both of your schedules. This could be a weekly dinner date or an every-other-week adventure—whatever keeps things fresh. The goal is consistency. It’s easy to push date nights aside when life gets hectic, but if you set a specific date each week or month, you’re making your relationship a priority.
If you’re unsure what to do for your date nights, don’t worry! The key is creating new experiences together. This is what sparks excitement and brings you closer as a couple. Whether it’s cooking a new recipe together, trying a dance class, or exploring a nearby town, it’s about creating shared memories that build your connection.
Getty ImagesStep 3: Find an Accountability Partner
Just like you might have a personal trainer to help you crush your fitness goals, an accountability partner for your relationship can do wonders for keeping both of you on track. Consider hiring a marriage coach or therapist—someone who can meet you where you are and guide you in strengthening your relationship.
When selecting a professional, it’s important to choose someone who truly wants the best for your marriage and can provide actionable advice.
Don’t be afraid to set high standards for your relationship, and seek guidance on how to keep it thriving for the long haul. In your reset meeting, discuss your commitment to growth, and be honest about areas where you may need support.
Marriage isn’t a set-it-and-forget-it endeavor—it’s an ongoing process. Regular check-ins with a professional can help keep your relationship in tip-top shape and “divorce-proof” by addressing issues before they become insurmountable.
DMP/ Getty ImagesStep 4: Try Something New Together
Stale routines can easily make a relationship feel monotonous. Spice things up by trying something new! Couples that explore new activities and create new memories together have stronger, more fulfilling bonds.
My husband and I host one of the top luxury marriage retreats, A Weekend For Love, designed to help couples experience new things together. From couples' workshops to outdoor adventures, the retreat provides a platform to rediscover each other and reconnect on a deeper level.
The element of surprise can reignite your connection. It’s exciting, fresh, and shows your partner that you’re committed to growing together. This doesn’t have to be a huge commitment—it could be as simple as trying a new hobby or planning an impromptu weekend getaway.
Your Relationship Should Be A Priority
As you start the year with personal goals in mind, don’t forget the importance of nurturing your relationship. It’s easy to get caught up in work, fitness, and family obligations, but your bond with your partner deserves to be at the top of your list. Resetting your relationship offers an opportunity to reignite that spark and remind each other why you fell in love in the first place.
In 2025, make a commitment to prioritize your partnership, to nurture it daily, and to invest in its growth. Take time to celebrate each other’s victories, support one another’s dreams, and build a foundation of love and respect. When you start the year with a clear focus on your relationship, you’re setting it up for success.
So, before you start mapping out your new workout plan or work goals, do yourself a favor: put your relationship at the top of that list. Your love story deserves a fresh start, too.
Happy New Year, and here’s to a love-filled 2025!
Couples, if you are ready to do the work and invest in your relationship register for A Weekend For Love: Heart Retreat Feb 21-23, 2025.
Featured image by zamrznutitonovi/Getty Images
