What Dating Looks Like When You Have A Long-Term Illness
Until very recently, I hadn't been on a date in a while. I'd been asked on them, I'd flirted, I'd kissed – but committing to anything else was too hard. I'm in recovery from anorexia, and it takes over my life – which includes dating.
To start, a lot of dating revolves around food or drink. I'm very specific about what I will eat, and have to check out restaurant menus in advance. I often ask for adaptations. It's hardly the laid back and liberal approach I like to present to the world.
Body image is something that many women struggle with, but is exacerbated by an eating disorder. I don't really have dysmorphia – I know I'm underweight – but I still struggle with what other people will think.
And then there's the fact that I have to constantly be planning for my next meal or snack while thinking about not doing too much activity, at the same time. It's exhausting.
For the moment, it is recovery, in all its facets, that is a big part of my life.
So, avowedly spinster, potentially more out of self-protection than anything, I was rather blindsided when I met a sweet, funny, and supportive guy who has signed up for the good stuff and the hard stuff. He reassures me, helps with meals, calms me down when I get anxious, keeps me warm and makes me feel safe. We also like to dance around the living room, are big fans of exploring old buildings, can nail a newspaper crossword, and spend a lot of time laughing.
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But it's not easy - dating with a long-term illness is hard. And it's an issue that people with many different illnesses face.
Helen suffers with chronic pain all over her body, which affects all aspects of her life – mobility, cognitive function, and emotions. Whenever she is online speaking to someone new, she tells them that she has to walk with a stick. Quite often this is the end of the conversation, and people simply stop talking to her.
She recently went to a 'traffic light' party and was pointed at and called out by other people in the room. One man said to her, "You are limited, what are your solutions?" – as she couldn't travel far to see him due to exhaustion. "This made me feel inferior and an inconvenience," she says.
And with chronic pain, everything hurts – including sex. She explains that, "I've never met anyone who cared enough to be attentive and gentle enough to make it enjoyable."
This knowledge is exacerbated by her body dysmorphia and feeling that she isn't attractive enough for anyone to like her.
A girl I knew in recovery from anorexia once got all the way into bed before the man she was with stopped because she was too small, and he worried he would break her. At this point, she was what is deemed a "healthy" weight, showing how arbitrary and low these boundaries are set.
One thing that is really important is being honest.
I told my boyfriend about anorexia recovery almost immediately, as he had asked if I wanted to go out for lunch. The conversation then evolved into things he could do to help me – knowing my meal plan, nudging me to choose the best choices for recovery, planning in advance – rather than put us in an awkward situation.
But knowing when to have that conversation is hard. Karen has Chronic Fatigue Syndrome. She is very cautious about who she speaks to. "It feels like when you're sick, you spend a lot of time being cautious in who you show the real realities of the crap of the illness to, and so it's a massive vulnerability to have to bare your deepest insecurity of an illness, very quickly. To let down that mask even a little bit, is a real risk. There's no way around ripping that plaster off very soon, and so for me I'd probably rather steer clear of the situation where I have to do that, for fear of rejection because of it."
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"It feels like when you're sick, you spend a lot of time being cautious in who you show the realities of the crap of the illness to."
She finds that it often comes up when she is asked that killer question, "What do you do?" and she has to explain that she is off work long-term due to illness. As well as closing that conversation down, it makes her struggle with feelings of self-worth "and not wanting to be a burden physically and financially, as well as not wanting to appear weak."
Most of the people that I've spoken to about this are in their thirties. There's an extra pressure with dating in this decade, because, for the most part, people are looking for something long-term.
As Karen says, "When I think about marriage and stuff even though it's the whole 'for better or for worse, in sickness and in health' thing, it's the struggle of feeling like, 'Well yes, that's true, so if I became chronically ill after we were married that's when that would kick in, but to invoke that before you even begin, is too much of a price to ask someone to pay.' And although dating is just dating and doesn't necessarily even get to a point of long term, let alone marriage, it's always that looming feeling in the background."
But it's a good sign if you find someone willing to take on the illness challenge. My boyfriend has said that he wouldn't be putting in all of this effort if we were just a short-term fling. Every time he makes me a dinner that stretches me just enough towards recovery tomorrow, whilst feeling safe enough to deal with today, I know that he is reaffirming that he cares. Because it's not just me who faces challenges – so does he. He has had to have a much more structured approach to eating, with regular meals and snacks, so that he's always there to support me. Language is a big thing, as even the slightest slip such as calling something "bad" or commenting on the size of a meal can send me into misery or trigger of eating disorder behaviors.
Dr. Michelle R. Hannah says that the best time to share is when you both think that you are on the same page in regards to where the relationship is heading. She has worked with lots of cancer survivors on rebuilding their lives, and has also suffered from cancer herself. She was lucky that when she met her husband, she had been through a process of self-healing by spending time working on her own physical and mental health. "We had the conversation early on because we truly knew where we were going early in our relationship. It was a tough conversation but his compassion and commitment made it easier. Knowing we could both be transparent with each other helped immensely on the days that I was at a pain level of nine on a scale from 1 to 10. After four major procedures before we were married, I knew that we were both committed to the traditional wedding vows before we took them. Chronic illness, or recovery from one, is one of the toughest challenges that one can go through but when you have someone who is dedicated to assisting you to achieve optimal health and love you through it, [it] makes the journey so much more meaningful."
"Chronic illness, or recovery from one, is one of the toughest challenges that one can go through but when you have someone who is dedicated to assisting you to achieve optimal health and love you through it, [it] makes the journey so much more meaningful."
Clare has also been diagnosed with Parkinson's for just over two years and has found that it has really knocked her confidence. First dates are stressful and full of anticipation anyway, but Clare struggles to even get dressed for them. "Things can be going well," she says, "but then I will start trembling and feel self-conscious and stupid. My left arm hangs in a way that I think makes me look very sick. I am consciously aware of it, and will spend all my time worrying about it. So then I can't focus on and enjoy the date."
That's one of the key things about dating when you have a long-term illness. That illness is always present, and it's very difficult to be 100% focused on the date or relationship in general.
Self-esteem is one of the biggest casualties. It's this that stops Karen. "I know that I struggle with internal dialogues of self-worth with having a chronic illness and the thought of dating - the battle of feeling like no one would want to buy into that from the beginning."
When your illness takes over you everyday life, it can feel like you've got nothing else to give. I've felt like that too. Why would anyone want to put up with the challenges that illness and recovery come with?
Because they care. And that's what all relationships are about: A mutual caring, respect, and delight in each other's company. As important as self-care and management strategies are, and as big an issue as illness is, it's not everything.
You're an individual with a lot more to give than just a diagnosis, and there are people out there excited about getting to know all of you, the good, difficult, and shades of light and grey.
Featured image by Getty Images
Never happier than when in a library or clutching a notebook, Francesca Baker is a writer, reader, and word lover. As Virginia Woolf said 'my head is a hive of words that won't settle.' So she puts them to use, exploring the world and then writing about it. You can read more about Francesca on her blog or follow her on Twitter and Instagram.
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LIST HERE.
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THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
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III. An ItGirl empowers others to become the best versions of themselves.
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Navigating Dating When Emotionally Unavailable & Detached: My Journey Back To Feeling
The last time I came with a dating story, I told you I got my little feelings hurt in 2021. I called myself trying to be out in these streets entertaining a man in a different area code, city, and state — only for homeboy to play in my damn face. So, I went and gave y’all "8 Rules To Casual Dating Every Woman Should Know This Summer." You’re welcome. Fast forward to 2024, and I am now coming to you from a more mature and intentional place. We’re not in summer yet, but I truly believe what blooms in spring, thrives in summer.
2023 was my year, and it was my turn. I had just completed an 8-month holistic detox. The glow-up was real and well-deserved. The way I have poured into myself is unmatched. Let me tell you, self-love is a love you have never known. After a five-year healing journey, I finally felt like myself again, and I was ready to play. My heart was open, my mind was clear, and my body hella transformed. I had told all my friends that I was ready to explore dating again, and at the height of summer, I did exactly just that.
This time I decided I wanted to take my time. I wanted to date the “right way” or the “healthy way.” You know, keep your options open, ask the right questions, believe actions and not words, observe patterns and pay attention to red, yellow, and green flags. I was never the dating app type of girl. I sincerely miss everything about human connection and dating from 2000 to 2012. Can we please bring all of that back into 2024? I prefer to feel a man’s energy and presence in real-time. Nonetheless, I still chose to dabble with a few dating apps. I was all the way outside and dating for practice.
Unfortunately, with today’s dating culture, social climate, and how some of these men move and/or behave, these dates were a dead end. Not one guy made it to my roster. What these men were was benched this season – not one of them could be my first-round select draft pick. It didn't seem like anyone I met was interested in a serious relationship. And it’s completely fine. Miss me with the ghosting, lack of effort, inconsistency, and poor communication. I continued to just do me because what is for me will not miss me.
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The universe must have heard me talking because I had specifically told my closest girlfriends that I wanted to meet someone who lived in the vicinity, no more than twenty minutes away, and no more long distance. And I did meet him (it’s crazy how I manifest exactly what I want). As we started to get to know each other, I liked his energy and effort. I liked the direction it seemed to be going to the point my girlfriends had to tell me not to run from him. Because every part of me wanted to run from something that seemed normal.
I liked what he was coming with until I became uncomfortable with my own feelings, and I didn’t know how to communicate them to him.
With that said, I knew if I truly wanted to experience the truest of loves, a reciprocal, requited love, and be in a healthy relationship this story had to come to a pause. What I didn’t know was that he was going to show me things I didn’t know I needed to work on. I didn’t know he inadvertently was going to help me continue to heal parts of me that were hidden.
As someone who has learned to self-heal, I am no longer the type that runs from herself. I am here for the growth.
The truth is I am emotionally detached from myself, and I am not actively dating at the moment. I am the one that has to work on herself. My reiki healer called it, too – she told me this year would not be a year for a relationship, but a year of continuous growth. And now I see why. After all the healing work I have done thus far – I am an unemotional mess. How?
At my big age of 39, I struggle to communicate my wants and needs.
I still struggle to communicate and process uncomfortable feelings. I would rather give myself anxiety, act nonchalantly, emotionally react, and choose non-communication when I am bothered with someone than address the issue (I will later explain why). I have been ignoring my feelings for so long it has become a habit, a defense mechanism, and more so a trauma response.
If you are someone like me who grew up in a household that didn’t discuss feelings, your emotional needs were unmet, and you don’t feel safe to share your feelings – emotional detachment is quite common.
Oftentimes, we always talk about men being emotionally unavailable, but what if it’s a woman who is emotionally unavailable or emotionally detached? How does she navigate herself, dating, or being in a relationship? As I navigate my emotions this season, let’s explore what it means to be emotionally detached, the signs of detachment, and how to reconnect with yourself emotionally.
Emotional Unavailability vs. Emotional Detachment
When we look at the terminology emotional unavailability and emotional detachment, one might argue that the two terms are interchangeable and have the same meaning. One could also argue that both terms mean that some people are not in tune with their emotions or lack the emotional capacity to be responsive to someone else’s emotions. Fair enough. However, there is a big difference. The definition of emotional unavailability is described as people who have difficulty with sharing their emotions and being receptive to the emotions of those around them.
According to Verywell Mind, signs of emotional unavailability can look like being distant or cold, lack of closeness, and emotional intimacy in relationships, inability to understand and relate to others’ feelings, defensiveness when asked to change or let others in, tendency to shut down or avoid topics that require emotional openness, or withdrawal from people or situations that provoke emotional reactions.
Whereas emotional detachment is defined as the inability to or willingness to connect with others on an emotional level. Furthermore, Psychology Today states emotional detachment can also mean that people do not engage with their feelings. Exhibit A – me. Emotional detachment has various causes – past neglect, childhood or adult trauma, PTSD, depression, personality disorder, bipolar disorder, substance abuse, or, in some cases, medication (i.e. antidepressants). It is important to note emotional detachment is a complex issue. For someone like me, it’s a coping mechanism.
It is easier for me to ignore uncomfortable feelings to protect myself from stress or getting hurt. Hence, my nonchalant demeanor. It is also true for some people it is a reaction to trauma, abuse, and unprocessed emotions. Exhibit B – me. As it is difficult for me to open up about my feelings at the moment. On the contrary – emotional detachment can be helpful in navigating some situations like listening to people’s opinions and gossip.
Unfortunately, emotional detachment is not a behavior that can be turned on and off at will. Please note that emotional detachment is NOT a mental health diagnosis but can be a symptom of a mental health condition such as an attachment disorder. And if you know anything about attachment theory, it is related to the relationship we develop in our childhood with our primary caregivers.
Signs You're Emotionally Detached
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According to Psychology Today and Verywell Mind, general signs of emotional detachment can look like difficulty showing empathy to others, sharing emotions, committing to a relationship, feeling numb, poor listening skills, lack of self-esteem, preferring to be alone, struggling to feel positive emotions, inability to identify emotions, lack of physical, verbal, or sexual contact and losing touch with people or maintaining connections.
In a romantic relationship, emotional detachment shows up as you or your partner not being available for connection, poor communication, or reduced affection.
For me, my experience with emotional detachment is collective. I am an empath to my core. I don’t have a problem relating to other’s feelings or circumstances. I don’t have commitment issues, nor do I have an issue connecting with others or maintaining those connections. I struggle with sharing emotions, at least the negative ones.
Due to the emotional abuse from my childhood and a toxic relationship, I learned sharing emotions just wasn't the safe thing to do. As a survivor of trauma, I learned to suppress feeling negative emotions in general as a form of protection.
How To Reconnect To Your Emotions When You're Emotionally Unavailable
Serious Kid Cudi GIF by Apple MusicGiphyExploring my emotional side in-depth started late last year simply by noticing my reaction to something that he did. I didn’t know how to properly communicate to him how I was feeling or what he did bothered me in the moment. So, I swallowed my feelings and said absolutely nothing. I intentionally chose to avoid the issue. I chose to rationalize the situation instead of acknowledging that my feelings at the time were valid. I chose to act like everything was all good because it was all good.
“It wasn’t that deep to begin with” is what I told myself. And this is where the problem lies.
The saying is true, “What happens in your childhood shows up in your adult relationships.” I came to realize that because I was not able to express my feelings as a child, I struggled to process them. I either hold back my feelings, take a long time to say how I feel, or don’t say anything at all. This is because I fear people will walk away from me like my mother did if I share what I truly feel. I fear my feelings won’t be validated, or they will be rejected.
With that said, I was completely unaware that I was emotionally detached from myself until recently. So, here we are with this article. It all started by reading Instagram’s @theholisticpsychologist, Dr. Nicole LePera’s newest book How to Be the Love You Seek: Break Cycles, Find Peace, and Heal Your Relationships, which was released on November 28, 2023. As I read through the first chapter, I became triggered.
How Dr. LePera describes her childhood with her parents and experiences with her romantic partners somewhat mirrored my experiences with my own parents and relationships. As Dr. LaPera stated in her book, I have no issue showing up for others or meeting their needs and wants. But when it comes to expressing my own needs and wants – I cannot or I don’t. This is mainly due to my hyper-independence.
At an early age, I learned to show up for myself because the people I trusted to show up for me failed. Given my home environment, I had internalized it is not safe to talk about feelings. I never knew my emotional responses and behavior were abnormal. But because I am willing to continue to do my inner work, I know that I can reconnect to my emotions, and undo four decades of repressed emotions.
If you are someone like me who struggles with emotional connection with yourself and others, here is how you go about it:
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1. Know Your Attachment Style
For me, the first step was to understand my attachment style. I asked my therapist if she could help me identify my attachment style to understand my triggers. She recommended The Attachment Theory Workbook by Annie Chen, LMFT. My therapist administered the associated online quiz – Attachment Quiz. If you haven’t figured out my attachment style yet by reading this article, I have an anxious attachment style.
This means I don’t do well with inconsistent behavior, especially from men (but I’m the type that holds men to standards too). People with an anxious attachment style have a need to feel close to their partner. It may come across as “clingy” or “needy.” However, this same need is often driven by fear of abandonment, mistrust, and low self-esteem. I would say knowing your attachment style is helpful because you can work towards having a secure attachment style (with practice) in your relationships – familial, business, work, platonic, or romantic.
2. Become Self-Aware
Most people who are not in the practice of self-care or self-healing are unaware of their triggers, patterns, and behaviors. We are so caught up in the daily minutiae of life that we forget to pay attention to the most important part of our days — ourselves. As Dr. LePera says, make it a conscious habit to pause throughout your day to check in with yourself. Ask yourself:
- How does my body feel?
- What am I doing right now?
- Am I present?
- Am I distracted and lost with other thoughts?
- What do I think or feel when I recall a specific experience with someone?
- What do I think or worry about?
- What would happen if I shared my authentic thoughts, perspective, feelings right now?”
This is what Dr. LePera refers to as exploring your embodied self or fulfilling your authentic needs in chapter two of her book. Consistent mindfulness and self-awareness are key to self-discovery and in any healing journey. Learning to focus on the present moment also includes paying attention to our emotional response to an event or how we think about emotions in general.
3. Practice Vulnerability
The idea of vulnerability is a tough one for me and so many other women for countless reasons. Whether it be toxic family, friendships, relationships, or trauma – trusting others with your thoughts and feelings is not easy. As much as I am open and transparent, I am not as vulnerable. And I believe there is so much power in the duality to be both. To trust someone, let alone a man with your authentic self is a delicate matter.
But it is emotional vulnerability that allows us humans to build authentic connections, create stronger relationships, and break down emotional walls. Emotional vulnerability is not something to be rushed – it takes time and practice from you and the people you choose to have in your life. Medical News Today suggests that we can learn to be vulnerable by opening up more to our closest friends, building our ability to become more trusting, and developing skills to regulate our emotions.
4. Seek Therapy
I have been in therapy for six years and counting. I would consider therapy one of my safe spaces. I am one of those individuals who recommend therapy to everyone as it has given me the tools and resources I need to navigate my life challenges. By choosing to get help, I was able to put my PTSD and depression in remission for four years now. I have also learned how to manage my anxiety.
I am fully aware that in this season of my life requires me to do the work to unlock new levels of self. And any time where I have consciously chosen growth – the universe or life has not failed me. I was able to heal my body, my heart, and my spirit. Now, it’s time to heal my inner child, this hurt little girl who lives in me.
I will say choosing a therapist is similar to dating; you might go through a few potentials until you find a therapist you connect with. Actually, one of my lifelong friends said to me the other day, “Your relationship with your therapist is one of the most important relationships in your life.” I needed her to say that, and I needed to hear it because it’s true. You are essentially trusting a licensed stranger to help you navigate your life on so many levels.
Be picky and ask the questions. Cut the cord at the first red flag given. Again, let me reiterate that emotional detachment is not a mental health diagnosis. It can be treated with the help of a therapist. Emotional detachment only becomes a problem when it starts to interfere with your daily life. Pay attention to changes in your daily behavior and make decisions to cope accordingly.
I am genuinely excited about reconnecting with my emotions. I want to feel all the feels – good, bad, and indifferent. I want to cry all the tears – especially the sad ones. I want to process and release negative emotions. I want to say how I feel in the moment with no fear.
If you are that girl who struggles with emotional connection or thinks you're emotionally detached, I hope that you become willing to face your inner child and show up for her. Don’t run – she has been waiting for you.
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