The beauty of life is that anything can happen at any moment, and you can count on the journey to help you gain perspective and strength to deal with it. When I was 21 years old, I was officially diagnosed with generalized epilepsy. Epilepsy is a neurological disorder that causes abnormal activity in the brain, seizures, and loss of consciousness.
The seizures would start off slow. First, I'd feel very tired — both mentally and physically. Then, it would become hard for me to stay focused. I would be in and out, as if I was falling asleep and waking up. After those signs, I would have the seizure and lose consciousness. I also experienced memory loss and I can only remember the events before I had the seizure.
Sound intense? It is.
When I was diagnosed, I felt upset and even betrayed. I couldn't understand why this was happening to me or where these seizures were even coming from. I had no idea what epilepsy was at the time, all I knew was I was having seizure after seizure and it was stressful.
My first seizure happened in my bedroom. I was talking with a friend and getting ready to head out. I noticed I felt drained and completely out of it, I felt zombie-like as I was getting ready. Next thing I knew, I was laying on the floor with my mom and friend hovering over me and blood scattered around me. I didn't know what happened or where the blood came from, but I was too exhausted to figure it out.
After being sent to the ER and hearing my friend tell the story, I realized what happened. I realized that on my way to the bathroom, I began shaking (convulsing), then fell and hit my head on the end of the bed. I busted the top of my nose in between my eyes and needed six stitches due to the impact.
After a while, it became more intense and the seizures were happening way too frequently. I would have seizures on the train, at work, and at home. At that point, I knew I needed to seek out some serious medical attention.
I spent a year and a half trying to figure it out and go back to "normal." I went to different hospitals and tried an array of medications. Nothing worked. I wanted to give up. It seemed like the doctors didn't know how to help me. I was losing hope in the medical system and had a hard time adjusting to what my new life would entail. I felt hopeless and remembered that my mentor at the time used to suffer from seizures. When I reached out to her, she recommended I make an appointment at NYU's neurology center and I did. I'm so grateful for her to this day because that's when I finally received the proper treatment and tests.
I was officially diagnosed at NYU, but I also had to face the hard reality that this was never going away.
My doctor informed me that the chance of epilepsy going away as an adult was unlikely, but it can be maintained. She also informed me that the type of epilepsy I have can be triggered by hormonal changes, stress, and alcohol. So, if I wanted to start a family, I would need some medical assistance to make sure I can carry seizure-free. I was literally shook! Just when I started to get a little hope, it was taken away. As for alcohol, I cut back, but not completely at first. I had some wine and a beer here and there and stuck to things with low alcohol.
Fast-forward to life after my diagnosis, I was doing fine, I hadn't had a seizure but I was taking medication every day. The medication was bittersweet. While I didn't have any seizures, I wasn't eating either. I could hardly finish a meal and I lost a significant amount of weight. I would only eat one meal a day or drink nutriments. Although eating became a struggle, anything was better than the seizures, so I continued taking my meds and smoked some weed to gain an appetite. Unfortunately, my seizures didn't stop and I stopped taking my meds and looked into holistic treatments (which I don't encourage you to do without consulting with your doctor). I realized I had to make these lifestyle changes to live seizure-free:
Avoid Anything That Can Cause Hormonal Changes
I stay away from all birth control methods, emergency contraceptives, and anything that can affect my menstrual cycle. I also take folic acid daily as a preventative measure to lower the effects of any issues I may have during pregnancy.
I Had To Accept Epilepsy
I never really accepted epilepsy in my life. For a long time, I disassociated myself with it so much, especially in the beginning. I didn't identify with being "disabled," not that there's anything wrong with that, I just didn't feel that way. I didn't want to face it, I didn't want to understand it, and I certainly didn't want to live it. I was also younger and less mature at the time, which made it even harder. I noticed when I accepted it, I paid more attention to triggers and effects, I was able to do more research and became open to exploring ways of living with it.
Keep Stress Low
Like anxiety, too much stress can be a trigger. To keep my stress low, I try my hardest to:
- Meditate every day
- Practice time-management
- Exercise or do yoga
- Attend therapy when I can
Very Low Caffeine Intake
Anxiety is also another trigger and too much caffeine makes me very anxious. I avoid anything that may cause any additional anxiety to keep it safe. I don't drink soda and stick to decaf coffee.
Eating Healthier
I struggled big time with eating and because of that, my body wasn't getting the proper nutrients it needed. I make sure I'm having the necessary amount of carbs, protein, and vegetables to maintain a healthy diet and weight.
Avoid Alcohol
Alcohol was the biggest trigger and probably the hardest one to let go of. I didn't drink much but it was still something I enjoyed. I also felt very peer-pressured to drink. Every time people would invite me to hang out, the first line would be "let's grab a drink" and it became harder to deal with.
I also felt uncomfortable sharing that I don't drink, each response was either "how you don't drink?" "you don't drink at all?" or "why you don't drink?" I don't blame the people around me for their curiosity, but it was hard to deal with on top of everything else. I was very uncomfortable with having epilepsy, especially when it came to talking about it.
Eventually, I just removed myself from certain settings like bars and when people asked why I didn't drink, I just let them know it's not for me.
Since making these lifestyle changes, I've been seizure-free for a year *insert twerk*. If you have epilepsy, please consult your neurologist before making any lifestyle changes.
Featured image by Getty Images.
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Sounds like something out of a novel, right? xoNecole had the opportunity to chat with the lovely couple about their wedding, reconnecting, and having a second chance at love.
Photo courtesy of Kai and Hicham Bouhmad
Kai and Hicham on Meeting for the First Time
Kai and Hicham got married on February 14, 2023, in Honolulu, Hawaii in an intimate ceremony, and plan on having a reception in Morocco, Hicham’s home country, later on. One of their wedding guests was the person responsible for their union, Hicham’s friend Karim. Kai reflected on that day when they met.
“I was at a party, and a guy walked in and was like, what’s going on in here? And I was like, well, this is a salon party for the salon that just opened, and they had free food and stuff, and I was like do you want some food?” Kai shares.
When they began talking, Karim brought up Hicham. “He was like, 'I have a friend that I want to introduce you to if you’re single,' and I said, ‘Yeah, that sounds cool.’ So, he was like, 'Well, I’m gonna send you his Facebook information. If you guys can talk on Facebook and see how you guys like each other.' So, that was six years ago, and we talked, and we got along pretty well, and then we started dating.”
Kai and Hicham Describe Their First Date
Because both of them are into the arts, they decided to go to the movies on their first date. At that time, Loving was in theaters, and according to Kai, she knew when she saw him that she wanted to marry him. “I just had that feeling,” she reveals.
Hicham also recalls their “wonderful” date that extended after the movies at a nearby restaurant. “It was a wonderful moment when we made eye contact,” he says.
Photo courtesy of Kai and Hicham Bouhmad
Their Breakup and Reconnection
While Kai saw Hicham as her husband, she wasn’t ready to settle down, but Hicham was. So, they decided to go their separate ways, and Kai began traveling the world. But little did she know that six years later, she would see him again. This time, Kai was visiting an art gallery that had just opened up and began talking to the art gallery owner.
“She [art gallery owner] said, ‘I’m having an art opening, the studio just opened, and we’re having a party next week, and you should come, and my boyfriend has a lot of friends, maybe I’ll introduce you to some of his friends,’ and I was like ‘Oh, okay,’ Kai recalls.
“And at this time, I had already booked my ticket to go to Morocco to explore by myself, solo travel. So I said, 'Oh yeah, this will be fun.' This was in April, and my trip to Morocco was just in August. So, I said, ‘Yeah, I’ll come to your little party, I’m there.’ I’m talking, and then she said 'Oh, my boyfriend is here, and here’s one of his friends.' One of his friends was Hicham.”
This happened on April 23, 2022, and they have been together ever since.
The Engagement
When Hicham reappeared in her life, Kai knew she was now ready to settle down. “I honestly got tired of doing stuff by myself. I was tired, everything I have to do by myself, and I just got tired of that,” Kai explains. “I just felt like I really wanted a partner who’s really supportive and generous and kind, and I really wanted a partner that was by my side.
One of the ways that Hicham convinced Kai to give him another shot was when he wore a cactus shirt to her house, which showed the journalist how much he paid attention to her. “I love cactuses ‘cause it reminds me of the desert. It’s bohemian, I love desert cactuses. When he showed up with a cactus shirt on, I just could not resist,” she says. “That sounds cheesy and cliche and might sound silly, but it just symbolized that he knows me deeply and what I love and paid attention to stuff I care about even though it was silly. That meant a lot.”
Not long after, Hicham knew it was time to pop the question. “Kai gave me [an] indication that she was ready, and so that’s how that all happened.” He continues, “dropping hints, and she was pretty much ready, and I proposed to her.”
Kai admits that they planned their engagement together, including ring shopping, engagement photos, etc.
Photo courtesy of Kai and Hicham Bouhmad
Advice on Finding Love Again
This is both Kai’s and Hicham’s second marriages, and they gave advice on finding love the second time around. They both share the same sentiment about being open and optimistic. Both come from different cultural backgrounds and while that alone could have held them back from pursuing one another, they were open to love.
“Get out of your comfort zone and don’t limit yourself and don’t fear to fail because from failure you learn to build yourself up,” Hicham says.
And at the end of the day, it’s important to establish a friendship first. “Another [piece of] advice, just make sure you like the person,” Kai says, “and that’s really important because you have to make sure even if you have a disagreement or arguments, at the end of the day, you have to ask yourself, do I like this person? And just make sure you really like them.”
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Feature image courtesy of Kai and Hicham Bouhmad
