Living A Healthier Lifestyle Changed My Epilepsy For The Better
The beauty of life is that anything can happen at any moment, and you can count on the journey to help you gain perspective and strength to deal with it. When I was 21 years old, I was officially diagnosed with generalized epilepsy. Epilepsy is a neurological disorder that causes abnormal activity in the brain, seizures, and loss of consciousness.
The seizures would start off slow. First, I'd feel very tired — both mentally and physically. Then, it would become hard for me to stay focused. I would be in and out, as if I was falling asleep and waking up. After those signs, I would have the seizure and lose consciousness. I also experienced memory loss and I can only remember the events before I had the seizure.
Sound intense? It is.
When I was diagnosed, I felt upset and even betrayed. I couldn't understand why this was happening to me or where these seizures were even coming from. I had no idea what epilepsy was at the time, all I knew was I was having seizure after seizure and it was stressful.
My first seizure happened in my bedroom. I was talking with a friend and getting ready to head out. I noticed I felt drained and completely out of it, I felt zombie-like as I was getting ready. Next thing I knew, I was laying on the floor with my mom and friend hovering over me and blood scattered around me. I didn't know what happened or where the blood came from, but I was too exhausted to figure it out.
After being sent to the ER and hearing my friend tell the story, I realized what happened. I realized that on my way to the bathroom, I began shaking (convulsing), then fell and hit my head on the end of the bed. I busted the top of my nose in between my eyes and needed six stitches due to the impact.
After a while, it became more intense and the seizures were happening way too frequently. I would have seizures on the train, at work, and at home. At that point, I knew I needed to seek out some serious medical attention.
I spent a year and a half trying to figure it out and go back to "normal." I went to different hospitals and tried an array of medications. Nothing worked. I wanted to give up. It seemed like the doctors didn't know how to help me. I was losing hope in the medical system and had a hard time adjusting to what my new life would entail. I felt hopeless and remembered that my mentor at the time used to suffer from seizures. When I reached out to her, she recommended I make an appointment at NYU's neurology center and I did. I'm so grateful for her to this day because that's when I finally received the proper treatment and tests.
I was officially diagnosed at NYU, but I also had to face the hard reality that this was never going away.
My doctor informed me that the chance of epilepsy going away as an adult was unlikely, but it can be maintained. She also informed me that the type of epilepsy I have can be triggered by hormonal changes, stress, and alcohol. So, if I wanted to start a family, I would need some medical assistance to make sure I can carry seizure-free. I was literally shook! Just when I started to get a little hope, it was taken away. As for alcohol, I cut back, but not completely at first. I had some wine and a beer here and there and stuck to things with low alcohol.
Fast-forward to life after my diagnosis, I was doing fine, I hadn't had a seizure but I was taking medication every day. The medication was bittersweet. While I didn't have any seizures, I wasn't eating either. I could hardly finish a meal and I lost a significant amount of weight. I would only eat one meal a day or drink nutriments. Although eating became a struggle, anything was better than the seizures, so I continued taking my meds and smoked some weed to gain an appetite. Unfortunately, my seizures didn't stop and I stopped taking my meds and looked into holistic treatments (which I don't encourage you to do without consulting with your doctor). I realized I had to make these lifestyle changes to live seizure-free:
Avoid Anything That Can Cause Hormonal Changes
I stay away from all birth control methods, emergency contraceptives, and anything that can affect my menstrual cycle. I also take folic acid daily as a preventative measure to lower the effects of any issues I may have during pregnancy.
I Had To Accept Epilepsy
I never really accepted epilepsy in my life. For a long time, I disassociated myself with it so much, especially in the beginning. I didn't identify with being "disabled," not that there's anything wrong with that, I just didn't feel that way. I didn't want to face it, I didn't want to understand it, and I certainly didn't want to live it. I was also younger and less mature at the time, which made it even harder. I noticed when I accepted it, I paid more attention to triggers and effects, I was able to do more research and became open to exploring ways of living with it.
Keep Stress Low
Like anxiety, too much stress can be a trigger. To keep my stress low, I try my hardest to:
- Meditate every day
- Practice time-management
- Exercise or do yoga
- Attend therapy when I can
Very Low Caffeine Intake
Anxiety is also another trigger and too much caffeine makes me very anxious. I avoid anything that may cause any additional anxiety to keep it safe. I don't drink soda and stick to decaf coffee.
Eating Healthier
I struggled big time with eating and because of that, my body wasn't getting the proper nutrients it needed. I make sure I'm having the necessary amount of carbs, protein, and vegetables to maintain a healthy diet and weight.
Avoid Alcohol
Alcohol was the biggest trigger and probably the hardest one to let go of. I didn't drink much but it was still something I enjoyed. I also felt very peer-pressured to drink. Every time people would invite me to hang out, the first line would be "let's grab a drink" and it became harder to deal with.
I also felt uncomfortable sharing that I don't drink, each response was either "how you don't drink?" "you don't drink at all?" or "why you don't drink?" I don't blame the people around me for their curiosity, but it was hard to deal with on top of everything else. I was very uncomfortable with having epilepsy, especially when it came to talking about it.
Eventually, I just removed myself from certain settings like bars and when people asked why I didn't drink, I just let them know it's not for me.
Since making these lifestyle changes, I've been seizure-free for a year *insert twerk*. If you have epilepsy, please consult your neurologist before making any lifestyle changes.
Featured image by Getty Images.
Related Articles:
How A Near-Fatal Illness Transformed Hey Fran Hey's Life For The Better – Read More
What Self-Care Looks Like To Chronic Illness Warrior Devri Velazquez – Read More
The Beauty In The 'Healing Crisis' – Read More
- Living with Epilepsy Conference Lake Tahoe, CA – Epilepsy ... ›
- Living with epilepsy | Topics, Epilepsy, Nerves & brain, People's ... ›
- Living with epilepsy | Epilepsy Society ›
- Epilepsy: Living & Managing ›
- Living with Epilepsy – EFEPA – Epilepsy Foundation Eastern ... ›
- 10 Life Hacks for Living With Epilepsy | Henry Ford - LiveWell ›
- Sitawa Wafula: Why I speak up about living with epilepsy | TED Talk ›
- Living with Epilepsy | Epilepsy Foundation ›
- Epilepsy 101: Living With Seizures | For Better | US News ›
Freelance writer, content creator, and traveler. She enjoys the beauty of simplicity, a peaceful life, and a big curly fro. Connect with Krissy on social media @iamkrissylewis or check out her blog at www.krissylewis.com.
ItGirl 100 Honors Black Women Who Create Culture & Put On For Their Cities
As they say, create the change you want to see in this world, besties. That’s why xoNecole linked up with Hyundai for the inaugural ItGirl 100 List, a celebration of 100 Genzennial women who aren’t afraid to pull up their own seats to the table. Across regions and industries, these women embody the essence of discovering self-value through purpose, honey! They're fierce, they’re ultra-creative, and we know they make their cities proud.
VIEW THE FULL ITGIRL 100 LIST HERE.
Don’t forget to also check out the ItGirl Directory, featuring 50 Black-woman-owned marketing and branding agencies, photographers and videographers, publicists, and more.
THE ITGIRL MEMO
I. An ItGirl puts on for her city and masters her self-worth through purpose.
II. An ItGirl celebrates all the things that make her unique.
III. An ItGirl empowers others to become the best versions of themselves.
IV. An ItGirl leads by example, inspiring others through her actions and integrity.
V. An ItGirl paves the way for authenticity and diversity in all aspects of life.
VI. An ItGirl uses the power of her voice to advocate for positive change in the world.
Let’s make things inbox official! Sign up for the xoNecole newsletter for daily love, wellness, career, and exclusive content delivered straight to your inbox.
Crystal Renay Is Prioritizing Healing, Her Kids, And Her Coins Amid Divorce
Crystal Renay is reclaiming her time and her identity after dealing with heartbreak. The model was married to Ne-Yo for seven years and they share three young children together. However, after a cheating scandal that resulted in a baby outside of their relationship, Crystal decided to end her marriage to the “So Sick” singer. Now, she is focusing on her bag and her kids. She is co-owner of Johnny’s Chicken and Waffles, launching a lip kit line, and is back on TV starring in the new WE TV reality series Bold & Bougie.
But it wasn’t an easy road, especially with reality TV. From the beginning, Crystal and her castmates bumped heads due to misconceptions and alliances with her ex-husband’s former partner, Monyetta Shaw. However, the mother of three exclusively tells xoNecole that she doesn’t regret her decision to join the show.
Crystal Renay
Photo courtesy
“Honestly, being in that space, we had a– you know, when you're first getting to know people, sometimes it can be smooth, and sometimes it can be rocky,” she says. “In our case, it was a little bit rocky and just getting to know each other, and I like to call it growing pains. And I felt like we had a couple of moments, but all in all, like the experience was really good for me, and I would do it over again.”
Crystal describes herself as “career-oriented” and says she is in her selfish season because she is now prioritizing herself first. But she admits that she is still healing from her divorce. The reality TV star shares some tips for others who may be going through the same thing.
“I would definitely say pray, pray as much as you can. Try to take your emotions out of your reactions to things because it’s always going to be something that you don't like in the situation,” she says. “But we can't move off of emotion because 10 times out of 10, a few months later, you're not going to feel like that. So, I'm a firm believer in not doing things that I will regret later. So I would just say be patient with yourself and stay positive.”
While there may be an opportunity to find love again, that’s not Crystal’s focus at the moment. She is in the rebuilding phase of her life, emphasizing the importance of self-care, personal growth, and finding her own happiness. She has had her share of challenges, including dealing with negative emotions and the public's perception of her, but her priorities involve spending quality time with her children and running lucrative businesses.
“I would definitely say pray, pray as much as you can. Try to take your emotions out of your reactions to things because it’s always going to be something that you don't like in the situation.”
“With my kids, I'm very hands-on. I’m team mother with soccer kids, and they don't really make no goals because they like five years old, but I'm there cheering them on every week,” she jokes. “I want to travel, especially this summer, with my kids and take them somewhere internationally because they're at the age where they can handle a long flight. So, me just spending more time and more new experiences with my kids is my main focus with them and showing them all the love that I could possibly give them.”
Let’s make things inbox official! Sign up for the xoNecole newsletter for daily love, wellness, career, and exclusive content delivered straight to your inbox.
Photo courtesy of Crystal Renay